Literature Review
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12/02/24 at 03:00 AMStart your day with Hospice & Palliative Care's new Search Engine
Seen Health invests $22m for PACE Care Centers
12/02/24 at 03:00 AMSeen Health invests $22m for PACE Care Centers HomeCare, Los Angeles, CA; by Seen Health; 11/26/24 Seen Health, a health care organization focusing on aging-in-place services and culturally-focused care models, announced it has invested $22 million in funding to expand access to its culturally-focused care centers for eligible seniors. The company said [its] first center is set to open in California and will be built upon the Program of All-Inclusive Care for the Elderly (PACE) model. The PACE model aims to deliver comprehensive medical and social support for seniors with chronic conditions who are covered by Medicaid or Medicare. The care model intends to provide an alternative method of care to nursing homes by enabling seniors to stay in their homes and age in place. ... The first Seen Health center, which is set to open in Los Angeles County's San Gabriel Valley, intends to serve the local Asian and Pacific Islander community.
Ensuring equity in access to palliative care
12/02/24 at 03:00 AMEnsuring equity in access to palliative care AJMC - The American Journal of Managed Care; by Laura Joszt, MA and Alexandra Gerlach; 11/28/24 Palliative care provides high-quality care that can provide relief from the symptoms of a serious illness, but just as there are issues to accessing cancer treatments, there are barriers to palliative care, as well as racial disparities in access, explained Nadine J. Barrett, PhD, MA, MS, FACCC, senior associate dean for community engagement and equity in research, Wake Forest University School of Medicine and Atrium Health, and current president of the Association of Cancer Care Centers (ACCC). ... There are misconceptions about what palliative care is that may limit the utilization of it, but also existing disparities mean fewer Black and Hispanic individuals access these services compared with their White counterparts.
Carolina Caring Robin Johnson House welcomes new patient in aftermath of Hurricane Helene
12/02/24 at 03:00 AMCarolina Caring Robin Johnson House welcomes new patient in aftermath of Hurricane Helene Hickory Daily Record, Hickory, NC and Carolina Caring; by Carolina Caring; 11/27/24 A hospice patient seeking immediate safety after the devastating impacts of Hurricane Helene received vital care thanks to the newly established partnership between CaroMont Health and Carolina Caring. ... Among those affected was 84-year-old Grace, a hospice patient requiring critical medications and oxygen. She was airlifted from her hometown of Burnsville, NC, to temporary shelter at the Catawba Valley Community College Tarlton Complex in Hickory, NC. In dire need, Catawba County Emergency Medical Services reached out to Carolina Caring for assistance, as Grace was rapidly depleting her medication and oxygen supplies. Within 48 hours of the initial call, Grace was successfully transferred to hospice care at the Carolina Caring Robin Johnson House. Though she felt anxious upon her arrival, Grace was comforted by the attentive support of Carolina Caring staff. When asked about the quality of care that she received, Grace described her experience as “wonderful.” “I don’t like being away from home even when I’m sick,” she shared. “... I felt wanted and loved. If I could say anything to the nurses, it’s that I love and appreciate what they’ve done.” This accommodation was made possible by a recent partnership established between CaroMont Health and Carolina Caring. On October 1st, CaroMont Health and Carolina Caring launched a strategic partnership, with Gaston Hospice now operating under the name Carolina Caring. ...
Understanding deep disadvantage at the end of life: A nationwide analysis of unclaimed deaths
12/02/24 at 03:00 AMUnderstanding deep disadvantage at the end of life: A nationwide analysis of unclaimed deaths Social Science and Medicine; by Jennifer Bridte DrPH, Frank Heiland, PhD, and Deborah Balk PhD; 11/25/24 This is the first systematic examination of unclaimed deaths at the county level and offers a novel way to understand marginalized populations, such as the unhoused and others living in extreme social or economic deprivation. Unclaimed death rates may also provide an objective measure of social support that can be measured over time. ... This is of public health importance because unclaimed death can be seen as a negative health outcome that may be the result of cumulative disadvantage over the life course. ... Highlights:
Softly into the night - An end of life love story
12/02/24 at 03:00 AMSoftly into the night - An end of life love story Billings Gazette, Billings, MT; by Joseph Scheller; 11/29/24 This is a picture story about life — of joys and sadness, of challenges and struggles and sacrifice. It’s a story about dementia and caregiving. It’s a story about souls and spirit and deepening devotion. Mostly, though, this is a love story. It begins with Wayne Roberts, a big and burley guy with a Harley but as personable and approachable as they come. ... It was simple, really. When he wasn’t at work, he was caring for his wife, Lynne, who had onsets of dementia. When he was at work, he was thinking of her. I wasn’t looking for a story about caregiving but there was a warmth and openness about Wayne and Lynne that tugged me to tell one through my camera. ... [With] their comfort and trust, I became part of their world, in a way, and was able to photograph most anything. They were mostly simple scenes of daily living and caring, some sensitive, some not, and as dementia stole more and more of Lynne’s mind, her world got smaller and Wayne was her only gateway to it. He paved it with tenderness. ... [Click on the title's link to see photos and read this inspirational story.]
Today's Encouragement: Hello December ...
12/02/24 at 03:00 AMHello December, you are the last one, so be the best one. ~ Anonymous
Tidewell Foundation volunteers give back during Thanksgiving
12/02/24 at 03:00 AMTidewell Foundation volunteers give back during Thanksgiving Observer, Sarasota, FL; by Jay Heater; 11/29/24Those in the parking lot of the Tidewell Hospice administration building the day before Thanksgiving in Lakewood Ranch weren't focused on the "being thankful" part of the holiday. They were concentrating on the "giving back" part. The Tidewell Foundation's fifth annual Meal Drive provided more than 500 meals that were delivered through Manatee, Sarasota, DeSoto and Charlotte counties to provide, in many cases, what might be the last holiday meal a couple or family would be able to share. Morton's Gourmet Market, the Venice Yacht Club and Michael's on East made the meals possible and then volunteers packed and delivered the meals Nov. 27. Among those in the parking lot was Bradenton's Terry Dale, who was volunteering in the event for the first time. "I am trying to give back," Dale said as she was busy handing out meals to other volunteers who drove up to take care of the delivery. "Two years ago, these people (Tidewell Hospice) were a godsend." Her husband of 47 years, Bill Dale, died at that time and Terry Dale doesn't know how she would have made it through without Tidewell Hospice. She knew the importance of the food that was being sent out with the volunteers.
VFW makes another large donation to Hospice [of the Panhandle]
12/02/24 at 03:00 AMVFW makes another large donation to Hospice [of the Panhandle] The Morgan Messenger; by TMM Editor; 11/26/24 The VFW Post 4019 hosted a chili cookoff in November with $17,000 of proceeds going to Hospice of the Panhandle. “We greatly appreciate what you do for veterans,” said Commander Arthur Schur.
Breaking free from self-doubt: A guide to authentic leadership and communication
12/02/24 at 03:00 AMBreaking free from self-doubt: A guide to authentic leadership and communication Forbes - Leadership; by Lynn Smith; 11/27/24 In my years of coaching hundreds of top executives, entrepreneurs and CEOs, I've noticed a persistent challenge that holds many back from their full potential as leaders and communicators: self-doubt. This inner critic—what I call the "Brain Bully"—creates a constant stream of negative self-talk. Even the most accomplished leaders wrestle with thoughts like "What if I say the wrong thing?" or "What if I don't sound smart?" These are exact quotes from some of my clients. The larger issue is that inner dialogue was preventing those leaders from communicating clearly and concisely. The self-doubt in their head was reading all across their faces and through their body language. In a time when 93% of communication is weighed by nonverbal cues, we had to do something about this. ... [Click on the title's link to continue reading.]
[Great Britain] British lawmakers give initial approval to a bill to allow terminally ill adults to end their lives
12/02/24 at 03:00 AM[Great Britain] British lawmakers give initial approval to a bill to allow terminally ill adults to end their lives AP - The Associated Press, London, UK; by Brian Melly and Pan Pylas; 11/29/24 British lawmakers gave initial approval on Friday to a bill to help terminally ill adults end their lives in England and Wales, following an impassioned debate that saw people sharing personal stories of loss and suffering. Members of Parliament approved the assisted dying bill by a 330-275 vote, signaling their approval in principle for the bill, which will undergo further scrutiny before it goes to a final vote. Friday's vote came after hours of debate — emotional at times — that touched on issues of ethics, faith and law. There was no braying and shouting that often marks debates in the House of Commons and speeches were considered respectfully and heard in silence. ... Supporters said the law would provide dignity to the dying and prevent suffering, while protecting the vulnerable. Opponents said the disabled and elderly were at risk of being coerced, directly or indirectly, to end their lives to save money or relieve the burden on family members. Others called for the improvement of palliative care to ease suffering as an alternative.
Giving Tuesday is tomorrow!
12/02/24 at 02:00 AMGiving Tuesday is tomorrow!We'd like to highlight several ways you can particpate in Giving Tuesday tomorrow, including:
Don’t let CMS publish list of lowest-performing hospices, Alliance tells lawmakers
12/02/24 at 02:00 AMDon’t let CMS publish list of lowest-performing hospices, Alliance tells lawmakers McKnights Home Care; by Liza Berger; 11/26/24 Acting on its plan to keep the hospice Special Focus Program in the spotlight until the end of the year, the National Alliance for Care at Home has sent congressional leaders a letter urging them to remedy the grading system for the Centers for Medicare & Medicaid Services’ program targeting underperforming hospices. “CMS is on the verge of publishing a list of what they claim will be poor-performing hospices based on this flawed grading system,” Ken Albert, president and CEO of Andwell Health Partners and chair of the Alliance, wrote in a Nov. 22 letter to chairmen and ranking members of House and Senate finance committees. “When you see this list, you should view it skeptically, because CMS will have committed a grave error that risks steering patients away from reputable hospices that may be on the list and toward providers that — because they may not have been surveyed at all — could be low-quality or completely fraudulent.”
Health system C-suites channel 'hospitality energy' for next year
12/02/24 at 02:00 AMHealth system C-suites channel 'hospitality energy' for next year Becker's Hospital Review; by Laura Dyrda; 11/27/24 Health system C-suites are taking their organizations "back to the basics" next year to focus on improving quality outcomes and creating an elite patient experience. This means prioritizing a culture of service and training staff in hospitality. Cliff Megerian, MD, CEO of University Hospitals in Cleveland, said the system has focused on reducing variation in care pathways and optimizing clinical services for maximum quality, safety and efficiency this year, an effort that will continue into 2025. University Hospitals is also doubling down on its reputation for compassionate care, said Dr. Megerian. "The goal is for our patients – our guests – to feel truly cared for at each touchpoint along the patient journey, with clinical and non-clinical caregivers alike both bearing the responsibility to make this happen," he said. "The word 'hospitality' has at its root the word 'hospital' — it's our goal to work to bring that 'hospitality' energy to our work in healthcare, always informed by world-class science."Editor's note: The Latin root word described is "hospitium," which branched into contemporary words "hospitality," European "hostels" for travelers, "host," "hotels," and yes, "hospice." At its core, hospitium refers to travelers on a significant life journey, tended by compassionate hosts who provide rest and nourishment. Click here for more information, which emphasizes the relationship between the host and the guest.
Palliative care bypasses Black heart disease patients
12/02/24 at 02:00 AMPalliative care bypasses Black heart disease patients The St. Louis American; by Alvin A. Reid; 11/30/24 A study by Saint Louis University researchers paints a grim picture for many heart failure patients in America – and the outlook is worse for African Americans. The study, published in the Journal of the American Heart Association, found that only one in eight patients with heart failure nationwide receive palliative care consultations within five years of diagnosis. Alarmingly, Black people were 15% less likely to receive palliative care compared to white patients with similar heart health illness. Other recent respective studies illustrate the higher risk and mortality rates for cardiovascular disease in the Black population – further demonstrating that the missing palliative care options have a greater negative impact on African American health. New statistics from a medical team at EHproject show African American women are at a greater risk for cardiovascular disease than their white counterparts. It found that 47.3% of Black women have heart disease. If they do not have it currently, they are 2.4 times more likely to develop heart disease. ... A March 2023 study published in JAMA Cardiology showed that Black men remain at the highest risk of dying from cardiovascular disease. ...
Q&A: Prioritizing health equity with Emory Healthcare’s Chief Transformation Office
12/01/24 at 03:55 AMQ&A: Prioritizing health equity with Emory Healthcare’s Chief Transformation Office CDW Healthcare - Patient-Centered Care; by Teta Alim; 11/19/24 Most healthcare organizations regularly prioritize goals to improve the patient experience and increase clinician satisfaction, aligning with the Quintuple Aim. Atlanta-based Emory Healthcare created the role of chief transformation officer to focus on these areas, and in July 2023, Dr. Amaka Eneanya became the first to fill the role. ... What would you say were the top three lessons you learned during the first year in your new role? ENEANYA: It's been a great year. For lesson one, as someone coming from a different part of the U.S., ingraining yourself and getting to know the people and the culture of the organization that you’re in, that’s important to determine the change readiness of an organization. ... The second lesson is that change is exciting. There's a lot of trepidation with change, and part of being effective with change management and transformation is really garnering excitement. ... The third lesson that continues to be pervasive in my career is that health equity is poorly understood. ... You have to start with the basic foundation and concepts of health equity before you can make initiatives, otherwise people won't understand what you're doing, and they might have a visceral response to what you're doing because of the misinformation around health equity.
Thanksgiving reflections: Gratitude and grieving in hospice care
12/01/24 at 03:50 AMThanksgiving reflections: Gratitude and grieving in hospice care Faith Hope Hospice & Palliative Care, Pasadena, CA; 11/20/24Thanksgiving is traditionally a time for joy and gratitude, but it can bring mixed emotions for families with a loved one in hospice care. In the diverse communities of Los Angeles, Beverly Hills, and Hollywood, Faith and Hope Hospice provides compassionate guidance on how to balance grief with gratitude, helping families find moments of peace and connection during this reflective time. ... Gratitude can be a healing force, offering comfort to those grappling with loss. In hospice care, where families confront profound challenges, finding space for gratitude can significantly impact emotional and psychological well-being, fostering resilience and a sense of peace.
Keeping referral partners happy after dropping contracts with Medicare Advantage plans
12/01/24 at 03:45 AMKeeping referral partners happy after dropping contracts with Medicare Advantage plans Home Health News; by Audire Martin; 11/25/24 Home health providers may walk away from specific health plans due to financial feasibility, administrative burdens, or misalignment with their patient care values and priorities. However, this decision can create short-term challenges with referral partners and health systems, as they may have patients enrolled in those plans. “If a health plan consistently under-reimburses for services or requires excessive administrative hurdles, it may compromise the ability to deliver quality care efficiently,” Preston Lucas, chief financial officer at Interim HealthCare Great Lakes, told Home Health Care News. “Additionally, if the plan’s policies restrict access to necessary treatments or fail to support the level of care required for patients, it becomes difficult to sustain the partnership.” ... Maintaining open lines of communication and emphasizing the shared goal of providing high-quality care helps mitigate the short-term consequences of leaving a health system, according to Lucas.
OIG issues nursing facility industry segment-specific Compliance Program Guidance; first in a series in Furtherance of its Modernization Initiative
12/01/24 at 03:40 AMOIG issues nursing facility industry segment-specific Compliance Program Guidance; first in a series in Furtherance of its Modernization Initiative Butzel - Attorneys and Counselors Client Alerts; 11/22/24 On November 20, 2024, the U.S. Department of Health & Human Services, Office of Inspector General (“OIG”) issued the first Industry Segment-Specific Compliance Program Guidance (“ICPG”), which applies to the Nursing Facility Industry. This follows from the OIG’s Modernization Initiative to update publicly available resources for the healthcare industry first announced in September 20211 and finalized in April 2023. This ICPG comes just over a year after the OIG issued the General Compliance Program Guidance (“GCPG”) that kicked off the OIG’s efforts to modernize and consolidate numerous Compliance Program Guidance documents issued between 1998 and 2008. Editor's note: Click here to download the U.S. HHS OIG's 59-page November 2024 "NURSING FACILITY Industry Segment-Specific Complicance Program Guidance." A word search finds 30 references to "hospice."
United Hospice celebrates success with “A Night in the Catskills" [$215,000]
12/01/24 at 03:35 AMUnited Hospice celebrates success with “A Night in the Catskills" [$215,000] MidHudson News, Hudson Valley, NY; by News Staff; 11/24/24 In late October United Hospice held its annual gala, “A Night in the Catskills” and a silent auction at the Hilton Pearl River which drew more than 300 attendees and was the most successful gala in the organization’s history, raising more than $215,000. During the event, CEO Cara Pace recalled all of United Hospice’s achievements this past year, including the successful start of a new and innovative program, Living Well New York, in which palliative physicians make recommendations to patients’ primary care teams that will ultimately improve the quality of life for every patient and their families who participate in the program.
If my dying daughter could face her mortality, why couldn’t the rest of us?
12/01/24 at 03:30 AMIf my dying daughter could face her mortality, why couldn’t the rest of us? DNYUZ, appearing first in The New York Times; Ms. Wildman; 11/25/24 The first week of March 2022, I flew to Miami with my 13-year-old daughter, Orli; her 8-year-old sister, Hana; and my partner, Ian. We were, by all appearances, healthy. Robust, even. In reality, we were at the end of a reprieve. Orli’s liver cancer had by then been assaulted by two years of treatments — chemotherapy, a liver transplant, more chemotherapy, seven surgeries. Now new metastases lit up a corner of one lung on scans, asymptomatic but foreboding. We asked her medical team if we might show her a bit of the world before more procedures. Our oncologist balked. Hence, this brief weekend away. When we arrived at the beach Orli ran directly to the water, then came back and stretched out on a lounge chair. She turned to me and asked, “What if this is the best I ever feel again?” Three hundred and seventy-six days later, she was dead. In the time since she left us, I have thought often of Orli’s question. All that spring, Orli asked, pointedly, why did we think a cure was still possible, that cancer would not continue to return? Left unspoken: Was she going to die from her disease? It was a conversation she wanted to have. And yet what we found over the wild course of her illness was that such conversations are often discouraged, in the doctor’s office and outside it. ... [Click on the title's link to continue reading this profound story.]Editor's note: While families are gathered for Thanksgiving, many health changes will be observed since this time last Thanksgiving, with countless unknowns to unfold until Thanksgiving next year. Tune into the wide scope of conversations that people do want to have, don't want to have, and--perhaps--that your own family needs to have, with grace and care for all.
Differences in drug shortages in the US and Canada
12/01/24 at 03:25 AMDifferences in drug shortages in the US and CanadaJAMA; Mina Tadrous, PharmD, PhD; Katherine Callaway Kim, MPH; Inmaculada Hernandez, PharmD, PhD; Scott D. Rothenberger, PhD; Joshua W. Devine, PharmD, PhD; Tina B. Hershey, JD, MPH; Lisa M. Maillart, PhD; Walid F. Gellad, MD, MPH; Katie J. Suda, PharmD, MS; 10/24There are persistent global drug shortages, in part because drug-related supply chains are increasingly globalized; these drug shortages are associated with delayed or missed treatment and adverse outcomes. In addition, pandemics and natural disasters disrupt global drug production, further affecting supply chains. [In this study from the years 2017-2021] drug-related reports of supply chain issues were 40% less likely to result in meaningful drug shortages in Canada compared with the US. These findings highlight the need for international cooperation between countries to curb the effects of drug shortages and improve resiliency of the supply chain for drugs.
Dialysis facility staffing ratios and kidney transplant access among adolescents and young adults
12/01/24 at 03:20 AMDialysis facility staffing ratios and kidney transplant access among adolescents and young adultsJAMA; Alexandra C. Bicki, MD, MPH; Barbara Grimes, PhD; Charles E. McCulloch, PhD; Timothy P. Copeland, MPP, PhD; Elaine Ku, MD, MAS; 10/24In this study of adolescents and young adults treated at US dialysis facilities, patients at facilities with higher patient to staff ratios had lower incidence of waitlisting and kidney transplant compared with those receiving care at facilities with lower patient to staff ratios. The effect size for the incidence of transplant was similar with respect to both patient to nurse and patient to social worker staffing ratios, but patient to nurse ratio was not statistically significantly associated with the incidence of waitlisting.
Elevate Podcast: Marianne Muzic-Lucenti, LCSW, ACHP-SW, APHSW-C, Palliative Care Program Manager, St. Mary’s Healthcare System
12/01/24 at 03:15 AMElevate Podcast: Marianne Muzic-Lucenti, LCSW, ACHP-SW, APHSW-C, Palliative Care Program Manager, St. Mary’s Healthcare System Hospice News; by Mick Stahlberg; 11/25/24 In this episode, Hospice News Senior Editor Jim Parker speaks with Marianne Muzic-Lucenti, manager of one of the oldest pediatric palliative care programs in the nation, at St. Mary’s Healthcare System in Queens, New York City. The discussion profiles the program and looks at the outlook for palliative care for 2025.