Literature Review



Niagara Hospice to offer free community presentation for National Healthcare Decisions Day

04/06/25 at 02:40 AM

Niagara Hospice to offer free community presentation for National Healthcare Decisions Day Niagara Frontier Publications; Press Release; 3/28/25 April 16 is National Healthcare Decisions Day, which is a day set aside to educate and empower individuals to discuss and document their end-of-life health care wishes. Niagara Hospice invites the community to attend the free presentation, “Advance Care Planning: Advance Directives for Health Care,” ... Advance care planning includes advance directives like health care proxies, do not resuscitate (DNR) orders, and living wills. Advance directives help to ensure end-of-life care wishes are followed if one is unable to make necessary decisions for themselves. [Continue reading ...]Editor's note: For more information about National Healthcare Decisions Day (NHDD), explor The Conversation Project, at the Institute for Healthcare Improvement. Is your hospice providing a 2025 National Healthcare Decisions Day event? Email me a URL link to your local news coverage, press release, or your website's specific page. We will compile a list of participating organizations (with URL links) to highlight Advance Care Planning outreach, education, and implementation across the nation.

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Four security updates to get ahead of proposed 2025 HIPAA Amendments

04/06/25 at 02:30 AM

Four security updates to get ahead of proposed 2025 HIPAA Amendment Cisco Duo; by Katherine Yang; 3/31/25 Published in early January, the 2025 HIPAA Security Amendments are set to significantly enhance the protection of ePHI. The proposed changes are based off the US Department of Health and Human Services’ (HHS) goals of both addressing changes in the health care environment and clarifying what compliance obligations look like for regulated entities. Organizations have 180 days to reach compliance according to stricter standards of identity cybersecurity if the proposed updates pass. In order to be prepared, here are four things your organization or managed security service provider should focus on:  

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Transforming healthcare: Hospice in the news, March 2025

04/06/25 at 02:20 AM

Transforming healthcare: Hospice in the news, March 2025  Teleios Collaborative Network (TCN); pod/videocast by Chris Comeaux with Cordt Kassner; 4/2/25 In this episode of TCNtalks, Chris Comeaux and Dr. Cordt Kassner, Publisher of Hospice & Palliative Care Today and CEO and Founder of Hospice Analytics, leverage their data and extensive experience to identify key Hospice headlines, articles, research, and social media posts that are driving change and transforming end-of-life care and healthcare in America. They share personal experiences with hospice care, emphasizing the importance of social work and discussing the challenges of healthcare reimbursement.  The conversation also touches on MedPAC recommendations, new social media trends, and highlights from recent research articles. 

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Palliative care in home health: Misconceptions and market opportunities

04/06/25 at 02:10 AM

Palliative care in home health: Misconceptions and market opportunities Home Health Care News; by Joyce Famakinwa; 3/28/25 While palliative care remains an uncommon offering among home-based health care providers, forward-thinking providers have recognized a growing market demand and are strategically expanding their service offerings to include palliative care solutions. Expanding service lines to include palliative care can help home-based care providers stand out from their peers, industry insiders told Home Health Care News. However, a significant knowledge gap is slowing the adoption of palliative care within the home health community. Home health care clinicians, patients and caregivers all report insufficient knowledge of palliative care, according to a recent study conducted by Columbia Nursing research and published in the Journal Home Healthcare Now.  [Continue reading ...]

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'Unsung backbone of care delivery': The growing need for hospice aides

04/06/25 at 02:00 AM

‘Unsung backbone of care delivery’: The growing need for hospice aides Hospice News; by Jim Parker; 3/28/25 As workforce shortages persist in health care, some operators are struggling to recruit and retain essential members of their care teams — hospice aides. The demand for hospice aides is expected to grow in the coming years. However, factors such as turnover, retirement, slow wage growth and immigration policy could complicate hospice’s ability to fill those positions. Many companies are focused on bolstering their nursing workforce, who are also in high demand, but providers also need to prioritize hiring a sufficient number of aides, according to Cooper Linton, associate vice president of Duke HomeCare & Hospice. [Continue reading ...] 

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Social Media Watch 3/28/25

04/06/25 at 01:50 AM

Social Media Watch 3/28/25 

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What to know about palliative and hospice care

04/06/25 at 01:40 AM

What to know about palliative and hospice care Association of Health Care Journalists (AHCJ); by Liz Seegert; 3/28/25 ... [Palliative care] is fundamental to health and human dignity and is a basic human right, according to the FXB Center for Health and Human Rights at Harvard.  When reporting on serious illnesses, journalists can help demystify palliative care and encourage more people in need to take advantage of it by clearly explaining the differences, and benefits, and incorporating anecdotes to further illustrate how these types of care make a difference in the lives of patients and their families. [Continue reading ...] Editor's note: Share this article--written for health care journalists--with your communications and marketing leadership, with your community newspapers' journalists, and your employee/volunteer educators. Too often, new hospice/palliative care employees at all levels of roles and responsibilities begin their roles without clear knowledge, comprehension, and application of distinctions between standard healthcare, palliative care, and hospice care. And for new employees (especially non-clinical leaders), information must be applied to that person's specific role and responsibilities. 

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Long-overdue recognition: Vietnam veterans welcomed home at emotional ceremony

04/06/25 at 01:30 AM

Long-overdue recognition: Vietnam veterans welcomed home at emotional ceremony Grice Connect; by DeWayne Grice; 3/29/25 A poignant and heartfelt welcome home ceremony was held at Ogeechee Area Hospice, honoring Vietnam veterans from the surrounding communities. The event, filled with emotional tributes and personal stories, aimed to provide long-overdue recognition for the sacrifices made by these veterans. The ceremony, organized by Ogeechee Hospice, the American Legion Post 90, and Georgia Department of Veteran Affairs, brought together veterans, their families, and community members. The atmosphere was one of gratitude and respect, as attendees acknowledged the often-overlooked service of those who served during a tumultuous period in American history. [Continue reading ...]Editor's note: We add this to previous posts, Today is the National Vietnam War Veterans Day, honoring 50 years since the war's end.

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Today is the National Vietnam War Veterans Day, honoring 50 years since the war's end

04/06/25 at 01:20 AM

Today is the National Vietnam War Veterans Day, honoring 50 years since the war's end U.S. Department of Veterans Affairs - The United States of America Vietnam War Commemoration Join us on 29 March, National Vietnam War Veterans Day, as Americans unite to thank and honor Vietnam veterans and their families for their service and sacrifice. ... The United States of America Vietnam War Commemoration honors all veterans who served on active duty in the U.S. Armed Forces at any time from November 1, 1955 to May 15, 1975, regardless of location, and their families. Editor's note: Several hospice "We Honor Veterans" programs have been using this commemoration to thank their community's Vietnam veterans, especially in light of differences between their returns home from those of WWII veterans. Within your networks of colleagues, friends and families, whom can you informally honor, today?

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Executive Personnel Changes - 3/28/25

04/06/25 at 01:10 AM

Executive Personnel Changes - 3/28/25

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Executive Personnel Changes - 4/4/25

04/06/25 at 01:00 AM

Executive Personnel Changes - 4/4/25 Count

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"Are they just experimenting with all of us?" Cultural considerations for clinicians caring for seriously ill Great Plains American Indians

04/05/25 at 03:35 AM

"Are they just experimenting with all of us?" Cultural considerations for clinicians caring for seriously ill Great Plains American IndiansAmerican Journal of Hospice and Palliative Care; Bethany-Rose Daubman, Tinka Duran, Gina Johnson, Alexander Soltoff, Sara J Purvis, Leroy J R LaPlante, Sean Jackson, Daniel Petereit, Matthew Tobey, Katrina Armstrong, Mary J Isaacson; 3/25Serious illnesses like cancer disproportionately affect American Indians and Alaska Native (AI/AN) Peoples. AI/AN patients deserve culturally responsive healthcare at all times, and especially when journeying through serious illness. Interviews and talking circle qualitative analysis revealed 3 major themes related to clinician needs: cultural considerations, psychosocial support, and trust. It is important for clinicians to engage in cultural education and work to improve systemic deficiencies such as a lack of psychosocial support. An overarching theme was also the need for clinicians to seek to develop trustworthiness and earn trust when caring for AI/AN patients experiencing serious illness.

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Interprofessional advance care planning to enhance end-of-life care: A community assessment

04/05/25 at 03:30 AM

Interprofessional advance care planning to enhance end-of-life care: A community assessmentCreighton Journal of Collaborative Practice and Education; Meghan Potthoff, Amanda Kirkpatrick, Jenny Jessen, Cathy Fox, Victoria Haneman, Megan Piotrowski, Beatriz Rodriguez, Sydney Langlois; 3/25Lawyers and financial planners are more often sought for estate directives than primary care providers for end-of life planning. Lack of role clarity and divergent views about advance care planning (ACP) responsibility among healthcare providers lead to further delay of these important discussions. A qualitative, exploratory design was employed to investigate ACP understanding, barriers, and needs among aging Nebraskans and Omaha-metro community agencies that serve these consumers. Conclusions: Improved ACP discussions are needed for supporting value-aligned end-of-life care by educating aging adults about, and documenting their wishes for, life-sustaining treatments and other decisions surrounding death. Enhanced role clarity, increased competence, and a collaborative approach are needed among interprofessional team members involved to improve these end-of-life discussions. 

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The intent of the Physician's Order for Life-Sustaining Treatment: Reflecting patient wishes and institutional obligations

04/05/25 at 03:25 AM

The intent of the Physician's Order for Life-Sustaining Treatment: Reflecting patient wishes and institutional obligationsJournal of Hospice and Palliative Nursing; Jeannette Jeannie Meyer; 4/25Portable Medical Orders (PMO) such as the Physician's Order for Life-Sustaining Treatment and the Medical Order for Life-Sustaining Treatment have proven to be valuable documents that allow patients who are medically frail or have life-limiting illnesses to communicate their health care wishes. The PMO depends on a conversation between the trained health care provider and the patient or their designee. A PMO with incomplete signatures is not a valid legal document. In the scenario presented here, the author discusses a scenario in which the discussions did not take place and the signatures are questionable, leading the patient to receive aggressive medical treatment that might not be in their best interests. The reasons behind the above ethical issues are related to a misconception and misuse of the PMO within a long-term care facility. Unfortunately, as noted in the literature cited and in the author's own experience, these ethical issues are not uncommon.

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Perioperative integration of palliative care and urology for patients with serious urologic illness: A qualitative need finding inquiry

04/05/25 at 03:20 AM

Perioperative integration of palliative care and urology for patients with serious urologic illness: A qualitative need finding inquiryJournal of Pain and Symptom Management; Bhagvat J Maheta, Nainwant K Singh, Jonathan Bergman, Cati G Brown-Johnson, Alekhya Gunturi, Nickolas Interrante, John T Leppert, Karl A Lorenz, Isabella G Raspi, Karleen F Giannitrapani; 3/25Many urologic serious illnesses are treated with surgical procedures, which may put patients at a further risk of diminished quality of life. [We] purposefully sampled urologists, palliative care physicians, and clinical team members at fourteen geographically distributed Veteran Health Administration sites. We identified one general overall theme, to "change culture" so that PC [palliative care] is not a "last resort" ... Utilizing telehealth and team member role expansion when discussing the initial diagnosis, with surgery as a potential treatment option, allows for multiple conversations ... Creating a process to ensure goal of care conversations occur, since "urologic procedures can have complications that significantly impact quality of life" ... [and] during the pre-operative visits, interdisciplinary input and evaluation of the patient prior to surgery allows the patient to "have a sort of joint meeting with us and the urologist."

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A rapid review of psychedelic-assisted therapy in the context of palliative care

04/05/25 at 03:15 AM

A rapid review of psychedelic-assisted therapy in the context of palliative careJournal of Hospice & Palliative Nursing; Miller, Megan PhD, RN; Meyers, Molly BSN, RN; Martin, Annona MSc; Napolitano, Stephanie MA, LMHC; Dorsen, Caroline PhD, FNP-BC; Penn, Andrew MS, PMHNP; Rosa, William E. PhD, MBE, APRN, FPCN; 4/25Psychedelic-assisted therapy (PAT) involves supported experiences with psychedelic medicines in carefully curated environments. Results support safety and initial efficacy of PAT for psycho-spiritual-existential outcomes among carefully screened and highly homogonous samples of patients with serious illness (predominantly cancer). Additional work is needed to (1) explore PAT's safety and efficacy within more diverse samples and contexts, (2) train palliative care providers on PAT, (3) determine systems of care delivery best suited for translation of PAT into practice, and (4) begin developing policy solutions to support safe and equitable access to PAT. Because many patients lack access to basic psychosocial-spiritual-existential care, careful consideration is needed around integration of PAT. The psychedelic substances which are the topic of this article are not currently FDA approved for use in the United States.

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Impact of outpatient palliative care services on resource utilization and cost management in a capitated Medicare population

04/05/25 at 03:10 AM

Impact of outpatient palliative care services on resource utilization and cost management in a capitated Medicare populationJournal of Palliative Medicine; Parag Bharadwaj, Gagandeep Gill, Nathan Dyjack, Lindsay Fahnestock, Lorie D'Amore, Shuinn Chang, Nancy Hanna, Tanya Dansky, Gwyn Merz, Annamarie Jones, David Kim, Manjit Randhawa; 3/25The integration of palliative care into the U.S. health care system has grown significantly, with outpatient palliative care services (OPCSs) playing an increasingly vital role in managing patients with serious illnesses. Results [of this study] demonstrate substantial growth in OPCS enrollment, with a 129% increase from 2019 to 2023. Per-member-per-month costs showed a sustained reduction, with a 23% decrease by 2023. In addition, there were consistent reductions in ED [emergency department] visits and IP [in-patient] admissions, indicating effective outpatient care management. Patients transitioning from OPCS to hospice exhibited longer hospice stays, further emphasizing the benefits of early palliative care interventions.

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Top ten tips palliative care clinicians should know about dysphagia and adult swallowing interventions in serious illness

04/05/25 at 03:05 AM

Top ten tips palliative care clinicians should know about dysphagia and adult swallowing interventions in serious illnessJournal of Palliative Medicine; Sanora Yonan, Taylor Wilde, Alexa Rogers, Kelly J Trumpatori, Kristie Calix, Christina Barnes, Terri Durkin, Eric Mecusker, Christopher A Jones, Caitlyn M Moore, Laura Chahda, Amanda Stead, Lisa A LaGorio, Paula Leslie; 3/25This article highlights the important role of speech-language pathologists (SLPs) in palliative care (PC), emphasizing their contribution to supporting people with eating, drinking, and swallowing difficulties during serious illnesses and at the end of life. The recommendations underscore the necessity of interdisciplinary collaboration among SLPs and other PC team members, the importance of patient and caregiver education, and the application of patient-centered, comfort-focused approaches to dysphagia intervention. Drawing on current research and expert insights, this article explores the use of SLP services in PC, as well as the challenges in supporting people with eating and drinking difficulties in advanced stages of illness, embedded with practical tips for clinicians.

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[Germany] Do we have a knowledge gap with our patients?-On the problems of knowledge transfer and the implications at the end of life

04/05/25 at 03:05 AM

[Germany] Do we have a knowledge gap with our patients?-On the problems of knowledge transfer and the implications at the end of lifeInternational Journal of Environmental Research and Public Health; Nils Heuser, Hendrik Heers, Martin Gschnell, Fabian Urhahn, Severin Schrade, Christian Volberg; 2/25Cancer patients are often unaware of their exact diagnosis, stage of disease, and prognosis. In the patients observed, it was found that many of them were unaware of their stage of disease, which can have a huge impact on their end-of-life decisions, such as the type of treatment they want. Many patients were also unaware of their own treatment. There is a risk that false hopes of cure may be attached to therapies and that, as a result, patients may be less likely to opt for palliative care with a focus on maintaining quality of life.

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Today's Encouragement

04/05/25 at 03:00 AM

Once you replace negative thoughts with positive ones, you'll start having positive results.  ~Willie Nelson

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Primary palliative care in assisted living and residential care-A metasynthesis

04/05/25 at 03:00 AM

Primary palliative care in assisted living and residential care-A metasynthesisJournal of Hospice & Palliative Nursing; David, Daniel PhD, MS, BSN; Jimenez, Vanessa MPH, BS; Brody, Abraham A. PhD, RN, FAAN; 3/25Assisted living (AL) and residential care (RC) settings are experiencing substantial growth as older adults with lower care needs seek alternatives to nursing homes. Despite this trend, there is a lack of skilled nursing care to support palliative care (PC) in these environments. Studies highlighted challenges and opportunities for delivering primary PC in these environments, emphasizing the importance of addressing physical symptoms, psychological distress, social isolation, and spiritual needs among residents with serious illnesses. The metasynthesis underscores the critical role of primary PC in enhancing quality of life and care continuity for older adults residing in AL/RC settings. It also identifies gaps in current practices and emphasizes the need for tailored interventions and training to support care providers in delivering comprehensive PC to this population. By integrating qualitative research findings with the National Consensus Project guidelines, this metasynthesis provides a comprehensive overview of primary PC in AL/RC settings.

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[France] Supportive care needs of childhood, adolescent and young adult cancer survivors: A systematic mixed study review

04/05/25 at 03:00 AM

[France] Supportive care needs of childhood, adolescent and young adult cancer survivors: A systematic mixed study reviewCancer Care Research Online; Baudry, Valentine MS; Bertrand, Amandine MD; Bottichio, Margaux MS; Escot, Noémie MS; Despax, Johanna PhD; Girodet, Magali PhD; Christophe, Véronique PhD; 4/25This literature review shows that CAYA [childhood, adolescent, and young adult] cancer survivors still have SCN [supportive care needs] long after the end of treatment, which is specific to the challenges they face at these developmental stages and may evolve over time. Survivors still report needs related to information, medical care, psychology, sexuality, fertility, and age-specific care. Social life, finance, work, and education needs were also present, but at a lower scale. Future research should clarify these links, to explore the evolution of needs over time, to distinguish specific CAYA subgroups, to examine time since diagnosis or completion of treatment, and to better specify the SCN of child survivors to present relevant results.

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Saturday newsletters

04/05/25 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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U.S. Supreme Court rejects medical marijuana firm's bid to avoid racketeering suit

04/04/25 at 03:00 AM

US Supreme Court rejects medical marijuana firm's bid to avoid racketeering suit Reuters, Washington, DC; by John Kruzel; 4/2/25 The U.S. Supreme Court ruled on Wednesday against Medical Marijuana Inc (MJNA.PK), opens new tab in its bid to fend off a lawsuit by a commercial truck driver who was fired for failing a drug test after taking cannabidiol, or CBD, that he said was falsely sold as lacking the psychoactive ingredient present in marijuana. The justices, in a 5-4 decision authored by conservative Justice Amy Coney Barrett, upheld a lower court's ruling that had allowed plaintiff Douglas Horn to bring a civil lawsuit against the San Diego-based company under the Racketeer Influenced and Corrupt Organizations Act. [Continue reading ...]

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Today's Encouragement: Life’s challenges are not supposed to paralyze you, ...

04/04/25 at 03:00 AM

Life’s challenges are not supposed to paralyze you, they’re supposed to help you discover who you are. ~ Bernice Johnson Reagon

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