Literature Review



Hospice family caregivers’ preparedness to provide care during the death vigil

08/22/26 at 03:05 AM

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One must pay dearly for immortality...

08/22/26 at 03:00 AM

One must pay dearly for immortality; one has to die several times while still alive.  ~Friedrich Nietzsche

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SOS: What does Google and ChatGPT say about SSVI and quality?

08/22/26 at 03:00 AM

SOS: What does Google and ChatGPT say about SSVI and quality?Substack; by Joan Teno; 8/26Medicare recently finalized a new hospice scorecard called the Service and Spending Variation Index (SSVI). It gives each Medicare-certified hospice a number from 0 to 16, built from nine billing-based measures, where a higher score flags a hospice whose spending and service patterns look unusual compared with its peers. A high score is not proof of bad care or fraud — it mainly signals to Medicare which hospices may be worth a closer look. In this post I asked Google Gemini and ChatGPT to interpret a sample hospice’s score, and I compare how well each explained what the number does, and does not, mean for a family choosing a hospice.Publisher's note: Even though Substack is a blog site rather than a journal, Joan's content is outstanding and also fits here on a Saturday research issue!

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Saturday newsletters

08/22/26 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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[UK] The multidimensional impact of malnutrition in incurable cancer

08/22/26 at 03:00 AM

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Nurses, consider these documentaries

08/21/26 at 03:00 AM

Nurses, consider these documentaries Healthcare NOW Radio; by Zelda Meeker; 8/5/26 Tired of scrolling to find something to watch? We’ve got a list of excellent healthcare-related documentaries that will grab and keep your attention. Healthcare documentaries offer a window into the complexities of this world and show the daily struggles and triumphs of nurses, patients, and other healthcare providers. Over the past few years, several films have stood out for addressing critical and often controversial healthcare topics and offering insight into the realities of the healthcare system. Below are 12 such documentaries impossible for any nurse to ignore — films that are sure to stir emotions and provide perspectives on your career. ...

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People who never do any more than they get paid for, ...

08/21/26 at 03:00 AM

People who never do any more than they get paid for, never get paid for any more than they do. ~ Elbert Hubbard

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The new health system CEO job description, per 23 leaders

08/21/26 at 03:00 AM

The new health system CEO job description, per 23 leaders Becker's Hospital Review; by Alan Condon, Kelly Gooch, and Kristin Kuchno; 8/20/26 The health system CEO job description is getting longer, and increasingly filled with responsibilities that barely registered five years ago. Today’s CEOs are expected to steer AI strategy, prepare for cyberattacks, shape culture, advocate in statehouses and on Capitol Hill, protect employees from workplace violence, address affordability and serve as trusted voices in their communities. That shift is playing out at some of the nation’s largest and most prominent health systems. 

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READOUT: FinCEN holds engagement to eliminate hospice fraud in California

08/21/26 at 03:00 AM

READOUT: FinCEN holds engagement to eliminate hospice fraud in CaliforniaU.S. Treasure Financial Crimes Enforcement Network, Los Angeles, CA; 8/19/26 On August 17, the U.S. Department of the Treasury’s Financial Crimes Enforcement Network (FinCEN) convened law enforcement and financial institutions for an engagement on health care benefits fraud, including the exploitation of hospice care services. Participants discussed new and emerging health care fraud schemes targeting federal and state health insurance programs, associated financial typologies and red flag indicators, and opportunities to boost awareness around hospice care fraud. Additionally, FinCEN held a training session for law enforcement on August 18 on how to use Bank Secrecy Act data to combat fraud. These engagements build on FinCEN’s work to counter fraud in partnership with the White House Task Force to Eliminate Fraud. 

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Hospice of Orange & Sullivan Counties’ 19th Annual Golf Classic raises almost $75,000 for patient care

08/21/26 at 03:00 AM

Hospice of Orange & Sullivan Counties’ 19th Annual Golf Classic raises almost $75,000 for patient care FocusMedia, Newburgh, NY; Press Release; 8/19/26 Hospice of Orange & Sullivan Counties held its 19th Annual Golf Classic at Osiris Country Club in Walden, N.Y., on Aug. 10, drawing a sold-out field of 100 golfers for the organization’s best golf fundraising event in recent years. The tournament raised close to $75,000 to support Hospice services throughout Orange and Sullivan Counties. ... “Today’s outing is about more than just golf,” Eric Gastik, President and CEO of Hospice of Orange & Sullivan Counties, told the golfers, sponsors and other attendees. “It’s about coming together as a community to support patients and families during one of the most difficult times in their lives. Every golfer, every sponsor, every raffle ticket purchased and every volunteer contributes to that mission."

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Executive Personnel Changes - 8/21/26

08/21/26 at 03:00 AM

Executive Personnel Changes - 8/21/26

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How Andrew Bird wrote Louie’s farewell ballad for ‘The Pitt’: ‘What’s more fundamental than the fear of dying alone?’

08/21/26 at 03:00 AM

How Andrew Bird wrote Louie’s farewell ballad for ‘The Pitt’: ‘What’s more fundamental than the fear of dying alone?’ Gold Derby; by Lyndsey Parker; 8/19/26... Andrew Bird wasn't even familiar with The Pitt when he was cold-called by the show's composer, Gavin Brivik, with an invitation to collaborate on a song for one of the series' most heartbreaking and gut-punching moments. [It was for] that scene, ... in which fan-favorite character Louie Cloverfield, the lovable alcoholic with a heart of gold, dies with only the Pittsburgh Trauma Medical Center staff by his side — the lyrics for "Need Someone" came quickly. There's a small but especially tearjerking detail when Emma grabs Louie's hand, right as Dr. Robby is telling them about how Louie had lost his eight-months-pregnant wife and their unborn child in a car accident years ago. Apparently hospitals leave a deceased patient's hand out from under the blanket so that a loved one at the bedside can hold it, but Louie only has the hospital staff, who've sort of become his honorary family, with him when dies. This goes perfectly with your lyric about how "you need someone who is gonna cry for you." ... Bird was partially inspired by the 2020 pandemic — not just society's shared post-COVID trauma, but the lack of appreciation of healthcare workers ...

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Palliative care for Alzheimer’s: what families should understand

08/21/26 at 03:00 AM

Palliative care for Alzheimer’s: what families should understand WNY News Now; by News Staff; 8/19/26 Alzheimer’s disease gradually affects memory, judgment, communication, mobility, and personal care. As abilities change, families face decisions about symptom relief, treatment limits, safety, and emotional well-being. Palliative care addresses those needs while respecting the person’s values and previously expressed wishes. Assistance can begin at any stage of disease, especially when discomfort, behavioral changes, or caregiver strain become difficult to manage without clinical guidance. What details should families check for? ...

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In a recent study, most oncologists chose not to assist patients in dying

08/21/26 at 03:00 AM

In a recent study, most oncologists chose not to assist patients in dying Cancer Therapy Advisor; by Jason L. Harris; 8/19/26 Most oncologists asked to consult with a terminally ill patient seeking medical aid in dying (MAID) choose to opt out, according to research published in JAMA Network Open. In a California-based study, researchers found high rates of oncologists opting out, forcing many patients to pursue MAID with physicians they did not know. Further, a small number of physicians were responsible for most MAID-related prescriptions. “Our dataset likely underestimates these challenges, as it only includes patients who successfully found an attending physician and does not capture instances when opt-out was not documented,” the researchers added.

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Getting accurate AI insights securely with a certified HIPAA data access layer

08/21/26 at 03:00 AM

Getting accurate AI insights securely with a certified HIPAA data access layer CDATA; by Mohammed Mohsin Turki; 8/18/26 If your organization creates, receives, maintains, or transmits protected health information (PHI), it inherits HIPAA’s compliance obligations. That’s true the moment PHI flows to an AI system or agent instead of the staff who used to handle it, whether that AI is a pilot, a proof of concept, or a model that’s “just reading” records. Most healthcare AI projects stall at the same point. The data still lives in systems that were never built with AI access in mind. A HIPAA-compliant AI data access layer fixes that before the model ever sees ePHI. This blog covers how to choose a HIPAA-compliant AI data access layer that keeps insights accurate, plus the new risks AI adds that older security programs miss. 

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NPHI enters new phase of high growth as national community continues to expand

08/21/26 at 03:00 AM

NPHI enters new phase of high growth as national community continues to expand National Partnership for Healthcare and Hospice Innovation (NPHI), Washington, DC; Press Release; 8/18/26 The National Partnership for Healthcare and Hospice Innovation (NPHI) is experiencing a period of significant growth, welcoming a growing number of mission-driven, community-based organizations from across the country since its 2026 Summit. ... This continued expansion brings new expertise, perspectives and community connections into NPHI’s national network, strengthening a community united by a commitment to high-quality, compassionate, people-first care. ... In recent weeks, NPHI has welcomed:

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Clarence Braddock on the future of medical education

08/21/26 at 02:00 AM

Clarence Braddock on the future of medical education Stanford Medicine; by Communications Staff; 8/16/26 Clarence Braddock discusses reinventing medical training: simulation, less rote memorization as AI brings info to bedside, shared decision-making, and why the process of curriculum change can matter more than the change itself. Clarence Braddock, MD, MPH, a nationally recognized medical educator and former Executive Vice Dean and Vice Dean for Education in the David Geffen School of Medicine at UCLA, joins Euan Ashley on The Future of Medicine to explore how we train future doctors, why changing long-established systems can be so difficult, and what leaders often misunderstand about creating meaningful change.

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Hospice Wage Index, the Final Rule, and the signals CMS is sending | part one

08/20/26 at 03:00 AM

Hospice Wage Index, the Final Rule, and the signals CMS is sending | part one Teleios Collaborative Network (TCN); pocast hosted by Chris Comeaux with Annette Kiser and Judi Lund Person The 2027 Hospice Final Rule is more than a reimbursement update—it’s a window into where Centers for Medicare & Medicaid Services (CMS) believes hospice care needs to go next. In Part One, host Chris Comeaux sits down with hospice regulatory experts Annette Kiser and Judi Lund Person to look beyond the numbers and “read the tea leaves” in CMS’s latest rule.  They unpack what hospice leaders need to understand about the Hospice Election Statement Addendum, the growing scrutiny of unrelated services and non-hospice Medicare spending, telehealth reporting, and the Service and Spending Variation Index (SSVI).  As Judi explains, CMS’s commentary and responses to industry feedback can reveal as much about the agency’s direction as the regulations themselves.

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Gratitude can transform common days into thanksgivings, turn routine jobs into joy, and change ...

08/20/26 at 03:00 AM

Gratitude can transform common days into thanksgivings, turn routine jobs into joy, and change ordinary opportunities into blessings. ~ William Arthur Ward

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What end-of-life experts know about living well: love your wrinkles, celebrate birthdays and don’t obsess over work

08/20/26 at 03:00 AM

What end-of-life experts know about living well: love your wrinkles, celebrate birthdays and don’t obsess over work The Guardian; by Sarah Phillips; 8/13/26 We will all face death one day, but our attitude towards this is individual. How can our understanding of mortality shape our approach to life? Here, palliative care doctors and death doulas share what they know about the end – and how it informs the way they live. Prioritize people, not things Dr. Rachel Clarke is a palliative care doctor who works at an NHS hospital in Oxfordshire [England] and is the author of several books, including The Story of a Heart. “I have learned what matters to my patients as they approach the end of their life,” says Clarke. “All the irrelevant stuff is stripped away. No one cares about how much power they had, how big their house is, how fancy their car is, how much status they had at work. What they care about is the people they love.” In short: “The way to live a life that is rich and deeply fulfilling is to build human connections. That matters more than anything else.”

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‘Light Up a Life’: Rice County approves courthouse trees for Faribault Area Hospice initiative

08/20/26 at 03:00 AM

‘Light Up a Life’: Rice County approves courthouse trees for Faribault Area Hospice initiative LeSeur County News, Faribault. MN; by Lauren Viska; 8/19/26 For 40 years, Faribault Area Hospice has turned the glow of hundreds of white lights into a celebration of lives well lived. Each light on its traditional “Light Up a Life” tree represents a person remembered, honored and celebrated by those who loved them. Since 1985, Faribault Area Hospice has placed thousands of white lights on a memory tree, with individuals sponsoring a light in memory of someone special. Proceeds from the lights go directly toward helping hospice patients in the Faribault area who are experiencing financial hardship. ... Now, after more than four decades of the tradition, Hospice is looking to bring that familiar glow to a new set of evergreens.

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Honoring my daughter's final wishes

08/20/26 at 03:00 AM

Honoring my daughter's final wishes Substack; by Larry Lehmer; 8/7/26 I own one pink shirt. I wear it once a year, on Feb. 28, my daughter’s birthday. It’s mostly her idea. “Please wear more pink!” she wrote for her husband, Paul, to read at her celebration of life. “To the men — you can pull it off.” It’s been three years since Paul had to deliver Meghan’s final words, at the Des Moines Botanical Garden, the same place where they began their married life 13 years earlier. “I once read ‘Love doesn’t die, people do’,” Meghan wrote. “So when love is all that’s left of me, give me away.” Meghan died on Aug. 8, 2023. It still hurts, of course, but we continue to celebrate her life, her devotion to family and try to honor her dying wish “that we all help each other a little more.” Here’s what I wrote about her in August 2023: ...

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Nearly one in five Medicare hospice patients now leaves the program alive rather than through death

08/20/26 at 03:00 AM

Nearly one in five Medicare hospice patients now leaves the program alive rather than through death Medical Daily; by Dorothy Brooks; 8/17/26 Almost one in five people who leave Medicare hospice care each year leaves alive rather than through death, and the share has climbed every year since 2021. Federal data released this spring put the live discharge rate at 19.1 percent in fiscal year 2025, up from 16.9 percent four years earlier. For families, this is the rule almost nobody explains at enrollment. Hospice is not a permanent placement. It is a benefit tied to a prognosis, and when that prognosis changes, the benefit can end while the patient is still living, still ill, and still needing care. Understanding it before it happens is the difference between a planned transition and a phone call that lands like an eviction.

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New York's Medical Aid in Dying Act takes effect: what clients and providers need to know

08/20/26 at 03:00 AM

New York's Medical Aid in Dying Act takes effect: what clients and providers need to know JDSupra; by Dana Walsh Sivak; 8/18/26 ... Provider Obligations and Protections

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Compassus CMO: deliver on the hospice promise

08/20/26 at 03:00 AM

Compassus CMO: deliver on the hospice promise Hospice News; by Jim Parker; 8/18/26 A patient’s journey towards hospice often begins with a goals-of-care conversation, but those discussions must be timely and effective to truly guide the services a person receives at the end of life. Hospice News spoke with Dr. Kurt Merkelz, M.D., FAAHPM, chief medical officer for Compassus, about the value of these conversations, when they should happen and how clinicians should conduct them. Compassus, one of the nation’s largest hospice providers, is a portfolio company of the private equity firm Towerbrook Capital Partners and the health system Ascension Health.

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