Literature Review
The National Donor Family Council: History, activities, achievements, and legacies
02/08/25 at 03:35 AMThe National Donor Family Council: History, activities, achievements, and legaciesOmega-Journal of Death and Dying; Margaret B Coolican, Charles A Corr; 1/25The National Donor Family Council (NDFC) functioned under the sponsorship of the National Kidney Foundation from 1992-2014. Giving voice to the needs and views of donor families, the NDFC had an important impact on the support for those families. This article records significant points in the advocacy of donor families, summarizes the history of the NDFC, highlights the various activities and achievements of the NDFC, and offers some impressions of its legacies.
Assessment of organ donation knowledge and attitudes among patients visiting the nephrology outpatient clinic at a tertiary healthcare facility
02/08/25 at 03:30 AMAssessment of organ donation knowledge and attitudes among patients visiting the nephrology outpatient clinic at a tertiary healthcare facilityOmega-Journal of Death and Dying; Ezgi Yarasir, Mehtap Gomleksiz, Muhammet Ridvan Gomleksiz, Ayhan Dogukan; 1/25This study aims to assess the knowledge levels, attitudes, and influencing factors related to organ donation among patients who visited the Nephrology outpatient clinic. A total of 37.5% of the participants stated that they were considering organ donation. Participants with a high school education or higher, those who believed they had sufficient knowledge about organ donation, and those who had a family member awaiting organ transplantation demonstrated a positive attitude toward organ donation ... Understanding societal knowledge and attitudes about organ donation is crucial for assessing individual awareness of this issue.
Flaws in the Medicare Advantage Star Ratings
02/08/25 at 03:25 AMFlaws in the Medicare Advantage Star RatingsJAMA Health Forum; David J. Meyers, PhD, MPH; Amal N. Trivedi, MD; Andrew M. Ryan, PhD; 1/25The objective of the star ratings is to help beneficiaries select better plans, and to reward plans that deliver high-quality care. In June 2024, a US district court judge ruled that the Centers for Medicare and Medicaid Services (CMS) inappropriately calculated Medicare Advantage (MA) Star ratings due to not implementing a previously announced statistical adjustment. First, it is not clear if the star ratings are actually capturing a higher quality, as several measures in the star rating are reported by the plans themselves and plans often overstate their performance. Second, over 80% of contracts by enrollment are rated 4 stars or higher, which is the threshold needed to earn bonus payments, and a single star rating is assigned to each contract even when contracts may cover many different states and regions. Third, while bonus payments for star ratings are costly, plans eligible for enhanced bonuses have not shown greater improvement in measures related to clinical quality or administrative effectiveness. Taken together, the current star ratings are neither useful for all beneficiaries to make their plan decisions, nor do they appear to be capturing quality or catalyzing improvement.
What matters to older Native Hawaiians?: A qualitative study of care preferences
02/08/25 at 03:20 AMWhat matters to older Native Hawaiians?: A qualitative study of care preferencesJournal of Palliative Medicine; by Miquela Ibrao, Rachel Burrage, Shelley Muneoka, Keilyn L Kawakami, Tarin T Tanji, Leslie Tanoue, Kathryn L Braun; 12/24Formal assessment of What Matters in end-of-life care is often done in medical settings through legal forms. Past research indicates that Native Hawaiians are less likely to complete these forms than Whites. The purpose of this study was to explore health care preferences among Native Hawaiian elders and to identify cultural themes that may impact quality care at end of life. Themes suggest the criticality of: (1) incorporating cultural traditions into health care routines; (2) involving family in health and end-of-life decisions; (3) supporting home-based care at the end of life; and (4) building strong patient-provider relationships. Although findings parallel preferences expressed in other populations, the data provide additional insights into the preferences of Native Hawaiian elders anticipating end-of-life care. Recommendations for culturally competent care include: (1) develop relationships with Native Hawaiian patients well before end-of-life care is needed to facilitate discussions of care preferences; (2) work collaboratively with the patient and the patient's defined family; (3) ask about cultural practices and engage traditional healers as directed by the patient; and (4) provide services in patients' homes and communities.
