Literature Review



Mortality and function after widowhood among older adults with dementia, cancer, or organ failure

10/26/24 at 03:05 AM

Mortality and function after widowhood among older adults with dementia, cancer, or organ failureJAMA Network Open; Rebecca Rodin, MD, MSc; Alexander K. Smith, MD, MS, MPH; Edie Espejo, MPH; Siqi Gan, MPH; W. John Boscardin, PhD; Lauren J. Hunt, PhD, RN; Katherine A. Ornstein, PhD, MPH; R. Sean Morrison, MD; 9/24In this cohort study including 13,824 participants in the Health and Retirement Study, widowhood was associated with functional decline and increased 1-year mortality in functionally impaired older adults with dementia and cancer. The study findings suggest that older adults with functional impairment and cancer or dementia are at risk of adverse outcomes following widowhood, including functional decline and a marked elevation in the risk of death, in the year after widowhood.

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[Netherlands] The spiritual dimension of parents' experiences caring for a seriously ill child: An interview study

10/26/24 at 03:05 AM

[Netherlands] The spiritual dimension of parents' experiences caring for a seriously ill child: An interview studyJournal of Pain and Symptom Management; by Marije A Brouwer, Marijanne Engel, Saskia C C M Teunissen, Carlo Leget, Marijke C Kars; 10/24The spiritual dimension plays a central role in the experiences of parents who care for children with life-threatening conditions, but they receive little support in this dimension, and care needs often go unnoticed. If we want to provide high-quality pediatric palliative care including adequate spiritual support for parents, we should focus on the wide range of their spiritual experiences, and provide support that focuses both on loss of meaning as well as on where parents find growth, joy or meaning.

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[UK] Symptom management for people with advanced dementia who are receiving end of life care

10/26/24 at 03:00 AM

[UK] Symptom management for people with advanced dementia who are receiving end of life careCurrent Opinion in Supportive and Palliative Care; Maria Drummond , Bridget Johnston; 10/24Recent studies indicate that people with advanced dementia often experience significant unmet palliative care needs, particularly regarding symptom management. Palliative care for people with advanced dementia is currently inadequate due to a lack of tailored interventions, poor symptom management, and disjointed care systems. Enhancing training for caregivers, fostering interdisciplinary collaboration, and focusing on integrated care approaches across home and institutional settings are crucial to improving quality of life and symptom control for people with advanced dementia.

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Patterns of migration following dementia diagnosis

10/26/24 at 03:00 AM

Patterns of migration following dementia diagnosisJAMA Network Open; Momotazur Rahman, PhD; Bishnu Bahadur Thapa, PhD; Christopher Santostefano, MPH, RN; Pedro Gozalo, PhD; Ulrike Muench, RN, PhD; Cyrus M. Kosar, PhD; Hyesung Oh, PhD; Elizabeth White, APRN, PhD; Vincent Mor, PhD; 10/24In this cohort study of more than 1 million Medicare fee-for-service beneficiaries, individuals with a diagnosis of dementia were almost twice as likely to migrate to another county or state compared with those with diagnoses of myocardial infarction, chronic obstructive pulmonary disease, or colon cancer. Of the excess migrations resulting from dementia diagnosis, 55% occurred in community settings, and 45% occurred in institutional settings. The marked increase in migration among patients following a dementia diagnosis highlights a distinctive need for policy and support interventions tailored to their unique migration patterns and care requirements.

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Saturday newsletters

10/26/24 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Serenity House Garden receives colorful makeover in honor of patients and families

10/25/24 at 03:45 AM

Serenity House Garden receives colorful makeover in honor of patients and families The Oskaloosa Herald, Oskaloosa, IA; 10/23/24 Mahaska Health announced recent enhancements to the Serenity House Garden, made possible by the generosity of Bob and Roxanne Denner. The updated garden now features a vibrant array of new plants and a beautifully revitalized rock landscape, offering a serene and uplifting environment for patients and their families. Roxanne Denner, a member of the Serenity Hospice Auxiliary Board, has been involved in supporting the Serenity House mission for several years. As an avid gardener, she saw this opportunity to enhance the garden as a way to contribute to the well-being of guests and their families. Editor's note: We celebrate the countless hospice and palliative care volunteers who give their time and talents to create more meaningful, compassionate environments and experiences for patients and families. Whom might you thank and recognize?

