Literature Review
Hospice physician: pain management growing more complex for families
08/16/26 at 03:05 AMHospice physician: pain management growing more complex for families Hospice News; by James Warda; 8/7/26 When a patient starts to receive hospice care, families often expect to focus on making memories, finding comfort and spending meaningful time together. However, many instead find themselves making frantic phone calls to multiple pharmacies, driving across town to locate medications, or waiting days for prescriptions that should be readily available, with a patient in need at home. According to the American Academy of Hospice and Palliative Medicine’s (AAHPM) Board of Directors Secretary, Dr. Michael Barnett, a hospice physician and former inpatient palliative care physician, this growing challenge is becoming an all-too-common part of end-of-life care.
If consuming too much caffeine causes short term memory loss...
08/16/26 at 03:00 AMIf consuming too much caffeine causes short term memory loss, just imagine what consuming too much caffeine can do!
Sunday newsletters
08/16/26 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Additional CMS website information for the Hospice Wage Index Final Rule
08/16/26 at 03:00 AMAdditional CMS website information for the Hospice Wage Index Final RuleCMS; compiled by Judi Lund Person; 8/4/26 Downloads on CMS website that provide additional information for the final rule:
Policy approaches to ensuring an adequate nursing workforce in coming decades
08/15/26 at 03:35 AMPatient- and caregiver-informed considerations for the design and implementation of generative AI–supported patient-centered clinical decision support: Qualitative study
08/15/26 at 03:30 AMImpact of palliative care consultation on neonatal end-of-life care utilization
08/15/26 at 03:25 AMMedical aid in dying: Bridging ethical guidance and bedside communication in nursing practice
08/15/26 at 03:20 AMMedical aid in dying: Bridging ethical guidance and bedside communication in nursing practiceJournal of Hospice & Palliative Nursing; by Jeanna Ford, Phyllis Whitehead; 7/26As MAiD [Medical aid in dying] becomes more integrated into serious illness care, nurses, particularly those in hospice and palliative care, are increasingly the first clinicians to receive patient questions about this option. These inquiries are often embedded in broader concerns related to suffering, loss of autonomy, fear of prolonged dying, and desire for control rather than solely requests for hastened death. The Hospice and Palliative Nurses Association’s recent position statement on medical aid in dying emphasizes compassionate, nonjudgmental care, respect for autonomy, professional integrity, and the ethical obligation of nonabandonment while recognizing the complexities of conscientious objection. This manuscript examines the evolving legal and ethical landscape of MAiD, explores the professional implications for nursing practice, and introduces the EXPLORE (Elicit, Explore, Probe Suffering, Learn Values, Observe Pressures, Review Support, Evaluate Next Steps) communication framework, a practice-based model developed to provide nurses with a structured, evidence-informed approach for responding to patient-initiated MAiD discussions.
Demystifying goals-of-care conversations in the emergency department: A step-based approach for older adults using the BRIEF-5 Framework
08/15/26 at 03:15 AM[Sweden] Effects and user-reported experiences of a self-management mobile health app for grieving adolescents: Randomized controlled trial
08/15/26 at 03:10 AM[Sweden] Effects and user-reported experiences of a self-management mobile health app for grieving adolescents: Randomized controlled trialJournal of Medical Internet Research; by Rebecca Rhodin, Rakel Eklund, Anneli Silvén Hagström, Rolf Gjestad, Atle Dyregrov, Josefin Sveen; 7/26Adolescents who experience the loss of a family member are at increased risk of adverse mental health outcomes, yet many face barriers or may be reluctant to access in-person or group-based support. This study evaluated the short- and long-term mental health effects of Alba - Youth in Grief, a preventive self-management mobile app for bereaved adolescents. Intention-to-treat analyses showed moderate reductions in prolonged grief symptoms at 12 months among adolescents randomized to Alba compared with the control group, with no significant effects at the 2- and 6-month follow-ups. The app group also demonstrated greater reductions in grief reactions, posttraumatic stress symptoms, and depressive symptoms compared with controls, with the strongest effects observed at long-term follow-up.
Palliative care and hospice: A practical guide for Nurse Practitioners
08/15/26 at 03:10 AM[Portugal] Ketamine for cancer-related pain in palliative care: A systematic review of clinical use and safety
08/15/26 at 03:05 AM[Portugal] Ketamine for cancer-related pain in palliative care: A systematic review of clinical use and safetyJournal of Pain & Palliative Care Pharmacotherapy; by Catarina Vitorino-Afonso, Paulo Reis-Pina; 7/26Ketamine has emerged as an adjuvant for opioid-refractory cancer-related pain in palliative care, but evidence remains limited. [This study found that] ketamine was used mainly as an adjuvant. Many reports described reduced pain and/or lower opioid use, although certainty was very low and attribution was limited by polypharmacy and regimen changes. Intravenous infusions were most common, but subcutaneous, oral, and intranasal routes were also used. Intranasal ketamine showed pragmatic utility for breakthrough pain, while oral ketamine was described in ambulatory palliative care settings.
[Portugal] The ethical and psychosocial dimensions of palliative care in prison: A scoping review
08/15/26 at 03:00 AM[Portugal] The ethical and psychosocial dimensions of palliative care in prison: A scoping reviewJournal of Bioethical Inquiry; by Ana Gehl-Costa, P. Reis-Pina; 7/26With prison populations expanding and aging, palliative care (PC) is an urgent concern. People in prison (PIP) face chronic illness, mental health conditions, and social vulnerabilities, creating ethical and psychosocial challenges to dignified end-of-life (EOL) care... Ethical domains included structural neglect of PIP with life-limiting illness, barriers to compassionate release, compromised autonomy, denial of death in prison culture, and inadequacies in care quality and access. Psychosocial domains encompassed stigma, mistrust, isolation, existential suffering, and fractured social bonds. PIP-led hospice models offered companionship but raised tensions around labour, confidentiality, and the normalization of death in custody... Prison-based PC requires systemic reforms, staff training, family and advocacy involvement, and legal safeguards to ensure equitable, compassionate, and dignified EOL care.Publisher's note: This article was included in the August 2026 issue of End-of-Life Care Behind Bars - Current Thinking, by Barry R. Ashpole.
Saturday newsletters
08/15/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Darkness cannot drive out darkness...
08/15/26 at 03:00 AMDarkness cannot drive out darkness: only light can do that. Hate cannot drive out hate: only love can do that. ~Martin Luther King Jr.
Where hospice fails us: A qualitative study of facilitators and barriers in transitions to hospice according to palliative care clinicians
08/15/26 at 03:00 AMWhere hospice fails us: A qualitative study of facilitators and barriers in transitions to hospice according to palliative care cliniciansJournal of Palliative Medicine; by Morgan M Nakatani, Julia G Cohn, Kris W Herring, Thomas W LeBlanc; 7/26Transitions to hospice are challenging for patients, caregivers, and health care teams, yet few studies have examined gaps in care from the perspectives of referring palliative care (PC) clinicians. PC clinicians identify substantial barriers to hospice transitions, underscoring the need to improve access to comprehensive end-of-life care. Clinicians emphasized the value of hospice and the Medicare benefit, while identifying barriers to hospice transitions [including] ... inadequate caregiving support, limited reimbursement, uncertainty around eligibility and prognostication, and differences between for-profit and non-profit hospice agencies. These barriers contributed to inequitable access to hospice and gaps in care.
California’s new emergency hospice regulations: key requirements for providers
08/14/26 at 03:00 AMCalifornia’s new emergency hospice regulations: key requirements for providers JD Supra; by Margia Corner, Elicia Grilley Green, Lena Zinner; 8/13/26 For the first time in California’s history, hospice agencies have become subject to comprehensive hospice-specific licensing regulations adopted on an emergency basis and effective June 22, 2026. ... The new regulations apply to both existing licensees and new applicants, add significant new requirements for CDPH approval of transactions and other operational changes, such as the licensee’s physical location, and authorize CDPH to conduct unannounced inspections to verify compliance. Providers would benefit from reviewing their operations against the new requirements below.
Palliative care with guided open communication improves patients’ well-being
08/14/26 at 03:00 AMPalliative care with guided open communication improves patients’ well-being Oncology Nurse Advisor; by Jessica Nye, PhD; 8/13/26 Guided open communication in the palliative care setting had beneficial effects on patients with advanced lung cancer, according to findings published in Frontiers in Public Health. ... A total of 276 patients were evaluated for outcomes using a battery of validated instruments. ... The study investigators concluded, “[I]ntegrating guided honesty intervention and palliative care into a comprehensive nursing model can significantly alleviate negative emotions such as depression, anxiety, and stress in patients with advanced lung cancer, effectively reduce cancer pain and cancer-related fatigue, and significantly improve nursing satisfaction while enhancing patients’ quality of life in multiple dimensions.”
Women Swimmin’ for Hospicare celebrates 23 years
08/14/26 at 03:00 AMWomen Swimmin’ for Hospicare celebrates 23 years ithaca.com, Ithaca, NY; by Grant Terwilliger; 8/11/26 On the morning of Aug. 8, 330 women swam 1.2 miles from Camp Comstock to Myers Park to support Hospicare services. The swimmers participated in groups and were accompanied by paddlers in kayaks. Go the Distance fundraisers, swimmers, volunteers and spectators raised $663, 940 for Hospicare through 6,000 donations, according to the Women Swimmin’ for Hospicare website. ... “Twenty three years ago, two powerful, determined women decided to swim across the lake for the first time to celebrate a 60 birthday and raise money for hospice care,” said Emily Hopkins, director of development and community relations for Hospicare. “Fast forward to today, swimming in their wake, we have swimmers ages 18 to 82 who swam across the lake today.”
Before the deal closes: what leaders need to know about sales integration
08/14/26 at 03:00 AMBefore the deal closes: what leaders need to know about sales integration Community Health Accreditation Partner (CHAP); by Amy Sutton-Feld and Kassi Ellison; 8/12/26Many organizations think Sales and Business Development integration begins when the deal closes. In reality, the most important integration work starts much earlier. It begins when leaders sign the letter of intent, enter diligence, and start making decisions about what the combined organization will look like. By the time Day One arrives, many of the risks that affect business development performance are already forming, especially for sales and growth teams. ...
Treasure Coast Hospice launches new website to make hospice referrals easier for families and healthcare providers
08/14/26 at 03:00 AMTreasure Coast Hospice launches new website to make hospice referrals easier for families and healthcare providers Cision PRWeb, Stuart, FL; by Treasure Coast Hospice; 8/11/26 Treasure Coast Hospice has launched a newly redesigned website featuring an enhanced online referral experience that makes it easier for healthcare providers, patients, and families to connect with hospice care. The new website was developed to remove common barriers people may face when searching for hospice information and to make the referral process more accessible, efficient, and easy to understand. ... One of the most significant updates is a new online referral form with two distinct pathways: one for healthcare professionals and another for patients and loved ones.
Executive Personnel Changes - 8/14/26
08/14/26 at 03:00 AMExecutive Personnel Changes - 8/14/26
[Canada] Daughter says elderly father chose MAiD due to 'loss of hope' after not qualifying for hospice
08/14/26 at 03:00 AM[Canada] Daughter says elderly father chose MAiD due to 'loss of hope' after not qualifying for hospice LiveAction.org; by Bridge Sielicki; 8/11/26 Colleen De Vos told EWTN News Nightly that her 85-year-old father died in 2023 after being diagnosed with terminal chronic obstructive pulmonary disease (COPD). Though he had initially agreed to hospice or in-home palliative care, he was denied the care he needed. “He was turned down on two occasions, deeming that his diagnosis wasn't enough to warrant hospice care,” De Vos said. “That was a surprise to us because we could see he was deteriorating very quickly.” Nevertheless, he was able to qualify for MAiD. “The irony of the availability of MAiD that could be arranged very quickly... sidelined us very much,” she said. ...
Deactivation of cardiac devices at the end of life: clinical and ethical challenges
08/14/26 at 03:00 AMDeactivation of cardiac devices at the end of life: clinical and ethical challenges Current Heart Failure Reports; by Marie-Gabrielle Courtès, Fiona Ecarnot, Mathilde Giffard; 8/13/26 Device deactivation in patients with heart failure is an increasingly relevant clinical and ethical challenge as the use of cardiovascular implantable electronic devices expands. ... Deactivating implantable cardioverter defibrillators can prevent painful and unnecessary shocks at the end of life, which may otherwise prolong dying without improving quality of life. Multidisciplinary involvement, including palliative care consultation, is essential to support patient-centered decision-making and symptom management. This review synthesizes the latest evidence and consensus on device deactivation in heart failure, emphasizing the need for communication, initiated early in the disease course, as well as individualized care, and integration of patient preferences throughout the disease trajectory.Editor's Note: What Policies and Procedures does your organization have in place? What interdisciplinary education do you ensure for all IDG members regarding this challenge for patients, families, and legal representatives? This clinical and ethical challenges presents potentially horrific trauma for the patient and those present when the person is actively dying and dies. Clincial and legal knowledge, preparations, and communications, and documentation are crucial.
