Literature Review
Provision of end-of-life care in austere environments
05/31/25 at 03:40 AMProvision of end-of-life care in austere environmentsWilderness & Environmental Medicine; by Jason W. David, Hui Z. Feng, Danny Lammers, Russell Day; 6/25End-of-life care presents unique challenges in austere or resource-limited environments where traditional medical resources are scarce or absent. This review explores the complexities of providing end-of-life care under such constraints, including recognition of the dying patient and techniques to alleviate suffering and allow death with dignity in under-resourced or expeditionary environments. Moreover, it presents these techniques in an accessible manner for providers without formal hospice training to use. Based on a literature review of hospice and palliative medicine, insights from the body of literature in wilderness and austere medicine, and the authors’ experiences in practicing in austere environments, this paper discusses practical approaches to symptom management, ethical considerations in end-of-life decision making, and accessible interventions with limited resources.Publisher's note: An interesting article for all healthcare professionals to consider...
A critical examination of ‘family’ caregiving at the end of life in contexts of homelessness: Key concepts and future considerations
05/31/25 at 03:35 AMA critical examination of ‘family’ caregiving at the end of life in contexts of homelessness: Key concepts and future considerationsPalliative Care and Social Practice; Ashley Mollison, Kelli I. Stajduhar, Marilou Gagnon, Ryan McNeil; 5/25In a world that is becoming more inequitable, understanding and reducing health disparities is a key priority for palliative care. This essay has demonstrated that bio-legal assumptions and privileging may be yet one more inequity in palliative care to address and overcome. This essay has focused in on populations facing homelessness and housing vulnerability, but changing families and growing inequality suggests the potential broad applicability of this work for our collective future. Palliative care is one of the areas of the Western healthcare system that explicitly attends to the person with serious illness and their family and caregivers understanding deeply how the suffering and joys of one group impacts the other. If there is a place in the current health system that can truly make space for caregiving – in all the ways it happens – it is, and should be, palliative care.
Granting permission: Toward embracing grief
05/31/25 at 03:30 AMGranting permission: Toward embracing griefJournal of Social Work in End-of-Life and Palliative Care; by Rennie Bimman; 3/25Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted permission to exist without barriers. By considering and evaluating grief experiences through the lens of their access to permission, clinicians can collectively imagine and promote inclusivity in grief. Permission is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.
Does family functioning matter? Understanding the relationship between family interactions and depressive symptoms for caregivers of cancer patients
05/31/25 at 03:25 AMDoes family functioning matter? Understanding the relationship between family interactions and depressive symptoms for caregivers of cancer patientsAmerican Journal of Hospice and Palliative Care; by Keisha White Makinde, Kyle A Pitzer, Jacquelyn J Benson, Maysara Mitchell, Debra Parker Oliver, George Demiris, Karla T Washington; 6/25Caregivers of cancer patients are at increased risk of depression and other health challenges. There is limited understanding of the role of the caregiver's own family members in promoting or discouraging mental wellbeing. Family caregivers with more positive family interactions are likely to have fewer depressive symptoms, suggesting family functioning may play a key role in bolstering family caregiver mental health and wellbeing.
Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancer
05/31/25 at 03:20 AMTiming and outcomes of palliative care integration into care of adolescents and young adults with advanced cancerOncology Practice; Jeremiah Bonnet, BA; Colin Cernik, MS; Hajime Uno, PhD; Lanfang Xu, MS; Cecile A. Laurent, MS; Lauren Fisher, MS; Nancy Cannizzaro, BA; Julie Munneke, BA; Robert M. Cooper, MD; Joshua R. Lakin, MD; Corey M. Schwartz, MD; Mallory Casperson, BA; Andrea Altschuler, PhD; Lawrence H. Kushi, ScD; Chun R. Chao, PhD; Lori Wiener, PhD; Jennifer W. Mack, MD, MPH; 5/25Adolescent and young adult (AYA) patients with cancer frequently receive intensive measures at the end of life; many also express care goals that align with a palliative approach. [In this study] nearly three quarters (73%) [of AYA patients] were referred to palliative care before death. Thirty-six percent of palliative care referrals took place before the last 90 days of life; 30% were in the last month of life. Palliative care referrals and their timing were associated with care received at the end of life, with earlier referrals associated with fewer intensive measures near death, including chemotherapy in the last 14 days of life ... as well as intensive care unit admissions, emergency room visits, and hospitalizations in the last month of life ... Patients who were referred to palliative care were more likely to have symptoms assessed in the last 90 days of life, including pain, dyspnea, nausea, diarrhea, constipation, depression, and anxiety ...
An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trial
05/31/25 at 03:15 AMAn intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trialJAMA Network Open; Angelo E. Volandes, MD, MPH; Yuchiao Chang, PhD; Joshua R. Lakin, MD; Michael K. Paasche-Orlow, MD; Charlotta Lindvall, MD, PhD; Seth N. Zupanc, BA; Diana Martins-Welch, MD; Maria T. Carney, MD; Edith A. Burns, MD; Jennifer Itty, MPH; Kaitlin Emmert-Tangredi, MSW; Narda J. Martin, MSN-ED, RN; Shreya Sanghani, MS; Jon Tilburt, MD; Kathryn I. Pollak, PhD; Aretha Delight Davis, MD, JD; Cynthia Garde, MBA; Michael J. Barry, MD; Areej El-Jawahri, MD; Lisa Quintiliani, PhD; Kate Sciacca, NP; Julie Goldman, MPH; James A. Tulsky, MD; 5/25Despite accumulating evidence of the benefits of these discussions, documentation of advance care planning (ACP) activity in the electronic health record (EHR) remains low and inconsistent for most health care systems, increasing the risk that patients will not receive care that matches their goals. In this pragmatic stepped-wedge randomized clinical trial among older patients with advanced cancer, an intervention combining patient video decision aids and clinician communication skills training increased the proportion of patients with ACP documentation. This randomized clinical trial exploring a combined intervention of patient empowerment and clinician communication skills training found a significant and clinically meaningful increase in ACP documentation rates with a scalable intervention that can be rapidly implemented across large health care systems. This approach offers an innovative paradigm with a clinically meaningful increase in ACP documentation, a widely used quality metric that reflects high-quality patient-centered care delivery.
Palliative care program characteristics and end-of-life outcomes for patients with metastatic cancer
05/31/25 at 03:10 AMPalliative care program characteristics and end-of-life outcomes for patients with metastatic cancerJournal of Pain and Symptom Management; by May Hua, Ling Guo, Shuang Wang, R Sean Morrison; 6/25Although U.S. palliative care programs have substantial differences in their implementation, whether this heterogeneity impacts patient outcomes is unknown. Palliative care program characteristics largely were not associated with differences in end-of-life quality metrics for patients with metastatic cancer.
The dementia care workforce: Essential to care but large research gaps exist
05/31/25 at 03:05 AMThe dementia care workforce: Essential to care but large research gaps existAlzheimer's and Dementia; Jasmine L Travers Altizer, Jennifer M Reckrey, Bianca K Frogner, David C Grabowski, Joanne Spetz; 5/25People living with dementia and their care partners benefit from services and supports from a wide variety of healthcare and social service professionals. This article provides an overview of the dementia care workforce and highlights gaps and opportunities for data collection and research to advance the workforce and its contributions to high-quality care. There are notable gaps in our ability to track career pathways, assess the impact of training, identify best practices for recruitment and retention, and understand attributes of the workforce that may affect the quality of both workers' lives and the care they provide to people living with dementia. The dementia care workforce works in multiple settings and includes many occupations. Evaluation research is needed to improve direct care worker recruitment, retention, and knowledge.
Saturday newsletters
05/31/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[Sweden / Australia / UK] Harms of morphine for chronic breathlessness in relation to dose, duration and titration phase
05/31/25 at 03:00 AM[Sweden / Australia / UK] Harms of morphine for chronic breathlessness in relation to dose, duration and titration phaseJournal of Pain and Symptom Management; by Magnus Ekström, Fatima Alameri, Sungwon Chang, Diana Ferreira, Miriam J Johnson, David C Currow; 6/25In people with COPD and severe chronic breathlessness, the risk of adverse events was highest during the first week of treatment in a dose-related fashion but did not differ by titration phase or by dose of once-daily SR morphine between 8 and 32 mg/day.
Referral criteria for specialist palliative care for patients with dementia
05/31/25 at 03:00 AMReferral criteria for specialist palliative care for patients with dementiaJAMA Network Open; Yuchieh Kathryn Chang, DO; Jennifer Philip, PhD, MMed, MBBS; Jenny T. van der Steen, PhD; Lieve Van den Block, PhD, MSc; Allyn Yin Mei Hum, MD; Pedro E. Pérez-Cruz, MD, MPH; Carlos Paiva, MD, PhD; Masanori Mori, MD; Ping-Jen Chen, MD; Meera R. Agar, PhD, MPC, MBBS; Laura Hanson, MD, MPH; Catherine J. Evans, PhD, MSc, BSc; David Hui, MD, MSc; 5/25Dementia is an ever-growing public health issue with currently more than 55 million people worldwide living with this disease. Due to an aging global population, this number is projected to triple by 2050. As the number of people with dementia continues to grow worldwide, there is a need and an opportunity to collaborate and provide seamless integration of specialist palliative care with the primary palliative care already delivered to enhance the care of patients with dementia. To help advance this goal, the 15 major criteria identified here represent a first step toward clarification of primary and specialist palliative care roles and consideration for systematic screening of symptom and supportive care needs.
Research study participation, 5/31/25
05/31/25 at 02:00 AMResearch study participation, 5/31/25:
SpiriTrust Lutheran says Home Care & Hospice operations will wind down across three counties, end service on July 18th
05/30/25 at 03:30 AMSpiriTrust Lutheran says Home Care & Hospice operations will wind down across three counties, end service on July 18th Tri-State Alert, Chambersburg, PA; Press Release; 5/29/25 Earlier on Thursday [5/29], News Talk 1037FM was alerted to a WARN notice from SpiriTrust Lutheran as to a closure of a portion of their business. Throughout the process, that notice has been narrowed down to their Home Care & Hospice (HCH), with the company announcing their plans to discontinue operations out of their Franklin County office which serves clients in Franklin, Adams and York counties. The official closure will be July 18, 2025. ... SpiriTrust Lutheran says that roughly 65 home care and hospice employees will be affected by the shutting, but some are expected to be reassigned or offered positions within the SpiriTrust Lutheran family of Life Plan Communities ... SpiriTrust Lutheran officials cited the organization’s ongoing challenges mirrored those confronting many similar organizations nationwide – significant increases in the cost of delivering care due to staffing shortages; rising benefit expenses; and the escalating prices for medical supplies and pharmacy.
LeadingAge, Hospice Associations seek delay in HOPE implementation
05/30/25 at 03:05 AMLeadingAge, Hospice Associations seek delay in HOPE implementation LeadingAge; Press Release; 5/28/25 LeadingAge, along with the National Alliance for Care at Home and the National Partnership for Healthcare and Hospice Innovation, on May 19 urged the Centers for Medicare and Medicaid Services (CMS) to delay implementation of the Hospice Outcomes and Patient Evaluation, or HOPE tool. In the letter to CMS Administrator Dr. Mehmet Oz the associations outline concerns with technology implementation in preparation for the HOPE tool. The letter specifically asks CMS to waive the HOPE timeliness submission requirement for two calendar quarters post implementation. The letter further requests that CMS delay the HOPE implementation date until at least six months after CMS education, training, and final validation specifications are available and the application for iQIES access has been opened for hospices.
Door remains closed on CMS forums as new rules, requirements are phased in
05/30/25 at 03:00 AMDoor remains closed on CMS forums as new rules, requirements are phased in McKnights Long-Term Care News; by Kimberly Marselas; 5/28/25 Four months into the new presidential administration, skilled nursing leaders have had no opportunity to hear directly from Centers for Medicare & Medicaid Services staff during traditional Open Door Forums or National Stakeholder Calls. Open Door Forums have been held three-to-five times annually in a practice that started more than 20 years ago. The online meetings give providers, vendors and other stakeholders an opportunity to learn more about regulatory and logistical changes being pursued by CMS, as well as providing question-and-answer sessions with policy architects. In addition to skilled nursing forums, CMS has in the past also hosted similar events for home health, long-term care services and supports, rural health and other provider types. But CMS in January cancelled a skilled nursing forum and all others planned for February and has yet to add any new forums or stakeholder calls — which often feature the administrator discussing major policy or clinical updates — to its calendar.
Today's Encouragement: May has taught me ...
05/30/25 at 03:00 AMMay has taught me lessons I will carry with me into June. ~ AnonymousWhat are these for you?
A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients
05/30/25 at 03:00 AMA ‘cloak of comfort’: an integrated approach to palliative care for cancer patients Sinai Health; 5/26/25 At Mount Sinai Hospital, palliative care is fully integrated into cancer care, providing comprehensive, person-centered support for those with advanced illness. Palliative care, derived from the Latin pallium meaning “cloak,” offers comfort and support to individuals with serious illnesses. Often misunderstood as solely end-of-life care, it actually provides relief at any stage of a life-threatening illness and can be provided in tandem with cancer treatment. This holistic approach addresses physical, emotional, and spiritual needs, aiming to improve quality of life for both patients and their families. In fact, early integration of palliative care can enhance symptom management, extend life and offer greater support to caregivers. Patients can receive care at Mount Sinai Hospital’s Cancer Care Clinic, at home through the Temmy Latner Centre’s home palliative care program, and in the palliative care unit at Hennick Bridgepoint Hospital.
Empath Health to sell service center location
05/30/25 at 03:00 AMEmpath Health to sell service center location Hospice News; by Jim Parker; 5/29/25 The Florida-based senior care provider Empath Health is selling one of its administrative service centers, located in Pinellas County in its home state. The center was initially established by Suncoast Hospice, which is now an Empath Health affiliate. The sale is part of Empath’s effort to “realign its physical footprint” to invent more directly in home-based, patient-centered care, according to a statement from the organization. “Selling an underutilized administrative building allows us to reinvest in the people, programs and technology that bring comfort, dignity, and support into homes and communities,” said Jonathan Fleece, president and CEO of Empath Health, in the statement. “It’s a return to our roots and a recommitment to the future.”
[Canada] Strengthening hospice care through strategic partnerships
05/30/25 at 03:00 AM[Canada] Strengthening hospice care through strategic partnerships Investors Hangout; by Addison Perry; 5/29/25 HealthPRO Canada is making waves in the healthcare sector with an important new collaboration that promises to enhance the quality of care provided by hospices in Ontario. The strategic partnership with Hospice Palliative Care Ontario (HPCO) seeks to benefit over 140 hospice programs across the region by leveraging HealthPRO’s extensive buying power. This initiative is set to bolster operational efficiency and support hospices in delivering high-quality services to families in need.Editor's note: Trends continue.
MLN Fact Sheet: Creating an effective hospice Plan of Care
05/30/25 at 03:00 AMMLN Fact Sheet: Creating an efffective Hospice Plan of CareCenters for Medicare & Medicaid Services, Medicare Learning Network (MLN); 5/10/25 The hospice plan of care (POC) maps out needs and services given to a Medicare patient facing a terminal illness, as well as the patient’s family or caregiver. CMS data shows that some hospice POCs are incomplete or not followed correctly. This fact sheet educates on creating and coordinating successful hospice POCs. The primary goal of hospice care is to meet the holistic needs of an individual and their caregiver and family when curative care is no longer an option. To support this goal:
Capito sees earmark results in hospice renovations
05/30/25 at 03:00 AMCapito sees earmark results in hospice renovations CBS 13 WOWK, Charleston, WV; by Sarah Davis; 5/28/25 U.S. Senator Shelley Moore Capito (R-WV) visited the Hubbard Hospice House in Charleston Wednesday to see her congressionally directed spending in action. The senator got an exclusive tour of the renovations being made, including a new roof, HVAC system and a fresh paving job on the facility’s parking lot. The construction project is supported by Capito’s 2024 congressional directed spending, also known as an earmark, which she said is a necessary investment for the welfare of West Virginians.
Providers, advocates ask Senate to reject $700M in Medicaid cuts, Congress to save OAA programs
05/30/25 at 03:00 AMProviders, advocates ask Senate to reject $700M in Medicaid cuts, Congress to save OAA programs McKnights Senior Living; by Kathleen Steele Gaivin; 5/27/25Providers and advocates for older adults are counting on the Senate to reject a portion of the proposed federal budget that would gut $700 million from the Medicaid program. Members of the House of Representatives passed their version of the bill late Wednesday. ... Home care advocates ANCOR and the National Alliance for Care at Home on Thursday also called on the Senate to reject the House-passed cuts to Medicaid.
Empathy meets efficiency: Voice AI in law, healthcare and debt collection
05/30/25 at 03:00 AMEmpathy meets efficiency: Voice AI in law, healthcare and debt collection Forbes; by Kumar Abhirup; 5/29/25 When a grieving daughter calls a probate firm at midnight or a worried parent rings a pediatric clinic after hours, the first voice they meet decides whether they stay or stray. As organizations adopt AI, especially voice and conversational AI, that voice is increasingly synthetic. A recent survey from the American Bar Association found that the share of firms using AI tools rose from 11% in 2023 to 30% in early 2025. Healthcare has sprinted even faster: The American Medical Association found 66% of physicians now use some form of AI, up from 37% two years earlier. Collections agencies are also hopping aboard this trend ...
A student film explores an end-of-life story: How Jingyi Li created the documentary that swept the Redstone Film Festival
05/30/25 at 03:00 AMA student film explores an end-of-life story: How Jingyi Li created the documentary that swept the Redstone Film Festival Boston University, College of Communication, Boston, MA; by Mike De Socio; 5/27/25 When Jingyi Li set out to create a documentary about healthcare for elders, she struggled to find a family willing to sit in front of her camera. Li (’25) was inspired by the power of filmmaking to create social impacts, and wanted to explore hospice care in Chinese culture. The interest stemmed from Li’s experience interning at a local hospice care center in Yunnan Province, China, where she witnessed the complexities and cultural sensitivities involved in providing care for terminally ill patients within Chinese families. With the help of a hospice and palliative care service in Boston, Li started reaching out to Chinese families about filming the end-of-life process, but many rejected her request. ... She eventually found a “brave family” whose roots in the US date back to the mid-20th century. Li says the family’s “mix of Chinese and Western culture” made them more amenable to being filmed. ... The resulting short documentary, named Pópo for the elder at its center, went on to win a bevy of awards at this year’s Redstone Film Festival, including best film and best documentary.