Literature Review

[Australia] New study amplifies rural voices to improve palliative care at end-of-life NewsWise; by University of South Australia; 5/13/25  ... [A] new study from the University of South Australia is shining a light on the experiences of rural South Australians who are navigating end-of-life care, in the hope of improving access to palliative care services and supports in rural and country areas. ... “People living outside of major cities are notoriously under-supported and underserviced when it comes to health care – and palliative care is no different,” Associate Professor Gunn says. “More than seven million Australians, almost 30% of the population, live in rural communities, yet only 16% of the palliative care workforce live and work in these areas. “Research tells us that earlier referral to palliative care services gives patients and families more control, helping them maximise their quality and quantity of life. Yet patients living in country or rural areas have less opportunity to receive specialist palliative care, and this can negatively affect their wellbeing, and the wellbeing of their family members."Editor's note: Sound familiar? Click here for "Rural Hospice and Palliative Care - Resources," from the Rural Health Information Hub. 

Honey, Sweetie, Dearie: The perils of elderspeakKFF Health News, originally published by The New York Times; by Paula Span; 5/9/25 A prime example of elderspeak: Cindy Smith was visiting her father in his assisted living apartment in Roseville, California. An aide who was trying to induce him to do something —  Smith no longer remembers exactly what — said, “Let me help you, sweetheart.” “He just gave her The Look — under his bushy eyebrows — and said, ‘What, are we getting married?’” recalled Smith, who had a good laugh, she said. Her father was then 92, a retired county planner and a World War II veteran; macular degeneration had reduced the quality of his vision, and he used a walker to get around, but he remained cognitively sharp. People understand almost intuitively what “elderspeak” means. “It’s communication to older adults that sounds like baby talk,” said Clarissa Shaw, a dementia care researcher at the University of Iowa College of Nursing ... “It arises from an ageist assumption of frailty, incompetence, and dependence.” Its elements include inappropriate endearments. “Elderspeak can be controlling, kind of bossy, so to soften that message there’s ‘honey,’ ‘dearie,’ ‘sweetie,’” said Kristine Williams, a nurse gerontologist at the University of Kansas School of Nursing ...

Nonprofit hospice home offers free, 24/7 end-of-life care to unhoused, low income Albuquerque Journal, Albuquerque, NM; by Gregory Hasman; 5/12/25 Dorothy Marquez has spent the last month with her brother Gerald Moya in a Downtown Albuquerque hospice home, reminiscing about their childhoods or his lime green 1964 Chevrolet Impala lowrider he loved to show off. Moya, 59, is battling stage 4 lung cancer and has days to live. ... Inhora is doing its best to ensure Moya feels comfortable. "I'm very happy because he's not in pain and he's not out there just laying on the road because that's what he'd probably be doing because we don't have a place to go," Marquez said. "We're both homeless." Since April, the hospice home on Tijeras NW, near Seventh Street, has served as a place for people who are unhoused or have low incomes to spend their final days with loved ones. "Our culture throws dying people away and hides them behind closed doors," said Miles Gloetzner, Inhora's founder and executive director. ""And they deserve better. They deserve dignity and compassion, ..."

I held my wife's hand as she died. It was the most painful moment in my life, but also the greatest gift.Yahoo!Life; by Juan Cruz, Jr.; 4/13/25

Martinsburg baseball team hosts Hospice Night at the Ballpark The Journal, Martinsburg, WV; by Staff; 5/12/25 The Martinsburg High School baseball team welcomed everyone to the annual Hospice Night at the Ballpark on May 7, when the Bulldogs took on the Spring Mills Cardinals. Each team and those in attendance were given cards provided by Panhandle Printing and Design displaying, “Hospice Can Be Your Shining Light.” Hospice Night originated back in 2017, when coach Larry and Anita Cooper wanted to honor their parents (Rev. Mason and Alma Cooper and Walter and Vivian Ridenour) in a way that brought awareness to others about Hospice. In 2018, they purchased the teal jerseys and hats in the Hospice teal color to compliment Martinsburg’s orange and black school colors.

We make a living by what we get. We make a life by what we give. ~ Winston Churchill

A daughter’s cautionary elder care tale The Progressive Magazine - Book Review; by Bill Lueders; 5/12/25 The call that woke Judy Karofsky in the middle of the night on May 18, 2015, was from a hospice nurse, who got right to the point: “I’m calling to tell you that your mother has died.” Karofsky, deeply shaken by the unexpected news, managed to ask, “Did she struggle?” Karofsky’s important new book, DisElderly Conduct: The Flawed Business of Assisted Living and Hospice, does not mention the hospice nurse’s response to this question. But it does note that she called back a moment later to say: “I’m so sorry . . . . I called the wrong number. I’m at a different facility and I had the wrong file.” Karofsky’s mother, Lillian Deutsch, had not died at all. It was someone else’s mother. Apologies were made. This is just one of many stories Karofsky shares throughout the book about the final years of her mother’s life in Wisconsin. This particular anecdote strikes me as noteworthy not just as an example of the sort of awful things that can happen when facilities are understaffed and staff members are overworked, but also because Karofsky’s first reaction was to wonder whether she struggled.Editor's note: Though printed news typically lifts up the good, compassionate moments of hospice care, most all of us have experienced negative accounts--professionally and/or personally. While this book is sure to give significant insights, perhaps the most important lessons are waiting to be validated from your own family caregivers, employees, and volunteers. What stories are behind your lower-than-you-want CAHPS Hospice scores? Dig deeper. May we all listen, learn, and improve care.

Be ready for updated Special Focus Program, hospice experts sayMcKnight's Home Care; by Adam Healy; 5/9/25A revised hospice Special Focus Program is coming, and providers should make sure they have plans and procedures in place to be successful under this strict oversight program, Linda Woodle, director of accreditation at Community Health Accreditation Partner (CHAP), and Patricia D’Arena, vice president of clinical excellence at Enhabit Home Health and Hospice, said... When that program will be reinstated is anyone’s guess... The Centers for Medicare & Medicaid Services has indicated that assessments will place a high emphasis on four specific Conditions of Participation: patient’s rights; initial and comprehensive assessment of the patient; interdisciplinary group, care planning and coordination of care; and quality assessment and performance improvement. So providers should ensure they meet all of these conditions’ requirements.

End-of-life care behind bars: A periodic literature search - May 2025Personal communication; 5/8/25Regular reviews of articles and reports on key issues in prison hospice and palliative care.

Celebrating National Nurses Month with 62 years of nursing excellence: Meet Alma Flowers, hospice nurse Jacksonville News - JAXChamber, Jacksonville, FL; 4/30/25 This month, we are proud to spotlight Ms. Alma Flowers, a dedicated Registered Nurse at Community Hospice & Palliative Care, whose remarkable career spans an impressive 62 years. Alma's journey began at the Brewster Duval School of Nursing in Jacksonville in 1959, marking the start of a lifelong commitment to compassionate care and professional excellence. Alma's career has been a testament to the evolution of nursing, encompassing diverse roles from acute psychiatric units to the compassionate realm of hospice care. Throughout her journey, Alma has adapted to and contributed to advancements in healthcare practices and policies. ... As we celebrate National Nurses Month, we are reminded of nurses' profound impact on patient care, healthcare innovation, and community well-being. Alma Flowers' journey is a testament to the enduring spirit of nursing excellence at Community Hospice & Palliative Care.Editor's note: What a beautiful tribute to Alma, especially when describing her journey as a "testament to the evolution of nursing." Imagine changes ahead for today's student nurses: 62 years from now will be the year 2087. While we struggle to keep up with the current barrage of nursing workforce challenges, we can draw inspiration from Alma's life-long commitments, flexibility, and immeasurable contributions.

How DispatchHealth’s CEO plans to change the face of in-home careModern Healthcare; by Diane Eastabrook; 5/7/25DispatchHealth CEO Jennifer Webster said the company is eyeing new markets and care models after its acquisition of hospital-at-home provider Medically Home is complete. Denver-based DispatchHealth announced a definitive agreement in mid-March to acquire Boston-based Medically Home. Webster said the deal is still on track to close in a couple of months, but there is a lot of work to be done first. That includes integrating operations and technology, as well as senior leadership.

Hospice of Midland opens new Community Center to expand local support Midland Reporter-Telegram, Midland, TX; by B. Kay Richter; 5/8/25 After years of envisioning a community center next door to Hospice of Midland headquarters, the day is finally here. The commercial building, located at 901 W. Texas Ave., will serve as a space for various community needs, including professional and student educational support, bereavement support, memorial services, volunteer gatherings and even collaborations with other nonprofit organizations.  Deborah Goodman, chief executive officer of Hospice Midland, said that the building was initially purchased by Midlander Ted Johnson and was renovated with community support. The one-story building offers 3,000 square feet of space and is equipped with a new commercial kitchen.