Literature Review

All posts tagged with “General News | Quality of Life.”



How a St. Louisan helps her community navigate death by filling out advance directives

01/30/25 at 03:00 AM

How a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care.  Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.

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What can we learn from the dying?

01/29/25 at 03:00 AM

What can we learn from the dying? Newscastle's News Letter Journal (NLJ), Newcastle, WY; by Kelly Evans-Hullinger, MD; 1/26/25 For the last five years, I have had the great privilege of serving my local health system as Medical Director for Home Hospice. Every week I sit in a meeting with the multidisciplinary caretakers on this team ... Patients facing their own deaths want to talk about their lives. Our staff frequently tries to facilitate what they call a “life review” in which a patient can openly talk about their childhood, family, career, service, and sometimes their regrets. This is therapeutic for the dying patient and their loved ones.  ... I have recently thought about this particular human need – to reflect and remember one’s life. I take this as a reminder to both seek those stories from my own loved ones (I wish I had asked my grandmother more questions about her life) and, perhaps, to tell and write about the things in my own life I would want to be remembered after I am gone. For if there is another thing I’ve learned serving patients on hospice, it is that my death is also inevitable; but, I think, life’s finality is what gives it beauty and meaning. 

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Hospice of Savannah awarded grant for safety improvements

01/28/25 at 03:00 AM

Hospice of Savannah awarded grant for safety improvements NBC WSAV Savannah News, Savannah, GA; by Eric Dorsch; 1/27/25 Hospice of Savannah Inc. (HSI) has announced it has been awarded a grant for repairs and home modifications. HSI will receive $1,999,111 in Older Adults Home Modification Program grant funding to complete safety and functional home modifications and limited repairs in the primary residences of two hundred eligible homeowners and renters over age 62 with low income. The work aims to improve general safety, increase accessibility, reduce falls, and improve residents’ functional abilities in the home for their safe and successful aging in place. 

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D.C. is America’s loneliest city. Can 1,000 robotic pets help?

01/28/25 at 02:00 AM

D.C. is America’s loneliest city. Can 1,000 robotic pets help? The Washington Post; by Olivia George; 1/27/25 Rose Watkins, 67, says she doesn’t really have anyone to talk to, not since her mother passed away. Brenda Jacobs, 70, doesn’t drive anymore ... Yvonne Gathers, 74, wishes she had something ... to keep her mind from drifting back to the day she learned her son — who lived with her — was shot and killed. All three seniors live in D.C. and are now part of a new program distributing robotic pets to residents 60 and older who live in Wards 1, 7 and 8. The initiative, spearheaded by three local nonprofits, is part of a broader push nationwide to use battery-powered pets to ease the loneliness and isolation that often accompanies older age and help lessen associated health risks. The pets nuzzle, stretch and roll on their tummies for scratches. You can feel their heartbeat through their soft fur. The dogs bark and wag. The cats purr and meow. “I’ve been lonely, I’ve been depressed,” Watkins said recently, stroking a beige dog with a red bandanna that turns its head when she talks. “I think this will help.” The robotic pets — Joy for All Companion Pets from parent company Ageless Innovation — “really do provide companionship and need nothing in return,” said Steve Cone, chief communications officer at nonprofit provider Capital Caring Health, one of the organizations involved in the D.C. program. “There is no upkeep, no cleanup.” [Click on the title's link to continue reading.]

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Spread some love to seniors this Valentines Day

01/23/25 at 03:00 AM

Spread some love to seniors this Valentines Day WKBN Youngstown, OH; by Dave Sess; 1/21/25 As you’re making Valentine’s Day plans, consider spreading some love to local seniors. You can make special cards or buy a thoughtful card and share the love. Home Instead is organizing the collection again this year. It has three schools already committed to making cards as it hopes to double last year’s total of 1,000. Each of the Valentine’s Day cards will carry a heartfelt message to seniors in nursing homes and assisted living communities that they’re loved, appreciated and remembered. ... The seniors will also receive flowers from Harmony Hospice. “These seniors appreciate anything from a simple smile to a card or a flower and just a simple hello,” said Sara Stevens with Harmony Hospice.Editor's note: Calling community outreach professionals--what a simple, meaningful way to engage your community for meaningful, intergenerational engagement and support. Now's the time! What can you do?

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Community invited to see Edina Thespians' one-act play, 'Wit'

01/22/25 at 03:00 AM

Community invited to see Edina Thespians' one-act play, 'Wit' Sun Current, Coon Rapids, MN; by Alex Kautzman; 1/20/25Edina High School Thespians are ... looking forward to showing off their hard work to the community in two performances at the Edina Performing Arts Center. ... "Wit" centers on Vivian Bearing, a brilliant poetry professor, as she undergoes an experimental and extremely aggressive chemotherapy treatment. As Vivian undergoes treatment at the hands of impersonal doctors, she discovers that human compassion may be more important than intellectual wit.Editor's note: This Wit telepay is based on the 1999 Pulitzer Prize-winning play by Margaret Edson. Its 2001 television drama film was directed by Mike Nichols, written by and starring Emma Thompson. Wit has been used extensively for community and clinical education, fostering conversations about ethics, palliative care/hospice, advance directives, quality of life, and more. Click here for more information. Wit can be streamed via Max and the Max Prime Video Channel.

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If you’ve overcome these 9 challenges in life, you’re more resilient than you think

01/22/25 at 03:00 AM

If you’ve overcome these 9 challenges in life, you’re more resilient than you think Personal Branding Blog; by Lucas Graham; 1/21/25 Resilience isn’t always about being unshakable or invincible. Sometimes, it’s just about surviving the chaos, picking yourself up after the mess, and somehow finding the courage to keep going. In the moment, it’s hard to see how strong you really are—you’re just trying to make it through. But when you pause and look back, you realize the grit it took to get here. ... [If] you’ve been through these nine challenges and made it out, you’re way more resilient than you give yourself credit for.

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Community rallies to bring 12-year-old cancer patient home

01/21/25 at 03:00 AM

Community rallies to bring 12-year-old cancer patient homeNBC 26, Green Bay, WI; by Ezekiel Telemaco; 1/18/25 Hadley Baker returns home to a community welcoming her with open arms. 

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For 27 years, I had minimal contact with my abusive mother. Then she moved in with me.

01/21/25 at 02:30 AM

For 27 years, I had minimal contact with my abusive mother. Then she moved in with me. HuffPost; by Carole Brodsky; 1/20/25 ... Living with my mom was the last thing I ever thought I’d be doing as an adult. Perhaps I accepted her back into my life because there were no other options available. Perhaps it was because I was the daughter of someone who in today’s vernacular would be called a “tiger mom,” and I’d been taught caring for an aging parent was what “good daughters” did.  ... As a child, my mother was abusive.  ... [Now, as] Mom’s verbal skills declined, we had to use our eyes, guts and hearts to discern the needs of a person whose tether to this world was fraying before our eyes. ... My partner has a saying: I always forgive, but I never forget. I have unequivocally forgiven my mother for everything. I have tried, with varying degrees of success, to let the vestiges of her abuse die with her and not invade the lives of my children, grandchildren and now, great-grandchildren. The work on forgiving myself will continue for the rest of my life.

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Knoxville nurses bring wedding to UT Medical Center for bride’s dying mother

01/17/25 at 02:00 AM

Knoxville nurses bring wedding to UT Medical Center for bride’s dying mother WATE Knoxville, TN; by Molly O'Brien; 1/15/25 Nurses on the Progressive Care Unit at UT Medical Center planned a wedding for one of their patient’s daughter. Samantha Barry and her now husband, Phillip Bastelica, were supposed to get married in a few months. Barry, like most daughters, always planned on her mother being at her wedding day. Her mother, Lynn, is battling a terminal illness and was recently released from the Progressive Care Unit to hospice. ... It seemed unlikely that Lynn would be able to attend the wedding planned for August, so Barry and Bastelica decided to move the day up. ... The nurses who cared for Lynn jumped into action to plan a wedding for Barry.

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Home … where we all want to be

01/14/25 at 03:00 AM

Home … where we all want to be The Journal; Dr. Sarah Phillips, Medical Director Hospice of the Panhandle; 1/12/25 Two days before Christmas, I arrived at the home of a patient who had been recently admitted to Hospice services. ... [Story of the patient being on a ventilator in a hospital.] This courageous and self-determined woman expressed the desire to be free from pain, suffering, and the complications and progression of her disease. Knowing that the ventilator was life-sustaining and essentially breathing for her, she made the decision to stop it. To ensure her comfort during discontinuation of the ventilator, the hospice team was present before, during, and after the procedure. Medications were used to ease shortness of breath, pain, and anxiety. ... “It’s a Wonderful Life” was playing on the TV, the Christmas tree was lit. I looked over and see the daughter wiping away her mother’s tears. Each reassured the other that everything will be OK and that they are at peace with this decision. As the medications took effect, the patient drifted off to sleep. The ventilator was stopped. Next, something happens that I will never forget. The daughter leans in and whispers to the patient, “Mom, the ventilator is off now, you are back in total control. This was profound to me on many levels. It certainly spoke to the power and importance of autonomy, the ability to make independent decisions that are aligned with one’s values and goals. ... Despite working in end-of-life care for over a decade, I still have these moments of being overwhelmed by the human spirit.

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Uruguay’s iconic ex-President Jose Mujica says his cancer has spread and that he’s dying

01/14/25 at 03:00 AM

Uruguay’s iconic ex-President Jose Mujica says his cancer has spread and that he’s dying Associated Press - World News, Santiago, Chile; by Nayara Batschke; 1/9/25 ... “Honestly, I am dying,” said the former leader, who governed the small South American nation of Uruguay from 2010 to 2015. The article noted that he had tears in his eyes. “What I ask is that they leave me alone. Don’t ask me for more interviews or anything else,” he said. “My cycle is over.” ... In the interview with Busqueda, Mujica said his autoimmune disease, severe kidney disease and other underlying medical problems led to his decision not to pursue treatment after medical tests showed his cancer had returned and metastasized. “I’m an old man, and because I have two chronic illnesses my body cannot handle it,” he said. ... Mujica told Busqueda that he would devote his “final stage” of life to his farm on the outskirts of Montevideo, the capital, where he has grown chrysanthemums with his wife for decades.Editor's note: Whatever one's political stances, may we see and hear the unifying, universal inevitabilities of facing dying and death.

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Bestselling author: I asked 26,000 people around the world their biggest regrets—these were the top 4

01/14/25 at 03:00 AM

Bestselling author: I asked 26,000 people around the world their biggest regrets—these were the top 4 NBC News NECN Channel 4, Boston, MA; by Aston Jackson, CNBC; 1/11/25 Living life without regrets is impossible, says bestselling author Daniel Pink. "Everybody has regrets. It's one of the most common emotions that human beings have," said Pink, in a podcast episode that published last month. "And yet, we've been sold such a bill of goods about positivity and being positive all the time that when we feel regret, we think we're the only one." Pink combed through decades of research and surveyed more than 26,000 people from 130 countries about their biggest regrets for his 2022 book, "The Power of Regret," according to his website. Most of those people struggled with four core regrets:

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Quilting for a cause: Sterling sewing group donates quilts to Rock River Hospice & Home

01/13/25 at 03:00 AM

Quilting for a cause: Sterling sewing group donates quilts to Rock River Hospice & HomeShaw Local News Network, Sterline, IL; by Brandon Clark; 1/12/25The ladies of New Life Lutheran Church’s sewing group know what it means to sew love into every stitch. The group meets at the church from 9 a.m. to noon every Wednesday to sew, quilt, knit and crochet for fun, fellowship and a good cause. Group member Karen Lofgren said they donate the quilts they make to Rock River Hospice & Home of Sterling, which gives one to each new client. ... Lofgren said the sewing group has been donating quilts since Rock River Hospice opened in 2017. The sewing group donates an estimated 120 to 150 large quilts to the hospice home each year and recently presented its 1,000th quilt.

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Global healthspan-Lifespan gaps among 183 World Health Organization member states

01/11/25 at 03:45 AM

Global healthspan-Lifespan gaps among 183 World Health Organization member statesJAMA Network Open; Armin Garmany, BS; Andre Terzic, MD, PhD; 12/24Gains in life expectancy across global populations are recognized as a societal achievement, ... but increased lifespan, ...  does not necessarily mean a longer healthy life. An estimate of healthspan is the health-adjusted life expectancy whereby years of life are weighted by health status. Notably, gains in life expectancy have not been matched by an equivalent rise in health-adjusted life expectancy. The resulting healthspan-lifespan gap reflects the extent of lifespan burdened by disease. Against the backdrop of the greatest noncommunicable disease burden, the US recorded the largest healthspan-lifespan gap ... , with a gap 24% larger than projected from the country’s life expectancy. Specifically, in the US the mean healthspan-lifespan gap increased from 10.9 to 12.4 years over the past 2 decades ... , resulting in a 29% higher gap than the global mean. Women exhibited a 2.6-year higher healthspan-lifespan gap than men, increasing from 12.2 to 13.7 years or 32% beyond the global mean for women.

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Living a life without regret: What final reflections teach us

01/03/25 at 03:00 AM

Living a life without regret: What final reflections teach us Advisorpedia; by Ryan Poterack; 1/2/25Reflecting on life’s journey often brings to light common regrets that many individuals share as they near the end of their lives. Insights from Bronnie Ware, a former palliative care worker, reveal the five most prevalent regrets expressed by her patients:

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What does a hospital chaplain do for patients seeking health care in Connecticut?

12/30/24 at 03:00 AM

What does a hospital chaplain do for patients seeking health care in Connecticut? Shelton Herald; by Jordan Nathaniel Fenster; 12/29/24 Rev. ReBecca Sala described her work as “archaeology of the soul.” Her first masters’ degree, long before she became a hospital chaplain, was in museum administration of archeological collections. She doesn’t see the two roles as very different.  “I've been a searcher my whole life,” she said. In the same way that an archaeologist gently brushes away the silt and stone of centuries, Sala said she attempts to gently allow emotions and spirituality to emerge from patients and their families receiving care at Stamford Hospital.  ... “That people even allow me to be there with them is humbling.” ... “It's meeting the patient where they are, not where I want them to be, what we as chaplains want them to be. It's finding out what's most important to them in that moment,” she said. .. Sala said if there was a bridge between the physical and the spiritual, it would be palliative care. The goal of palliative medicine is to improve the quality of a patient’s life physically, emotionally and spiritually. 

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As a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier

12/30/24 at 03:00 AM

As a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier The Keene Sentinel, Keene, NH; by Elijah de Castro; 12/28/24 Nancy Folsom has been working around death since she was a teenager in her family’s funeral home, where she was an embalmer apprentice. From there, she took a step back, pursuing a career as a home hospice nurse in the Monadnock Region, where she helps those who are dying confront death. “Death is never easy, at any age or any time,” Folsom said. “We want to make it as human as possible. I’ve always been comfortable with death.” ... Folsom, 62, of Jaffrey, “has never had a boring day” on the job. When she’s not out in the community working, she’s in the Peterborough office of Home Healthcare, Hospice and Community Services, a local nonprofit provider of home health services that also has offices in Keene and Charlestown. ... Over the years, Folsom has gained experience in how to best read a situation when she gets a new patient. Building trust between a hospice nurse and a patient, Folsom said, takes time, something many of her patients don’t have. Folsom resolves this dilemma by first making sure she is comfortable herself and cultivating a calm, abiding presence. ...

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Rabbi emphasizes balancing tradition, innovation in culturally competent care

12/23/24 at 03:00 AM

Rabbi emphasizes balancing tradition, innovation in culturally competent care Yeshiva University; by Dave DeFusco; 12/20/24 Rabbi Dr. Edward Reichman, professor in the Department of Emergency Medicine at Albert Einstein College of Medicine, underscored the importance of understanding various religious practices to provide culturally competent care in his presentation, “Are Pig Heart Transplants Kosher? Judaism and Modern Medicine in the 21st Century,” as part of an interprofessional practice seminar ...  Rabbi Reichman offered practical advice for healthcare professionals treating Jewish patients. Key considerations included: ...

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Hospice study reveals contrasting views on managing dementia behaviors

12/23/24 at 03:00 AM

Hospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.

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The Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal

12/23/24 at 02:00 AM

The Denver Hospice delivers holiday meals to 347 Coloradans; initiative ensured Coloradans facing hardship can celebrate with a holiday meal GlobeNewswire, Denver, CO; by The Denver Hospice; 12/20/24 The Denver Hospice, in collaboration with dedicated staff, provided 76 meals to patients and their families facing hardship during the holiday season. Over 347 people will enjoy a festive dinner as a result of the nonprofit’s healthcare organization’s holiday initiative. “At this time of the year, it can be especially hard for people to admit that they need help,” stated Susan Finke, director of clinical services at The Denver Hospice. “I want to thank everyone who helped deliver dinners today as we are caring for more people than just our patients. Hundreds will now have the opportunity to gather next week and enjoy being with their loved ones.” ... This is an annual event held by The Denver Hospice in support of their hospice and palliative care patients. Working in tandem with social workers, clinical and administrative staff, the nonprofit identifies and supports vulnerable patients across the Denver metropolitan area. The holiday season can be an especially difficult time of year for those facing life-limiting illnesses. 

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An innovative take on transforming hospice spaces with Buildner for better well-being

12/20/24 at 03:30 AM

An innovative take on transforming hospice spaces with Buildner for better well-being Arch Daily; 12/19/24 Buildner has announced the results of its Hospice - Home for the Terminally Ill competition, the third in a series of architectural idea challenges focused on creating compassionate spaces for individuals facing terminal illnesses. This competition encouraged architects to move beyond traditional medical models, designing environments that prioritize comfort, dignity, and community. Participants were tasked with envisioning a facility for up to 15 visitors and five staff members, incorporating essential spaces such as a library-equipped common area, gathering room, chapel, kitchen, dining area, nurse's station, and therapy room for psychological support. Designs were grounded in theoretical sites within participants' home countries, allowing for the integration of local cultural, social, and environmental contexts. The competition highlighted how innovative, thoughtful design can provide solace and strength during life's most difficult moments. ...

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December challenge: Gift ideas part two

12/19/24 at 03:00 AM

December challenge: Gift ideas part two ActiveRain; by Kat Palmiotti; 12/17/24 ... My mother dealt with cancer the last four years of her life with an upbeat attitude, ...  So what did she do with the time she had left? The same as always. It was late November 2011 at this point. So what she decided to do was to make a point of purchasing us all our last Christmas present. ... So for me, she purchased me a coffee cup with a lid which is pictured in the feature photo. ... But my mom didn't stop there. She also wrote each of her family members a handwritten letter. Her letter to me talked about me being her first born, and about what I was like during my childhood, and how she felt about my life as an adult. It was a beautiful letter that makes me smile and cry every time I read it. I treasure it. ... So why am I sharing this? Because when I think back on all the gifts I've ever received, it's not jewelry or clothing or anything else that pops into my mind first. It's a $5 cup and a piece of paper with writing on it. And both of those were my mom giving me love. So, when giving gifts to those you care about, give them love. Perhaps grab a piece of paper and a pen and let them know how much you care about them. Or buy them a small carefully selected item that they might use on a daily basis, smiling because it's from you. Because really, it truly is the thought that counts. Let that thought be love.

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Characteristics of patients enrolled in hospice presenting to the emergency department

12/17/24 at 03:00 AM

Characteristics of patients enrolled in hospice presenting to the emergency department American Journal of Emergency Medicine; by Kayla P Carpenter, Fernanda Bellolio, Cory Ingram, Aaron B Klassen, Sarayna S McGuire, Alisha A Morgan, Aidan F Mullan, Alexander D Ginsburg; 12/9/24, online ahead of print Emergency Departments (EDs) frequently care for patients with life-limiting illnesses, with nearly 1 in 5 patients enrolled in hospice presenting to an ED during their hospice enrollment. This study investigates the reasons patients enrolled in hospice seek care in the ED, the interventions they receive, and their outcomes. ... Patients enrolled in hospice most frequently presented to the ED for trauma [36%; with 15% for pain, 12% for catheter/tube malfunction]. Most received laboratory studies and imaging. Nearly half of patients were admitted to the hospital and short-term mortality was high, particularly for patients enrolled in hospice for needs for ED care? Ie.,

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Health gap at end of life is now wider in US than any other country

12/17/24 at 03:00 AM

Health gap at end of life is now wider in US than any other country Science Alert - Health; by Carly Cassella; 12/16/24 A data-crunching survey covering 183 member nations of the World Health Organization has now confirmed what some scientists feared: while years are being added to most people's lives, healthy life is not being added to most people's year. Researchers at the Mayo Clinic found that people around the world in 2019 were living 9.6 years of life burdened by disability or disease – an increase of 13 percent from 2000. In that same time frame, global life expectancy has increased 6.5 years, and yet health-adjusted life expectancy has only increased 5.4 years. In the US, the gap between lifespan and 'healthspan' is growing particularly wide. Between 2000 and 2019, life expectancy in the US increased from 79.2 to 80.7 years for women, and from 74.1 to 76.3 years for men. When adjusting for healthy years of added life, however, the span only increased by 0.6 years among men. And among women, while health-adjusted life expectancy fluctuated slightly over time, in 2019 it matched the figure seen in 2000. The expanding gap means if an American woman lived to the expected 80.7 years of age, the last 12.4 years of her life would on average be impacted by disease or disability.

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