Literature Review
Palliative care for Alzheimer’s: what families should understand
08/30/26 at 03:10 AMPalliative care for Alzheimer’s: what families should understand WNY News Now; by News Staff; 8/19/26 Alzheimer’s disease gradually affects memory, judgment, communication, mobility, and personal care. As abilities change, families face decisions about symptom relief, treatment limits, safety, and emotional well-being. Palliative care addresses those needs while respecting the person’s values and previously expressed wishes. Assistance can begin at any stage of disease, especially when discomfort, behavioral changes, or caregiver strain become difficult to manage without clinical guidance. What details should families check for? ...
Dying man’s final wish comes true as his beloved dogs find a forever home together
08/30/26 at 03:05 AMDying man’s final wish comes true as his beloved dogs find a forever home together Greater Good; by Guest Contributor; 8/25/26 A man in New York spent his final weeks with one hope on his mind: that his beloved German shepherds would find a new forever home. His story, and the story of his dogs Bowie and Nikki, has moved thousands of people who care deeply about pet adoption and the special bond between humans and animals. At its core, this is a story about love, planning for pets when life changes, and the quiet heroism of animal rescues that step in when families are in crisis. ... One of the most moving moments in this story came when Mr. Spencer asked for something that many pet guardians nearing the end of life quietly hope for. He wanted to say goodbye.
If you are always waiting...
08/30/26 at 03:00 AMIf you are always waiting until you have enough money, enough time, enough confidence and enough support... You may wait forever. Start with what you have.
SOS: What does Google and ChatGPT say about SSVI and quality?
08/30/26 at 03:00 AMSOS: What does Google and ChatGPT say about SSVI and quality?Substack; by Joan Teno; 8/26Medicare recently finalized a new hospice scorecard called the Service and Spending Variation Index (SSVI). It gives each Medicare-certified hospice a number from 0 to 16, built from nine billing-based measures, where a higher score flags a hospice whose spending and service patterns look unusual compared with its peers. A high score is not proof of bad care or fraud — it mainly signals to Medicare which hospices may be worth a closer look. In this post I asked Google Gemini and ChatGPT to interpret a sample hospice’s score, and I compare how well each explained what the number does, and does not, mean for a family choosing a hospice.Publisher's note: Even though Substack is a blog site rather than a journal, Joan's content is outstanding and also fits here in a Saturday research issue!
Sunday newsletters
08/30/26 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Concurrent palliative care and systemic treatment among young adults with advanced cancer
08/29/26 at 03:40 AMWhen less is more: Palliative decision-making in a bedbound patient with advanced illness and bilateral pleural effusions
08/29/26 at 03:35 AMAcupuncture vs massage for insomnia and pain in advanced cancer: Exploratory RCT
08/29/26 at 03:30 AMInsurance type and quality of end-of-life care in adults < 65 years with hematologic malignancies
08/29/26 at 03:25 AMMedicaid expansion and mortality among formerly incarcerated individuals
08/29/26 at 03:20 AMAdvanced care planning/Five wishes education through the lens of Caring Science
08/29/26 at 03:15 AMHow dementia is being defeated: Incidence among the elderly is falling fast
08/29/26 at 03:10 AMHow dementia is being defeated: Incidence among the elderly is falling fastThe Economist; 7/26When Eric Stallard, an actuary and academic, began looking into the incidence of dementia among elderly Americans, he was so stunned by his findings that he held off publishing his first paper on the subject for two and ahalf years while he double-checked his work... Instead of confirming the received wisdom that America faced an intensifying plague of the condition, they showed that the proportion of old people succumbing to it was in fact shrinking fast... Last year he and some colleagues published research in the Journal of the American Medical Association showing that, whereas 40 years ago three in every ten Americans aged 85-89 had dementia, by 2024 just one in ten had it.
Can I get a witness? The ethical dimensions of family presence in patient suffering
08/29/26 at 03:05 AMCan I get a witness? The ethical dimensions of family presence in patient sufferingThe Hastings Center Report: by Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, Adam Omelianchuk, Joanna Smolenski; July-August 2026For patients who are suffering, the bedside presence of a family member can provide comfort, and many people hold that there is moral value in being present with a conscious, suffering patient. Yet what is the moral significance of the absence of family members when a patient is minimally conscious or unconscious and not aware of their absence? Clinicians are often troubled when family members and surrogate decision-makers who are able to spend a significant amount of time at an unconscious, seriously ill patient's bedside do not do so. Clinicians feel frustrated that they must bear the burden of witnessing the patient's actual or perceived suffering while the family escapes this burden and therefore appears to fail to uphold a duty to the patient. Is it morally defensible to request or require family members to be present with an unresponsive patient to bear witness to their actual or perceived suffering?
[Indonesia] Mindfulness-based spiritual interventions for patients with advanced cancer receiving palliative care: A systematic review of randomized controlled trials
08/29/26 at 03:05 AMDo not take life too seriously...
08/29/26 at 03:00 AMDo not take life too seriously. You will never get out of it alive. ~Elbert Hubbard
Saturday newsletters
08/29/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[UK] Clinical effectiveness of internet-delivered self-help Aacceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS): A multicentre, parallel, randomised controlled trial
08/29/26 at 03:00 AMAn exploration of gratitude on well-being in hospice and palliative care familial caregivers
08/29/26 at 03:00 AMAn exploration of gratitude on well-being in hospice and palliative care familial caregiversJournal of Palliative Medicine; by Kathryn Levy, Pei C Grant, Hannah Rachiele, Gina Schuster, Jonathan L Rossi, Sheila Conboy, Andrew Gasper, Christopher W Kerr; 7/26Familial caregivers (FCGs) play a critical role in health care by providing unpaid care to loved ones with serious illness. Although caregiving is often associated with emotional and physical burden, increasing attention has been directed toward potential sources of meaning and psychological growth, including gratitude. Higher levels of gratitude were associated with greater flourishing and recognition of positive caregiving experiences and were inversely associated with caregiver strain among FCGs of hospice and palliative care patients. Future longitudinal and intervention-based research is needed to determine whether gratitude-focused approaches can improve resilience, psychological well-being, and relational connection in end-of-life caregiving.
‘More than just a building:’ As Duke sells historic bereavement center, a town grapples with grief
08/28/26 at 03:30 AM‘More than just a building:’ As Duke sells historic bereavement center, a town grapples with grief Duke Chronicle; by Dylan Halper; 8/26/26 When Maria Peluso’s father died in April 2014, her family directed all donations to one place: a memorial brick, to be laid in his honor on a pathway near the Duke Hospice Unicorn Bereavement Center in Hillsborough, North Carolina. ... Over the ensuing years, the brick became a place of solace and learning for Peluso’s family. Before she died, Peluso’s mother often visited the site, and Peluso [a former Duke University Health System nurse and recipient of this center's bereavement counseling] said she brings her children and grandchildren — who never met her father — to the brick to teach them about his legacy. Underneath her father’s name and lifespan, the brick reads, “I will love you longer than forever.” But while the love of Peluso’s family will endure, the brick itself will be torn up as part of a redevelopment of the property encompassing the former Unicorn Bereavement Center and Duke Hospice at the Meadowlands.
Avow expands the future of health care in Southwest Florida with property acquisition in Lee County
08/28/26 at 03:15 AMAvow expands the future of health care in Southwest Florida with property acquisition in Lee County PRLOG Press, Naples, FL; by Avow; 8/26/26 Avow is pleased to announce the acquisition of property at 14590 Hope Center Loop in Hope Preserve, Fort Myers, representing an important step in the organization's continued expansion of services for patients and families throughout Southwest Florida. With a 44-year history of providing compassionate, not-for-profit care, Avow is expanding its presence in Lee County to make high-quality hospice, palliative care, home health, and grief and loss support more accessible to the growing community. The Hope Preserve property will provide a future home for an approximately 40,000-square-foot Avow facility designed first and foremost to serve patients, families, children, and adults throughout the region.