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CCH, foundation working together again to look at possibility of reopening Hospice House

10/25/24 at 03:40 AM

CCH, foundation working together again to look at possibility of reopening Hospice House Gillette News Record, Gillette, WY; by News Record Staff; 10/24/24 Campbell County Health and the Northeast Wyoming Community Health Foundation are back at the table again to explore the feasibility of reopening the Close to Home Hospice House. According to press releases sent out Wednesday from both groups, this initiative aims to enhance inpatient hospice services by reopening a home that facilitates end-of-life support, providing a compassionate space for individuals to receive care with dignity. “We are considering this in partnership with a third-party operator,  which will be discussed and decided upon collaboratively,” the press releases read. “Our primary focus is the well-being of our community, and we are committed to transparency as we engage in these preliminary discussions." 

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Louisiana partners with Elizabeth Dole Foundation's Hidden Heroes Campaign

10/25/24 at 03:10 AM

Louisiana partners with Elizabeth Dole Foundation's Hidden Heroes Campaign Audacy.com; by Laine Griffin; 10/24/24 Louisiana Gov. Jeff Landry announced last week his support for the more than 100,000 military and veteran caregivers in the state by joining the Elizabeth Dole Foundation’s Hidden Heroes Campaign. The campaign’s goal is to raise awareness and bring critical resources to military and veteran caregivers, who are referred to as hidden heroes and care for wounded, ill or injured service members and veterans. ... Currently, there are 2.3 military and veteran caregiver children and 14.3 million military and veteran caregivers who care for America’s wounded, ill, or injured veterans or service members, according to the foundation’s website. ... The 14.3 million military and veteran caregivers provide care valued at a minimum of $119 billion.

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Executive Personnel Changes - 10/25/24

10/25/24 at 03:00 AM

Executive Personnel Changes - 10/25/24 

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Today's Encouragement: Finish strong ...

10/25/24 at 03:00 AM

Finish strong, for Friday is your grand finale, the culmination of a week's worth of dedication and determination. ~ Unknown

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Anxiety grows over telemedicine flexibility extension

10/25/24 at 03:00 AM

Anxiety grows over telemedicine flexibility extension The Hill; by Joseph Choi; 10/24/24 Lawmakers and physicians are growing anxious for COVID-era telemedicine flexibility measures to be extended for a third time, as federal regulators signal a potential tightening of the rules ahead of a deadline at the end of the year. Since 2020, the Department of Health and Human Services and the Drug Enforcement Administration (DEA) have allowed physicians to prescribe schedule II to V controlled substances without in-person medical evaluations. ... Last year, the two agencies extended these flexibility measures through the end of 2024. With December fast approaching, a bipartisan group of lawmakers in both the House and Senate want another round of extensions secured. 

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Farmer in hospice takes one last trip to the farm

10/25/24 at 03:00 AM

Farmer in hospice takes one last trip to the farm Sanford Health; by Mick Garry; 10/23/24 Marvin Miller grew up on a farm near Parker, South Dakota, and then farmed the land himself after his mother and father retired. ... He is being cared for at Sanford Health’s Ava’s House, an acute-level, inpatient hospice facility in Sioux Falls, that provides 24-hour nursing care to patients. When Marvin was asked if he had anything he wanted to see or to do before his health would not permit it, he admitted ... that he would like to see the farm and crops and get another chance to take a tour of Parker, a town of about 1,200, a half-hour southwest of Sioux Falls. ... The staff at Ava’s House quickly began finding a way to make it happen. With financial assistance from the Sanford Health Foundation, they were able to rent a wheelchair van that the Millers could use to make the trip. ... The Millers are grateful the Ava’s House staff made the effort to help Marvin at a difficult time. Just as farming goes outside the scope of a normal job, so does caring for people at Ava’s House. “We’re very appreciative of the staff at Ava’s House,” Paula said. “They’re wonderful people. They set it up and organized the whole trip for us. We got to share a day at the farm with our kids.”

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Michigan HHS to pay $13m after unannounced shooter drill at psych hospital

10/25/24 at 03:00 AM

Michigan HHS to pay $13M after unannounced shooter drill at psych hospital Becker's Hospital Review; by Mariah Taylor; 10/18/24The Michigan Department of Health and Human Services agreed to pay $13 million to settle allegations that it caused psychological damage after conducting a surprise active shooter drill at a children's psychiatric hospital, The Washington Post reported Oct. 17. The Hawthorn Center, based in Northville Township, Mich., is a state-run psychiatric hospital for children with emotional, mood and thought disorders. On Dec. 21, two laborers were instructed by their supervisor to act as armed intruders in an unannounced drill. The two were told to walk around the facility and ensure every room was locked and the people inside were hidden. The receptionist was instructed to announce that there were active shooters in the building and that shots were fired. Neither the staff nor the police were notified a drill was occurring. 911 calls reported the active shooter and 22 police officers rushed to the scene. The two laborers exited the building and were detained while the police sorted out the situation. Employees filed a class action lawsuit in April 2023 against the health department-run facility alleging that the unannounced drill gave them post-traumatic stress and emotional harm. According to the lawsuit, patients acted aggressively toward themselves and others in the subsequent weeks, and staff members experienced increased anxiety and sleep struggles, and some quit their jobs.

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A meal, a smile and a prayer: volunteers venture into the heart of flood-affected areas

10/25/24 at 03:00 AM

A meal, a smile and a prayer: volunteers venture into the heart of flood-affected areaThe Mountaineer, Waynesville, NC; by Brionna Dallara; 10/23/24 Luke Ross and Louisa Koehring peer out their car window as they snaked down Old Clyde Road, muddy piles of flood debris strewn along the shoulders. With a trunk full of hot meals, they scan for flood-stricken homes, looking for people in their yards or signs of anyone home. Their arrival at homes has been a sure sign of hope. Relief sweeps across the flood victims' faces as Luke and Louisa approach their doorsteps with hot meals or a new pack of under garments. The first stop along their route this day is Ronnie Hall, who was stranded for eight days post-Helene, alone with nothing but his two cats — Famous Amos and Snowflake — to keep him company. Not only do the young couple feed him, but offer him friendship. ... Without power and alone for eight days following the flood, with no one but hospice to check on him, Hall said he persevered with the help of his faith.

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Saint Francis Hospital’s Healthy Village creates national social-services healthcare model

10/25/24 at 03:00 AM

Saint Francis Hospital’s Healthy Village creates national social-services healthcare model DelawareLive, Wilmington, DE; by Jarek Rutz; 10/23/24 Saint Francis Hospital hopes a new, unique initiative will be a national model for healthcare. As it celebrates 100 years of service, the hospital is expanding its community outreach to the Wilmington community by launching the Healthy Village at Saint Francis Hospital, which aims to deliver essential social services to those in need. Located in economically challenged neighborhoods, Healthy Villages are designed to enhance the traditional safety net hospital model. “The goal is to create the ultimate one-stop care setting that promotes synergy, diversity, and equity,” said Lillian Schonewolf, executive director of the Healthy Village at Saint Francis, in a YouTube video. Editor's note: See the article we posted yesterday about the importance of community, "Who gets access to a good death?"

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Advance Directives: How to make sure your end-of-life decisions are followed

10/25/24 at 03:00 AM

Advance Directives: How to make sure your end-of-life decisions are followed Bottom Line Inc; by Mathew D. Pauley, JD; 10/24/24 Nearly 40% of older Americans have some form of advance directives, such as a living will to communicate wishes about life-saving treatment…or a medical power of attorney appointing a loved one as proxy if they’re incapacitated.  Problem: Your wishes may not always be followed in real-world situations. Examples: Emergency paramedics typically provide CPR to restart a patient’s heart even if that patient’s living will says otherwise. And complex medical circumstances at the end of life often arise that force your loved ones to make judgment calls about what you really want. Bottom Line Personal spoke to clinical ethicist Mathew Pauley about how to make sure hospitals, medical providers and family members follow your medical wishes.

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Victim of hospice nurse wonders how she could've stolen from them

10/25/24 at 03:00 AM

Victim of hospice nurse wonders how she could've stolen from them NBC News KUSA-TV 9, Denver, CO; Newscast video, reported by Rhea Jha; 10/24/24 A home care hospice nurse has been sentenced to 32 years in prison for stealing more than $100,00 from multiple patients. Victims are wondering how this happened.  ... "That loss of trust, I don't know how you recover from that." Editor's note: This news story identified "All Generations Home Care" as the agency involved, and that they did not respond for comment.

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New FTC regulations could create obstacles for hospice M&A

10/25/24 at 03:00 AM

New FTC regulations could create obstacles for hospice M&A Hospice News; by Jim Parker; 10/24/24 Changes to federal rules governing mergers and acquisitions could have sweeping effects on hospice and other health care transactions. The Federal Trade Commission (FTC) recently finalized a rule that will implement changes to required pre-merger notification forms. Pursuant to the Hart-Scott-Rodino Act, parties to certain transactions must submit these documents to the FTC and other regulatory agencies to help identify and address potential antitrust concerns. The law requires that transactions exceeding $120 million must submit the form, which agencies will use to conduct a 30-day premerger assessment, according to Luke Smith, member at the law firm Bass, Berry and Sims. The final rule will likely complicate the closing of some hospice acquisitions.

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Patient, staff satisfaction biggest ROIs of trauma-informed hospice care

10/25/24 at 03:00 AM

Patient, staff satisfaction biggest ROIs of trauma-informed hospice care Hospice News; by Holly Vossel; 10/23/24 Improved patient and staff satisfaction are among the most significant returns on investment for hospices that are pouring greater resources into trauma-informed training. The ability to build a trusting relationship with patients and their families is a key skill set for any hospice professional to possess, but one that takes on a profoundly different meaning when caring for survivors of abuse, violence and trauma. This is according to Amber Ash, pediatric hospice and palliative care social worker at Ohio-based Hospice of the Western Reserve. Trauma-informed education should be a normalized part of hospice’s interdisciplinary training to help staff recognize and respond to a range of experiences, Ash indicated. This type of training can help provide opportunities for improved goal-concordant care while also aligning with staff’s professional goals and personal values, she stated. 

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Safety first: How to ward off health care facility violence

10/25/24 at 02:00 AM

Safety first: How to ward off health care facility violence SmartBrief; by Julia M. Johnson; 10/23/24Panelists on an American Hospital Association webinar highlight ways in which hospitals and practices can protect their patients and themselves. ... The American Hospital Association recently hosted a webinar about what hospitals and practices need to know to protect themselves, staff members and patients. “Understanding Origins of Violence in Health Care Facilities” featured Jason Grellner of Evolv Technology and Drew Neckar of Cosecure. Both panelists spoke candidly about technology, terminology and steps that can be taken to dial down the danger at health care facilities.  

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SSM Health at Home joins Wisconsin Hospice & Palliative Care Collaborative

10/24/24 at 03:30 AM

SSM Health at Home joins Wisconsin Hospice & Palliative Care Collaborative Hospice News; by Jim Parker; 10/22/24 The home health and hospice provider SSM Health at Home has joined the Wisconsin Hospice & Palliative Care Collaborative (WHPCC). SSM Health at Home is part of the SSM Health System. Headquartered in Missouri, the system also services patients in Illinois, Wisconsin and Oklahoma. WHPCC was incorporated as a 501c3 organization in 2021. The collaborative includes members Agrace, Rainbow Hospice Care, Unity Hospice, Adoray Home Health & Hospice, Hospice Alliance and Sharon S. Richardson Community Hospice. Their combined geographic footprint covers 80% of the state.

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New hospice special focus program

10/24/24 at 03:00 AM

New hospice special focus programAmerican Health Association / National Center for Assisted Living; by Amy Miller; 10/22/23 ​​As required under the Consolidated Appropriations Act of 2021, CMS has established a hospice special focus program (SFP) in the Calendar Year (CY) 2024 Home Health Prospective Payment System (HH PPS) final rule (88 FR 77676). Through increased regulatory oversight and enforcement of the selected poor performing hospice programs, the SFP will address issues that could place hospice beneficiaries at risk of receiving poor quality of care. The hospice SFP is like the current Special Focus Facility (SFF) program in place for nursing homes. As many nursing homes refer residents to hospice programs and may receive questions from residents or their families, it will be important to keep informed if there are noted quality of care issues. 

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Funding approved for homeless hospice program

10/24/24 at 03:00 AM

Funding approved for homeless hospice program SacCountyNews, Sacramento, CA; by Janna Haynes; 10/22/24 The Board approved, at its Oct. 22nd meeting, up to $1,137,788 in funding to complete construction on Joshua House, a facility that provides end-of-life comfort care for homeless individuals with terminal illnesses, after being discharged from an acute care hospital. Joshua’s House specifically provides a location for homeless patients to receive home-like hospice services when they, by definition, do not have a home to receive such care and may otherwise be unsheltered at the time of passing. Joshua’s House provides shelter, food, clothing and certain volunteer comfort services. In addition, YoloCares will provide licensed expert/specialized end-of-life care for individuals and families facing a life-limiting illness. Yolo Cares has provided high-quality hospice care across the six-county region for nearly 50 years. YoloCares also recently became an enhanced Care Management and Community Supports provider through CalAIM.

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Today's Encouragement: You know you're an adult when ...

10/24/24 at 03:00 AM

If opportunity doesn't knock, build a door. ~ Milton Berle

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Senator Lorraine R. Inouye announces release of $200,000 for Hospice of Hilo Improvements

10/24/24 at 03:00 AM

Senator Lorraine R. Inouye announces release of $200,000 for Hospice of Hilo Improvements Hawai'i State Senate; 10/22/24Senator Lorraine R. Inouye (District 1 – Hilo, Paukaʻa, Papaikou, Pepeʻekeo) is pleased to announce that Governor Josh Green has released $200,000 in capital improvement project Grant-in-Aid funds for the Hospice of Hilo. ... “This funding will significantly improve the facilities and services at Hospice of Hilo, ensuring they can continue to provide critical care to our community,” said Senator Lorraine R. Inouye. “Supporting organizations like Hospice of Hilo helps build a stronger, more compassionate future for Hawaiʻi ..."

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