Suzetrigine: First-in-class nonopioid pain therapy is approved by FDA
02/08/25 at 03:15 AMSuzetrigine: First-in-class nonopioid pain therapy is approved by FDAAmerican Journal of Managed Care; Giuliana Grossi; 1/25Suzetrigine (Journavx; Vertex Pharmaceuticals) received approval from the FDA for the treatment of adults with moderate-to-severe acute pain, according to an announcement from Vertex. The therapy is a novel oral, non-opioid, highly selective NaV1.8 pain signal inhibitor ... offering a non-opioid alternative amid the opioid crisis. Clinical trials demonstrated significant efficacy in postsurgical pain relief, though results varied across different conditions. Despite this, suzetrigine offers the potential to energize the nonopioid pain market, which includes other companies like Tris Pharma, Latigo Biotherapeutics, and SiteOne Therapeutics—all actively developing alternatives to opioids. Key findings from the Institute for Clinical and Economic Review analysis of the phase 3 trials include potential lifetime cost savings of $200 per patient when comparing suzetrigine with opioids, assuming a 1-week course priced at $420.
What is renal cell carcinoma?
02/08/25 at 03:10 AMWhat is renal cell carcinoma?JAMA; Rebecca Voelker, MSJ; 1/25Renal cell carcinoma is a common cancer that forms in the kidneys. In 2023, an estimated 81,800 people were diagnosed with renal cell carcinoma in the US, making it the sixth most common cancer among males and the ninth among females. Renal cell carcinoma is most often diagnosed in people aged 60 to 70 years. Although the diagnosis has increased slightly in the US in recent years, deaths from renal cell carcinoma have declined. Although the survival rate of stage IV renal cell carcinoma varies among individuals, the average 5-year survival is 28%.
Palliative care initiated in the Emergency Department-A cluster randomized clinical trial
02/08/25 at 03:05 AMPalliative care initiated in the Emergency Department-A cluster randomized clinical trialJAMA; Corita R. Grudzen, MD, MSHS; Nina Siman, MA, MSEd; Allison M. Cuthel, MPH; Oluwaseun Adeyemi, MBBS, PhD; Rebecca Liddicoat Yamarik, MD; Keith S. Goldfeld, DrPH, MS, MPA; PRIM-ER Investigators; 1/25Question-What is the effect of a multicomponent intervention to initiate palliative care in the emergency department on hospital admission in older adults with serious, life-limiting illness? In this cluster randomized clinical trial, which was conducted at 29 US emergency departments and included 98,922 initial visits, there was no difference in the rate of hospital admission in older adults with serious, life-limiting illness receiving care before (64.4%) vs after (61.3%) emergency department clinical staff receipt of a multicomponent primary palliative care intervention. Relevance-This multicomponent intervention to initiate palliative care in the ED did not have an effect on hospital admission, subsequent health care use, or short-term mortality in older adults with serious, life-limiting illness.
Palliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trial
02/08/25 at 03:00 AMPalliative care program for community-dwelling individuals with dementia and caregivers: The IN-PEACE randomized clinical trialJAMA Network; by Greg A. Sachs, Nina M. Johnson, Sujuan Gao, Alexia M. Torke, Susan E. Hickman, Amy Pemberton, Andrea Vrobel, Minmin Pan, Jennifer West, Kurt Kroenke; 1/25Among community-dwelling individuals with moderate to severe dementia, does a dementia care management program with integrated palliative care reduce patients’ neuropsychiatric symptoms? In this randomized clinical trial, a dementia care management program with integrated palliative care did not significantly improve patients’ neuropsychiatric symptoms.
Saturday newsletters
02/08/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
4 phrases successful leaders intentionally use to motivate their teams
02/07/25 at 03:00 AM4 phrases successful leaders intentionally use to motivate their teams Forbes; by Dr. Cheryl Robinson; 2/1/25 ... Great leaders understand that their words can shape company culture, influence behavior and impact employee engagement; it’s about delivering messages with clarity and intent. The tone, phrasing and timing of communication can energize a team or deflate morale. A well-placed word of encouragement can spark motivation, while careless criticism can hinder progress. Whether providing constructive feedback or navigating tough conversations, leaders who speak with intention create a culture where employees feel valued and driven to contribute their best. ... 4 Phrases Successful Leaders Use:
After 'code issue,' veterans no longer receive free care at UP hospice site
02/07/25 at 03:00 AMAfter 'code issue,' veterans no longer receive free care at UP hospice site MyUpNow.com, Houghton, MI; by Thomas Fournier; 2/5/25 For a veteran staying at hospice care facility, it's important family can visit, especially in rural areas. But what happens when their facility no longer qualifies as a hospice facility for the Veteran's Health Administration (VHA)? Omega House Executive Director Mike Lutz said he received a call from the local Veteran's Affairs (VA) office in Iron Mountain late December 2024 informing him that they would "no longer be servicing veterans at Omega House." ... Veterans who would usually receive a reimbursement through the VA for their hospice care would no longer be able to find that at Omega House, leaving them to get their care 100 miles away or more.
New report details financial, emotional toll of Parkinson’s on family caregivers
02/07/25 at 03:00 AMNew report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.
CareFirstNY announces the loss of beloved CEO, Tali Sutton
02/07/25 at 03:00 AMCareFirstNY announces the loss of beloved CEO, Tali Sutton CareFirstNY, Painted Post, NY; 2/5/26 It is with tremendous sadness that we announce that Tali Sutton, CEO of CareFirstNY, experienced a sudden and unexpected medical emergency on Monday, February 3. True to her giving spirit, she is an organ donor and will pass along her final gift of life to others in need. Tali’s belief in CareFirstNY, her authenticity, and her friendship created a bright light that united many people across our region. As a leader, Tali instilled a passionate culture of understanding, positivity, and trust that will be deeply missed. ... CareFirstNY’s patient care services will remain uninterrupted at this time; we will share additional information as available and appropriate. For those who would like to make a contribution to Tali’s memory, please visit our Donation Page for more information.
Over 80% of healthcare cost in the final year of life spent on hospitals
02/07/25 at 03:00 AMOver 80% of healthcare cost in the final year of life spent on hospitalsNuffield Trust press release; 2/5/25[UK] New research from the Nuffield Trust and the Health Economics Unit, commissioned by leading end of life charity Marie Curie, finds that UK public expenditure for people in the last year of life across healthcare, social care and social security is in the region of £22 billion. Over half (53%) of this public spending in the final year of life is spent on healthcare. Hospital care represents the largest share of healthcare spending, accounting for 81% of total healthcare spend. More than half of this healthcare spend (56%) goes on emergency hospital care... In contrast, public spending on primary and community healthcare makes up only 11% of health expenditure for people in the last year of life, with less than 4% spent on hospice care.
Regional Hospice celebrates 10 years of compassionate care at inpatient Center For Comfort Care & Healing
02/07/25 at 03:00 AMRegional Hospice celebrates 10 years of compassionate care at inpatient Center For Comfort Care & HealingThe Newtown Bee; 2/2/25[Connecticut] Regional Hospice marked a momentous milestone in January with the tenth anniversary of its Center for Comfort Care & Healing, a one-of-a-kind facility that has redefined end-of-life care in Connecticut... ToniAnn Marchione, LRT (M), BS, president and CEO of Regional Hospice, notes Regional Hospice has been providing care in the community for more than 40 years. “When we opened our doors to the Center a decade ago, our former president & CEO, Cynthia Emiry Roy, MS, LCSW, CHA, who was the visionary, along with our board members and others, created more than just a hospice facility — the idea was to build a true home where patients and their loved ones could find comfort, dignity, and peace,” Marchione said.
Study explores Native Hawaiian end-of-life care
02/07/25 at 03:00 AMStudy explores Native Hawaiian end-of-life careNational Indigenous Times; by Joseph Guenzler; 2/4/25A study by the University of Hawaiʻi at Mānoa's Hā Kūpuna – National Resource Center for Native Hawaiian Elders has examined the end-of-life care preferences of Native Hawaiian kūpuna (Elders). Led by Laguna Pueblo and Quechan woman, Assistant Professor Miquela Ibrao, researchers from UH and ALU LIKE, Inc. identified culturally specific approaches to support kūpuna values in healthcare. "Death is not an end but a transition that honors relationality, ancestors and the land,' Assistant Professor Ibrao said. "Decolonizing end-of-life care means respecting cultural beliefs and embracing Indigenous wisdom about healing and living well." The study, published in the Journal of Palliative Medicine, is based on interviews with 20 kūpuna aged 60 and over from rural areas across Hawaiʻi. It highlights four key themes.
Family caregivers who support older relatives are on the rise due to aging-in-place preferences
02/07/25 at 03:00 AMFamily caregivers who support older relatives are on the rise due to aging-in-place preferences HousingWire; by Chris Clow; 2/5/25 The number of family caregivers who support older relatives in either home-based or residential care settings increased by 32% between 2011 and 2022 ... Researchers also say this could be partially tied to rising preferences for aging in place. This is according to a joint study from the Johns Hopkins Bloomberg School of Public Health and the University of Michigan’s Institute for Social Research. Additional support came from the National Institute on Aging, a division of the National Institutes of Health (NIH). The raw number increase went from 18.2 million in 2011 to 24.1 million in 2022. The study also found that the number of care hours provided by family and other unpaid caregivers increased by 50% during that time. The average number of weekly hours for such care stood at 21.4 in 2011, but it jumped to 31 in 2022, nine hours short of what is widely considered a full-time weekly work schedule.
Carlos T. Graveran to Lead Bridginglife as Assistant Vice President of Hospice and Palliative Care Services
02/07/25 at 03:00 AMCarlos T. Graveran to Lead Bridginglife as Assistant Vice President of Hospice and Palliative Care ServicesNewswise press release; by LifeBridge Health; 2/3/25[Maryland] BridgingLife, a non-profit organization dedicated to providing high-quality palliative and hospice services, today announced that Carlos T. Graveran will join the organization as assistant vice president of Hospice and Palliative Care Services, effective February 10. Previously known as Carroll Hospice, BridgingLife is a nationally recognized hospice program that has been providing end-of-life and palliative care services for nearly 40 years.
Hospice Alliance hosts CNA walk-in interviews
02/07/25 at 03:00 AMHospice Alliance hosts CNA walk-in interviews Kenosha.com, Kenosha, WI; Press Release; 2/5/25 What: Hospice Alliance is looking for dedicated Certified Nursing Aides to join our award-winning team. We will be hosting walk-in interviews on Thursdays throughout the month of February from 1 – 3 pm for full-time 1st shift aides. Wages start at $18.50 an hour, and positions are benefit eligible (i.e. PTO, 403b match, health, vision and dental insurance). Please bring your resume, CNA certification, driver’s license, and auto insurance with you (all of which are required for the position). Who: Open to anyone who is a Wisconsin Certified Nursing Aide Where: ... When: Thursdays, February 6, 13, 20 and 27 from 1 – 3 pm Applications can be completed ahead of time at ...Editor's note: We're posting this as an innovative, user-friendly recruitment initiative.
DOGE probes CMS for Medicare, Medicaid fraud: WSJ
02/07/25 at 03:00 AMDOGE probes CMS for Medicare, Medicaid fraud: WSJ Becker's Hospital Review; by Rylee Wilson; 2/5/25Members of Elon Musk's Department of Government Efficiency have been granted access to payment and contracting systems at CMS, The Wall Street Journal reported Feb. 5. Department representatives have been on-site at CMS' offices this week, examining spending data for potential fraud or waste and reviewing the agency's organization and staffing, unnamed sources told the Journal. ... DOGE aims to cut federal spending by $1 trillion, with Medicaid emerging as a likely target, according to The New York Times. CMS spent more than $1.5 trillion on healthcare programs in fiscal year 2024, accounting for 22% of total federal spending, according to the agency's 2024 annual report. "Yeah, this [CMS] is where the big money fraud is happening," Mr. Musk wrote on X in response to the Journal's article.
Fallon Health announces a new location in Framingham to serve older adults in the MetroWest
02/07/25 at 03:00 AMFallon Health announces a new location in Framingham to serve older adults in the MetroWest Fallon Health, Worcester, MA; Press Release; 2/3/25 Fallon Health, a national leader in offering PACE (Program of All-Inclusive Care for the Elderly), is pleased to announce the opening of a new alternative care setting in Framingham. This location aims to bring care closer to home for older adults in the MetroWest region. ... The new space includes 3 exam rooms, lab services, a therapy room for physical, occupational, and other therapeutic services, a conference room for care planning and family meetings, a shower, laundry facilities, and dedicated office space. To ensure a comprehensive support system, Adult Day Health (ADH) services are provided through partnerships with like-minded local programs, including Dia Feliz Adult Day Health Center.
Today's Encouragement: We must always strive for ...
02/07/25 at 03:00 AMWe must always strive for excellence, no matter the circumstances. ~ Dorothy Vaughn, NASA mathematician, whose story was told in Hidden FiguresHonoring Black History Month 2025
Central Coast VNA & Hospice expands hospice and support programs in the Central Coast region
02/07/25 at 02:20 AMCentral Coast VNA & Hospice expands hospice and support programs in the Central Coast region Chicago News; Press Release, media contact Jane Russo; 2/5/25 Central Coast VNA & Hospice, a trusted leader in home health and hospice care for over 70 years, is proud to announce the expansion of its comprehensive hospice and support programs throughout the Central Coast. ... With an increased focus on hospice care, education, and support, Central Coast VNA & Hospice is reaching more communities, including Monterey, Salinas, Hollister, and Santa Cruz. The organization’s enhanced programs include:
Immigration policies’ ‘chilling effect’ on the hospice workforce
02/07/25 at 02:00 AMImmigration policies’ ‘chilling effect’ on the hospice workforce Hospice News; by Holly Vossel; 2/5/24 The White House recently issued several executive orders that have ramped up the nation’s immigration enforcement policies. The health care sector may be facing a host of staffing and operational challenges as the regulatory moves unfold, according to Hannah Liu, manager of immigration advocacy at Asian Americans Advancing Justice (AAJC). A tightening of immigration policies has come with “concern, panic and confusion” across diverse communities nationwide, Liu stated. “As the effects of these hostile immigration policies play out, patients may also face the life-or-death situations that arise from interruptions in care caused by staffing shortages,” Liu told Hospice News in an email. “Immigrants in the health care industry may fear the possibility of arrest and detention, including in workplaces like hospitals, palliative care facilities and clinics.”
How can we cultivate happiness in medicine?
02/06/25 at 03:10 AMHow can we cultivate happiness in medicine? The Hospitalist; by Nikhil Sood, MD and Marjorie Bessel, MD; 2/3/25 Burnout has led to early physician retirements and clinicians leaving the profession, resulting in an unprecedented physician shortage and access challenges. This jeopardizes our ability to meet the community’s needs and fulfill our mission of making healthcare more accessible to improve quality of life. The question is, how can we, as a healthcare system, tackle this issue head-on? ... The CHIM strategy is a comprehensive, evidence-based approach, driven by clinicians, that supports wellness from an individual and organizational perspective. ... The six dimensions of the strategy include the following: