Literature Review
Palliative care doctor: What dying feels like
02/25/24 at 03:05 AMPalliative care doctor: What dying feels like Mind Matters, by Denyse O'Leary; 2/15/24What does dying actually feel like? Most human beings have always believed that the essence of a human being survives the death of the body though the outcome is envisioned in a variety of ways. But, assuming that pain and distress are controlled, what does dying actually feel like? Can science tell us anything about that?
Sunday Newsletters
02/25/24 at 03:00 AMSunday NewslettersTop read stories of the last week (in order) is the focus of Sunday newsletters - enjoy!
Today's Encouragement: from James Earl Jones
02/25/24 at 03:00 AMOne of the hardest things in life is having words in your heart that you can't utter. — James Earl Jones
Today's Encouragement - from Kareem Abdul-Jabbar
02/24/24 at 04:00 AMI think the good and the great are only separated by the willingness to sacrifice. — Kareem Abdul-Jabbar
The impact of early palliative care interventions on the utilization of medical care resources for end-of-life patients
02/24/24 at 03:50 AMThe impact of early palliative care interventions on the utilization of medical care resources for end-of-life patientsResearch Square (not peer reviewed; under review by BMC Palliative Care), by Chia-Chia Lin, Tsing-Fen Ho, Chang-Hung Lin, Nu-Man Tsai Tsai, Yu-Hung Kuo, Ju-Huei Chien; 2/12/24(Taiwan) Patients at the end-of-life who received palliative care experienced a reduced incidence of aggressive medical interventions before death. These encompassed activities such as stays in the intensive care unit, cardiopulmonary resuscitation, endotracheal intubation, respiratory ventilator support, and blood transfusions.
Predicting end-of-life in a hospital setting
02/24/24 at 03:45 AMPredicting end-of-life in a hospital settingJournal of Multidisciplinary Healthcare, by Gezy Weita Giwangkancana, Heni Nur Anina, Hadyana Sukandar; 2/9/24(Indonesia) [Early Warning Score] and decreased consciousness are significant predictors of in-hospital mortality. It is crucial in clinical setting to use multiple indicators to predict death and improve patient care.
Leadership core competencies in palliative care — Recommendations from the European Association for Palliative Care: Delphi Study
02/24/24 at 03:40 AMLeadership core competencies in palliative care — Recommendations from the European Association for Palliative Care: Delphi StudyJournal of Palliative Medicine, by Olivia Parczyk, Gerrit Frerich, Martin Loučka, Raymond Voltz, Sheila Payne; 2/14/24The eight domains [of leadership: research, advocacy and media, communication, teamwork, project management, organizational learning and sustainability, leading change, and personal traits] provide evidence for teaching of leadership competencies in palliative care. We recommend that exploring, identifying, and integrating leadership competencies in palliative care are given more attention in educational curricula and in training interventions.
Ethics at the end of life in the newborn intensive care unit: Conversations and decisions
02/24/24 at 03:35 AMEthics at the end of life in the newborn intensive care unit: Conversations and decisionsSeminars in Fetal and Neonatal Medicine, by Mark R. Mercurio, Lynn Gillam; 6/23The unexpected birth of a critically ill baby raises many ethical questions for neonatologists. Some of these are obviously ethical questions, about whether to attempt resuscitation, and, if the baby is resuscitated and survives, whether to continue life sustaining interventions. Other ethical decisions are more related to what to say rather than what to do. Although less obvious, they are equally as important, and may also have far-reaching ramifications... This may serve as a helpful guide for ethical deliberation, and helpful scripting for parental discussion, in similar cases.
Pain management education for rural hospice family caregivers: A pilot study with embedded implementation evaluation
02/24/24 at 03:30 AMPain management education for rural hospice family caregivers: A pilot study with embedded implementation evaluationAmerican Journal of Hospice & Palliative Medicine, by Lauren T. Starr, PhD, MBE, RN; Karla T. Washington, PhD, MSW; JoAnn Jabbari, MSN, RN; Jacquelyn J. Benson, PhD, MA; Debra Parker Oliver, PhD, MSW; George Demiris, PhD, FACMI; John G. Cagle, PhD, MSW; 7/23Assessing and managing hospice patients’ pain is a common source of anxiety among hospice familycaregivers, especially caregivers in rural communities who face special challenges including distance, limited access, and concerns about opioid misuse... A multisite clinical trial of Ready2Care is warranted; however, its success may require more effective recruitment and retention strategies for rural caregiver participants.
What aspects of quality of life are important from palliative care patients’ perspectives? A framework analysis to inform preference‑based measures for palliative and end‑of-life settings
02/24/24 at 03:25 AMWhat aspects of quality of life are important from palliative care patients’ perspectives? A framework analysis to inform preference‑based measures for palliative and end‑of-life settingsThe Patient - Patient-Centered Outcomes Research, by Nikki McCaffrey, Julie Ratcliffe, David Currow, Lidia Engel, Claire Hutchinson; 11/23Existing, popular, preference-based outcome measures such as the EQ-5D do not incorporate the most important, patient-valued, quality-of-life domains in the palliative and end-of-life settings. Development of a new, more relevant and comprehensive preference-based outcome measure could improve the allocation of resources to patient-valued services and have wide applicability internationally.
Clinician perception of likelihood of death in the next year is associated with 1-Year mortality and hospice use among older adults receiving home health care
02/24/24 at 03:20 AMClinician Perception of Likelihood of Death in the Next Year Is Associated With 1-Year Mortality and Hospice Use Among Older Adults Receiving Home Health CareJournal of Palliative Medicine, by Zainab Toteh Osakwe, Evan Bollens-Lund, Yihan Wang, Christine S Ritchie, Jennifer M Reckrey, Katherine A Ornstein; 2//12/24HHC clinician perception of patients' risk of death or decline is associated with 1-year mortality. A better understanding of HHC patients at high risk for mortality can facilitate improved care planning and identification of homebound older adults who may benefit from hospice.
Drugs, delirium, and ethics at the end of life
02/24/24 at 03:15 AMDrugs, delirium, and ethics at the end of lifeJournal of the American Geriatric Society, by Columba Thomas, MD; Yesne Alici, MD; William Breitbart, MD; Eduardo Bruera, MD; Liz Blackler, MBE, LCSW-R; Daniel P. Sulmasy MD, PhD; 1/24For older persons with delirium at the end of life, treatment involves complextrade-offs and highly value-sensitive decisions. The principles of beneficence,nonmaleficence, respect for autonomy, and justice establish important parametersbut lack the structure necessary to guide clinicians in the optimal management ofthese patients. We propose a set of ethical rules to guide therapeutics—the canonsof therapy—as a toolset to help clinicians deliberate about the competing concernsinvolved in the management of older patients with delirium at the end of life.
Patient navigator intervention to improve palliative care outcomes for Hispanic patients with serious noncancer illness: A randomized clinical trial
02/24/24 at 03:10 AMPatient navigator intervention to improve palliative care outcomes for Hispanic patients with serious noncancer illness: A randomized clinical trialJAMA Internal Medicine, by Stacy M Fischer, Sung-Joon Min, Danielle M Kline, Kathleen Lester, Wendolyn Gozansky, Christopher Schifeling, John Himberger, Joseph Lopez, Regina M Fink; 2/12/24In this randomized clinical trial, a culturally tailored patient navigator intervention did not improve QOL for patients. However, the intervention did increase ACP engagement, AD documentation, and hospice utilization in Hispanic persons with serious medical illness.
Disparities in the geographic distribution of palliative care specialists in 2022
02/24/24 at 03:05 AMDisparities in the geographic distribution of palliative care specialists in 2022Journal of General Internal Medicine, by Julia L Frydman, Karen McKendrick, Yingtong Chen, Jonathan Wun, Nathan E Goldstein, R Sean Morrison, Laura P Gelfman; 2/12/24In 2022, the number of HPM board-certified clinicians was 8,935 (6,448 = physicians (72.2%); 2,487 = NPs (27.8%)), which represents 0.7% of the NP workforce and 0.6% of the physician workforce... Our study highlights the uneven geographic distribution of board-certified HPM clinicians, which depends on state, metropolitan status, and area-level SES.
Saturday Newsletters
02/24/24 at 03:00 AMSaturday NewslettersResearch literature is the focus of Saturday newsletters - enjoy!
Planning Ahead: Medicare, Medicaid or Hospice for at-home care
02/23/24 at 03:00 AMPlanning Ahead: Medicare, Medicaid or Hospice for at-home careThe Mercury, by Janet Colliton; 2/21/24If you are seeking at-home care assistance for a family member that is paid either in full or in part by the government, you can find that the system is complicated and, unless your loved one fits within one of the designated categories, you may be limited to paying from your family member’s asset or your own. Here are some of the differences and criteria.Editor's Note: This concise, user-friendly article by a Certified Elder Law Attorney provides simple descriptions of this all-important information. What Hospice Medicare information does your staff need to know and use? What clarity do you provide to the public / community you serve?
Today's Encouragement: from Ava DuVernay
02/23/24 at 03:00 AMWhen we’re talking about diversity, it’s not a box to check. It is a reality that should be deeply felt and held and valued by all of us. — Ava DuVernay
New outlook report shows home-based care providers bullish on near-term revenue opportunities in the year ahead
02/23/24 at 03:00 AMNew outlook report shows home-based care providers bullish on near-term revenue opportunities in the year aheadWTWH Media LLC, by Marshall Matheson; 2/20/24Home Health Care News, a WTWH Media publication, has released the results of its 2024 Home-Based Care Outlook Survey, identifying the top challenges and opportunities for home-based care providers in the year ahead.
Mental health service integration in hospice organizations: A national survey of hospice clinicians and medical leadership
02/23/24 at 03:00 AM
Other Business Headlines of Interest, updated 2/22/24 per nasdaq.com
02/23/24 at 03:00 AMOther Business Headlines of Interest, updated 2/22/24 per nasdaq.com
AHCA/NCAL CEO Mark Parkinson announces retirement
02/23/24 at 03:00 AMAHCA/NCAL CEO Mark Parkinson announces retirementMcKnights Senior Living, by Lois A. Bowers; 2/20/24Mark Parkinson will retire from his position as president and CEO of the American Health Care Association and National Center for Assisted Living effective Jan. 15, 2025, the groups announced today. He has been at the helm of AHCA/NCAL since January 2011.
Exploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversations
02/23/24 at 03:00 AMExploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversationsNurs Older People, by Stacey Dodson; 2/21/24Findings: Frailty appeared to be complex, multifaceted and at times difficult to identify. A diagnosis of severe frailty did not necessarily prompt advance care planning and end of life care conversations. Such conversations were more likely to happen if the person had comorbidities, for example cancer. Prognostication appeared to be challenging, partly due to the gradual and uncertain trajectory in frailty and a lack of understanding, on the part of healthcare professionals, of the condition and its effects.
Woman tried to kill 88-year-old father in hospice by choking him
02/23/24 at 03:00 AMWoman tried to kill 88-year-old father in hospice by choking himDeerfield Beach, FL Local News 10; 2/21/23 A Deerfield Beach woman is facing three felony charges, including attempted murder, after deputies said she tried to choke her 88-year-old father to death while he was under hospice care.
Psychological issues in palliative care: Elissa Kozlov and Des Azizoddin
02/23/24 at 03:00 AMPsychological issues in palliative care: Elissa Kozlov and Des AzizoddinGeriPal podcast, by Alex Smith; 2/22/24Today we talk with two psychologists who are deeply invested in addressing psychological aspects of care for people living with serious illness. Elissa Kozlov, a geropsychologist and director of a new population aging MPH at Rutgers, surveyed AAHPM members, and found that doctors reported major shortcomings in level of comfort and knowledge caring for patients with psychological illness. She conducted a systematic review and meta-analysis of 38 palliative care trials, finding that many excluded people with serious illness, and a lack of impact on psychological outcomes. Analyzing the Health and Retirement Study, she found 60% of older adults screened positive for depression in the last year of life.
Health systems bucking IT outsourcing trend
02/23/24 at 03:00 AMHealth systems bucking IT outsourcing trend Becker's Health IT, by Naomi Diaz; 2/19/24The role and size of information technology departments within health systems play a crucial role in shaping the organization's technological infrastructure. And despite a growing trend toward outsourcing IT functions, many health systems continue to maintain robust in-house teams.
