Literature Review

Bringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care American Hospital Association; 2/8/25 When parents have a child with a serious illness, all they want is for their child to get well. If that no longer becomes a possibility, often all they want is to bring their child home. Most — around 70% — of pediatric deaths related to illness occur in the hospital, but the Kentucky Children’s Health Pediatric Advanced Care Team offers some families the chance to transport their child home using life-sustaining technology. That’s not an easy feat; these patients are medically fragile, and the outcome can be unpredictable. A team made up of hospital administrators, hospice providers, coroner and the transportation team comes up with a plan. The child’s parents complete an informed consent procedure, recognizing that their child may not survive the journey home. The transportation team tries to ensure that the journey is as comfortable as possible, as well as planning what to do if the child’s condition deteriorates on the journey. If that happens, he or she will be supported as they pass without resuscitation efforts.

Chesapeake Life Center offers healing for those experiencing loss after DCA tragedy Southern Maryland News Net, Chesapeake, MD; 2/10/25 The Chesapeake Life Center will offer “Healing Our Community: Navigating Grief in the Aftermath of the DCA Tragedy” to support those affected by the Jan. 29 tragedy at Reagan National Airport. Chesapeake Life Center’s trauma-informed grief counselors will lead this healing workshop from 2 to 3:30 p.m. Saturday, Feb. 22, at Hospice of the Chesapeake’s center at 2505 Davis Road, Waldorf, Maryland. The session offers a supportive space for community members to connect with others who share in their loss. Together, they can learn about grief and healthy coping strategies, participate in activities to express and process emotions and create a remembrance keepsake. Adults will meet separately from the children and teens to ensure age-appropriate conversations. 

Never forget that justice is what love looks like in public. ~ Cornel West

Montana bill to outlaw physician-assisted death clears Senate Ravalli Republic; by Carly Graf; 2/7/25 The proposal would prohibit a health care provider from prescribing life-ending drugs at the request of a terminally ill patient. That ability currently exists largely due to a legal loophole. [Article is behind a paywall.]

'We’re seeing these struggles.' Rainbow works to support end-of-life caregivers Daily Jefferson County Union, Jefferson, WI; by Hannah Brock; 2/10/25 Rainbow Community Care is facing a growing need in Dodge and Jefferson counties: the overwhelming burden placed on caregivers, both family members and healthcare workers, as they navigate end-of-life care. “There’s this need in the community to support caregivers, where whoever they are,” said Carol Brown, president and CEO of Rainbow Community Care. The backbone of the healthcare system isn’t just hospitals or insurance plans—it’s the unpaid, often invisible labor of family caregivers. ... The newest initiative, the respite care program, is being designed to give caregivers much-needed breaks. Many family caregivers go months—or even years—without a full night’s rest, a doctor’s visit for themselves, or even an afternoon off, according to Rainbow Community Care. To help address this, Rainbow Community Care secured the necessary funding for the program. 

Kamloops Hospice's Messages of Love Campaign runs all month long Castanet - Kamloops.net, Kamloops, British Columbia, Canada; by Eagle Anderson, 2/9/25 Kamloops residents are being invited to stop by a cafe, grab a cup of coffee and share some positive words as part of Kamloops Hospice’s Messages of Love Campaign, which is running all month. Four local eateries — 5 Bean Brew Bar (Sahali), The Vic, Cafe Motivo, Yew Street — and the Kamloops Hospice will each provide sticky notes, pens and a board for posting. “It’s essentially an awareness campaign,” Kamloops Hospice’s Fund Development Lead Sarah Irvine said. ... Participants are encouraged to write a positive message on each note. They can then keep the note, stick it to a board or give it away. Messages can be written to friends, family, community groups, lost loved ones and even to themselves.

[Germany] Green hospice snails: Dresden bakeries support incurable children Archynewsy; 1/10/25 In Dresden, Germany, a heartwarming campaign is uniting bakeries and communities to support families facing the challenges of life-limiting illnesses in their children. Every February 10th, known as the "Day of Work for the Hospice for Children," participating bakeries offer delectable "green" treats, with a portion of their proceeds contributing to the invaluable work done by local children’s hospices. ... This campaign transcends mere fundraising; it acts as a powerful platform to shed light on the often-overlooked needs of families navigating the complex journey of caring for a child with a life-limiting illness.

Access tops list of Americans' healthcare concerns: 4 survey findings Becker's Clinical Leadership; by Erica Carbajal; 2/5/25A quarter of Americans rank healthcare access and affordability as the top public health priority they want government leaders to focus on, according to poll findings from Gallup and Emory University's Rollins School of Public Health. ... Four key findings:

The health care experience of Hispanic patients with serious illness: A literature reviewCAPC press release; 2/10/25CAPC conducted a literature review of peer-reviewed journal articles indexed in PubMed to understand the health care experience of Hispanic patients with serious illness, and their families and unpaid caregivers. [Please click on the link above for the literature review of 200+ journal articles and 14 key findings.]

In the wake of California fires, a hospice opens its arms to help a community heal Pasadena Now, Pasadena, CA; 2/8/25 A Los Angeles hospice organization announced Thursday it has extended its expertise in grief counseling to help residents process the collective trauma of the recent destructive wildfires. In the Arms of Grace Hospice, based in Los Feliz, will begin offering free weekly drop-in support groups for those affected by the Eaton and Palisades fires starting February 4. The open-format sessions at St. Gregory Church in Pasadena will be led by Dr. Ani Karayan, PhD, a clinical psychologist with more than two decades of experience in trauma-informed care. “The fires have caused significant disruption in the lives of many in the community,” said Kevin Tutunjian, president of In the Arms of Grace Hospice. “We wanted to create a safe and supportive space that validates the complex and nuanced emotions this community is going through.”

Volunteer and her 3 dogs provide joy through Hospice of the Valley's pet therapy program AZCentral; by Lin Sue Flood, Hospice of the Valley; 2/7/25 Marian Wallace loves dogs and loves volunteering, so she put the two together to provide joy to others. [Her] three adorable Labradors — Mattie, Harper and Richey — are the newest members of Hospice of the Valley’s pet therapy program. They visit youngsters at Ryan House, which provides respite support to families with medically fragile children. ... Marian joined Hospice of the Valley’s pet therapy program was about 10 years ago. A friend who had a therapy pet inspired her to rescue and train dogs. She began visiting hospice patients with her first two labs, Shiloh and Amy. ... “It’s that child-animal interaction that I find so incredible,” she said. ... One of the most endearing qualities she sees in all of her Labs is how intuitive they are, tapping into the moods and emotions of children to comfort them. ... Editor's note: Ensuring pet therapy training and certification is crucial, for both the pet and the owner. Click here for an extensive national list of Pet Therapy Organizations. If you have--or plan to provide--a pet therapy program, be sure that insurance is provided (by the pet therapy organization and/or by you) in case an incident occurs. 

Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patientsThe MarCom Journal, Charleston, SC; by Globe Newswire; 2/6/25While the topic of death is generally considered taboo, English teacher turned hospice administrator Matthew Cornett believes there is much to be learned from death. After becoming an empty nester, Cornett left the classroom behind and began a second career in hospice care. And the more time he spent with people as they approached the end of their life, the more he realized that their deaths had meaning. And what emerged from those final moments was something profound. Hoping to make others feel more comfortable when it comes to preparing for and talking about death, he presents a memoir of his journey into the world of hospice care. In If We Never Meet Again, Cornett chronicles his experiences providing compassion and support to hospice patients while adjusting to his new role. Finding inspiration in his patient’s “death stories,” he found himself on an unexpected path of self-discovery. Cornett’s personal reflections on these intimate and emotional interactions encourage readers to reconsider how they view death and dying.

Researchers outline new research priorities in neuropalliative care UNC Health and UNC School of Medicine, Chapel Hill, NC; by Winnie K. Lau, MD and David Y. Hwang, MD2/7/25... An emerging field, termed “neuropalliative care,” has taken shape over the past few years to help provide impactful, holistic care for patients with serious neurological disease. And now, experts in the field are seeking ways to improve the overall wellbeing of their patients and loved ones through the power of research. ... A special communication in JAMA Neurology, first-authored by Winnie K. Lau, MD, a neurocritical care physician and associate professor of neurology and senior-authored by David Y. Hwang, MD, professor of neurology and division chief of neurocritical care, describes needed research that can help advance patient care, including: