Literature Review

What is end-of-life care at home? A complete guide for families exeleon | Healthcare; 9/28/26 A study published in Federal Practitioner in September 2025, using data from the CDC WONDER database, found that home was the most common place of death among cancer patients between 2003 and 2023, accounting for 40.3% of all recorded deaths. ... This guide walks through what services are typically included, how eligibility works, and what separates in-home support from care delivered in a facility. Along the way, it covers home care for end of life planning, the difference between hospice and general end-of-life support, and practical steps for arranging services quickly.

Interactive maps of aging: Judy Salerno and Lindsay Goldman GeriPal - A Geriatrics and Palliative Care Podcast for Every Healthcare Professional; pocast by Judy Salerno and Lindsay Goldman; 9/24/26 Love the story Judy Solerno tells at the start of this podcast. The story is about how John Snow, the father of modern epidemiology, mapped out cases of Cholera in London in the year 1854.  He was able to identify a concentration of cases near a neighborhood water pump.  Simply removing the handle from the pump halted the outbreak.  This is one of the earliest recorded uses of maps for public health purposes. Our guests today, Judy Salerno (President Emeritus of the New York Academy of Medicine) and Lindsay Goldman (CEO of Grantmakers in Aging) have done some wonderful work creating detailed, in-depth, interactive maps of aging in New York City. Go to IMAGENNYC and try it yourself.

Center for Hospice Care spotlights doula volunteer program GreatNews.Life, Valparaiso, IN; by Bennett Silveus; 9/25/26 Over the years, Center for Hospice Care (CHC) has worked to provide a wide range of specialized hospice and palliative care options to members of the Northern Indiana community.  ... End-of-life doulas are trained, non-medical professionals who provide emotional, spiritual, and personal support and guidance to patients and families navigating the transitional period between life and death. ... Each CHC end-of-life doula works as a general volunteer for the non-profit, often starting off as a home visit or patient volunteer before moving to work as a doula. From there, the volunteer must take a 16-hour course and shadow a current doula to become fully trained in the practice.

Geographic disparities in hospice quality and family caregiver experience: the roles of ownership, social vulnerability, and workforce capacity arXiv; by Jinho Cha and Misun Roh; 9/29/26  Hospice quality should be interpreted in relation to both provider organization and the local conditions under which care is delivered. This study develops a provider-county performance assessment framework by linking national Centers for Medicare & Medicaid Services (CMS) hospice data and Consumer Assessment of Healthcare Providers and Systems (CAHPS) Hospice Survey outcomes with county measures of rurality, social vulnerability, health burden, and workforce and health-resource context. The adjusted analysis includes 2,928 providers in 1,078 counties and combines geographic mapping, blockwise regression, six secondary CAHPS outcomes, and eight sensitivity analyses.

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

Ethics and professionalism in artificial intelligence and medical practice: A position paper from the American College of PhysiciansAnnals of Internal Medicine; by Matthew DeCamp, Lois Snyder Sulmasy, Kyle E. Karches, for the Ethics, Professionalism and Human Rights Committee of the American College of PhysiciansArtificial intelligence (AI) in health care is being rapidly adopted in perhaps one of the most rapid implementations of technology in medicine to date. Better thought of as augmented intelligence, as a tool that provides assistance to physicians and patients, many guidelines for its use have been issued, but consensus has not yet been achieved on issues such as privacy, disclosure, and fairness. Patients and physicians need ethical guidance at the point of care. Three guideposts described in this American College of Physicians position paper and rooted in the patient–physician relationship—principles of medical ethics, clinical integrity, and physician-independent practical reasoning—can inform the ethical use of AI: relationality, self-governance, and competence. This paper examines the implications of AI for patients, physicians, and health care and provides guidance for its ethical use.

Do not play: Recognizing spiritual distress in serious illnessJournal of Hospice & Palliative Nursing; by Jeanna A Ford; 9/26Spiritual distress is a significant yet frequently underrecognized component of serious illness and palliative care. Although spirituality is recognized as a core domain of quality palliative care, patients often express spiritual suffering through grief, mistrust, anger, identity, trauma, or existential concerns rather than explicitly religious language. This article explores the role of spiritual assessment and open-ended inquiry in recognizing spiritual distress through the case of an 86-year-old Black male with metastatic prostate cancer who repeatedly refused to answer standardized questions regarding spiritual distress. Although he identified as agnostic, broader conversations revealed profound sources of meaning, suffering, dignity, and peace shaped by experiences of racism, institutional mistrust, family, music, and legacy. The case illustrates how spiritual distress may emerge indirectly and highlights the limitations of relying solely on structured screening tools.

Educating the hospice workforce on pediatric concurrent care: A national workshop approachJournal of Pain & Symptom Management; by Rakhshanda Ramzan, Lisa C Lindley, Logan Hoover, Jia Liang, Markeya Martin, Salina Temesghen, Meaghann S Weaver; 9/26Medicaid insures most children at the end of life and mandates concurrent hospice and curative care coverage. Uptake remains inconsistent, partly due to hospice workforce unfamiliarity with the benefit and concerns about compliance. A brief virtual workshop shifted hospice workforce perceptions of pediatric concurrent care, revealing gaps in baseline understanding and increasing awareness of implementation challenges. Findings informed development of a Pediatric Concurrent Care Toolkit and suggest that practical implementation resources, policy guidance, and family-centered communication tools may be needed to improve uptake and access to concurrent care.

Neurodegenerative disease death certification among National Football League players with dementiaJAMA Network Open; by Charlotte B. Luster, Christopher J. Nowinski, Bobak Abdolmohammadi, Evan D. Feigel, Michael J. Mastrodicasa, Brenna Finegan, Lee Goldstein, Douglas I. Katz, Robert C. Cantu, Brigid Dwyer, Yorghos Tripodis, Thor D. Stein, Michael L. Alosco, Ann C. McKee, Jesse Mez, Daniel H. Daneshvar; 9/26This cohort study of 202 brain donors found that only 30.7% of former NFL players with clinician-adjudicated dementia had NDD [neurodegenerative disease] listed as the underlying cause of death. This study suggests that NDDs are substantially underascertained on death certificates of former NFL players, which mirrors findings in the general population, suggesting that death certificates may underestimate the true burden of NDD, particularly in less-severe cases. Across 7 investigations, dementia was listed on death certificates for only 7.2% to 41.8% of individuals with documented dementia diagnoses. Similar underascertainment has been reported for Parkinson disease and Alzheimer disease (AD). In a cohort of patients with AD, only 25.5% of death certificates listed AD or dementia as the underlying cause, while 63.5% recorded it as a contributing cause. Assistant Editor's note: In nursing school many years ago, I never learned much about dementia or AD. It was kind of an "aside diagnosis"--a problem "pertaining to old people", but never the primary diagnosis. It wasn't until I got into hospice care that I realized what a devastating disease it can be, and how it affects all body systems, not just the brain. Of course, it deserves to be a disease in and of itself! This article summary points to this issue in stating that 63.5% of death certificates list AD or dementia as simply a contributing cause of death. I'm sure it is indeed a contributing cause of death in some cases. But in other cases, as the article summary suggests, it is likely the primary cause of death and simply not captured as such on the death certificate.

Kendall Burrows Foundation works toward $1 million for pediatric care WMAR-2 ABC, Baltimore, MD; by Elsa M.; 9/20/26  The Kendall Burrows Foundation is encouraging Marylanders to make a difference in the lives of children and families facing serious medical challenges. Since 2015, the foundation has partnered with the Johns Hopkins Children's Center Harriet Lane Compassionate Care Program to help create supportive and healing environments for children receiving pediatric palliative care and for the families who care for them. ... This year, organizers are aiming to reach a significant milestone. The foundation reports that it has raised and donated $882,000 to date and hopes to surpass $1 million through continued community support.

SBL Hospice Binga raises $31,000 for Willow Breeze Sarah Bush Lincoln; Press Release; 9/24/26 Sarah Bush Lincoln’s Hospice Binga event held in early September raised more than $31,000, with proceeds benefiting the Willow Breeze Hospice House Endowment. Earnings from the endowment help families with no or limited resources pay for their stay. ... “We’re so very grateful for our sponsors, donors, volunteers and Binga participants who come together to raise funds to help those in need,” said Amy Card, SBL Health Foundation director. “... The endowment is so important to help make it accessible to those who otherwise may not have the means to stay there.” Most insurance companies cover care in a hospice house, but many won’t cover room and board.