Camp gives local students a hands-on look at careers in health care
08/28/26 at 03:00 AMCamp gives local students a hands-on look at careers in health care MaineHealth, North Conway, NH; Press Release; 8/25/26More than 20 local middle and high school students spent a week this summer discovering that there is much more to health care than what happens in a hospital room. MaineHealth Memorial Hospital’s annual Health Camp offered in partnership with MWV School to Career Summer Program gave students an opportunity to explore a wide range of health care careers through hands-on activities, demonstrations, games and behind-the-scenes experiences throughout the hospital. Throughout the week, campers rotated through hospital departments and interactive activities, getting a firsthand look at the many skills, roles and professions that contribute to patient care.
Ready, Fire, Aim: The CY 2027 Home Health Proposed Rule's shoot-first approach to provider enrollment
08/28/26 at 03:00 AMReady, Fire, Aim: The CY 2027 Home Health Proposed Rule's shoot-first approach to provider enrollment Husch Blackwell | Hospice Insights; by Bryan Nowicki and Andrew Brenton; 8/26/26 CMS’s CY 2027 Home Health Proposed Rule tucks a sweeping set of Medicare provider enrollment changes inside what is nominally a routine payment rule, expanding the grounds on which CMS can deny or revoke a provider’s enrollment. In this episode, Husch Blackwell’s Bryan Nowicki and Andrew Brenton unpack several of the rule’s most consequential proposals, including new denial and revocation grounds and retroactive revocation effective dates. They also discuss why home health agencies and hospices should be paying close attention as the rule moves toward finalization.
DOJ prioritizes hospice, home health fraud enforcement
08/28/26 at 03:00 AMDOJ prioritizes hospice, home health fraud enforcement Hospice News; by MK Manoylov; 8/26/26 The U.S. Department of Justice (DOJ) Fraud Division has designated home health and hospice as among its top enforcement priorities. The agency plans to use innovative data analysis to target fraud schemes in these industries, according to a Thursday memorandum. The agency plans to further crack down on healthcare fraud by increasing the headcount of its Health Care Fraud Strike Force model to about 500 attorneys and staff by Aug. 24.
California and the federal government battle over hospice fraud, as victims lose coverage and care
08/28/26 at 03:00 AMCalifornia and the federal government battle over hospice fraud, as victims lose coverage and care Regional Media News, Los Angeles, CA; by wrnnews.com; 8/26/26At 71 and a few years into retirement, Linda Henry felt like she was in good health, and only went to her doctor in Southern California for the occasional checkup. So it was a shock when she found out in 2024 that she had been enrolled in hospice, a specialized end-of-life care usually provided to people with six months or less to live. A Medicare worker told her the system said she had heart failure. Henry was a victim of rampant fraud in the hospice industry, a problem that’s been especially extreme in California, ... Henry believes her Medicare number was stolen after a healthcare payment portal that services insurances was hit by a cyberattack. She found out about her hospice enrollment in September 2024 after her doctor billed Medicare for an allergy test and was denied. Soon, other claims were being returned unpaid.
What health system CEOs fear most about AI
08/28/26 at 03:00 AMWhat health system CEOs fear most about AI Becker's Health IT; by Laura Dyrda; 8/26/26 The list of what artificial intelligence promises to fix in healthcare is long: administrative burden, diagnostic accuracy, care coordination, staffing shortages. But the things it could break, according to executives at major health systems, deserves equal attention. When asked to name the most dangerous trend in healthcare today, leaders from systems including Baystate Health, Banner Health and Cincinnati Children’s Hospital pointed to AI — not as a technology to reject, but as a force whose adoption is outpacing the governance, human investment and cultural change required to make it work safely. Their concerns gather around three themes:
