Literature Review
All posts tagged with “General News | Quality of Life.”
There’s no place like home — when you die
02/14/24 at 03:00 AMThere’s no place like home — when you die McKnights Home Care, by Liza Berger, McKnights Editor; 2/9/24My dad died last week. I am still processing the event, which now ranks among the hardest, most surreal experiences of my life. As difficult as it is, I, my three siblings and mom take comfort in two things (that may hardly surprise McKnight’s Home Care readers): He died fast and he died at home.
The fear of death follows from the fear of life. A man who lives fully is prepared to die at any time.
02/14/24 at 03:00 AMThe fear of death follows from the fear of life. A man who lives fully is prepared to die at any time. U.S. Medicine, by Chester Buckenmaier III, MD, COL (ret), MC, USA; 2/13/24New Year’s Eve 2023 was marked with sadness for my family as my mother-in-law, Susan “Sue” Timperley, passed. ... Because of Sue’s strength in life, when her death came faster than we or her physician expected, we were spared further trauma. ... Hospice proved as helpful in death as they were in life by easing the weight of Sue’s loss through arrangements for her body. This support allowed Sue to die as she lived, with quiet strength and regal dignity. Our family was gifted with the time to focus on her memory rather than sterile hospital rules and cold machines.
Silverado Hospice - Hospice stories
02/14/24 at 03:00 AMSilverado Hospice - Hospice Stories
Alabama agencies get new resources for dementia care amid 'great void' in services
02/05/24 at 03:45 AMAlabama agencies get new resources for dementia care amid 'great void' in servicesAlabama Reflector, by Alander Rocha; 1/31/24In a meeting of the Interagency Council for the Prevention of Elder Abuse on Tuesday, Alabama Department of Senior Services (ADSS) Commissioner Jean W. Brown said the department is “awash in money to just go where we’ve never gone before in dementia services and dementia care.” ... According to the Centers for Disease Control and Prevention, Alabama in 2021 had the second highest mortality rate from Alzheimer’s disease, behind only Mississippi, at 46.8 per 100,000 people.
Nurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey study
02/02/24 at 04:00 AMNurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey studyJ Adv Nurse, by Alison Hession, Tim Luckett, David Currow, Michael Barbato; 1/31/24Results: Fifty-seven nurses participated from a workforce of 169 (34% response rate), of whom 35 (61%) reported they had encountered end-of-life dreams and visions. The nature of end-of-life dreams and visions encountered was similar to those reported in previous studies by patients and clinicians. Nurses generally held positive attitudes towards end-of-life dreams and visions but identified an unmet need for education and training on this aspect of end-of-life care.Editor's Note: This research was in Australia, yet has global applications. For U.S. leaders, call on your chaplains, many of whom are trained pastoral counselors to sensitively support and explore patient's "dreams and visions," in non-manipulative ways.
See how 5 families balance care and comfort in pediatric palliative care
02/02/24 at 03:00 AMSee how 5 families balance care and comfort in pediatric palliative careNational Geographic, by Taylor Sisk, photographs by Lynn Johnson; 2/1/24This medical team chooses to help families of children in palliative care prioritize quality of Life over taxing procedures and treatments. Our photo essay offers a glimpse of how they make the most out of life. ... [Interviews and photos are with the] Division of Palliative Medicine and Supportive Care at UPMC Children’s Hospital of Pittsburgh. ... The goal of this pediatric hospice program is clear: Put family first.Editor's Note: Note this source, National Geographic. Where do these photos and stories "take" you? I am grateful for Hospice of Louisville's (now, Hosparus) first hospice pediatric program in the U.S. I served on our Pediatric Care team for 4 years, and was forever, profoundly changed by knowing these children and their families.
'What my terminal cancer diagnosis taught me about life'
01/29/24 at 04:00 AM'What my terminal cancer diagnosis taught me about life' BBC News, by Nicola Bryan; 1/27/24Forget striving for a bigger home and a better car. Slow down, be grateful for what you have and take time with the people you love. This is the advice from Megan McClay, 30, who is living with terminal cancer. ... Megan's story is one of several being told at 'What matters most?', an exhibition at Senedd Oriel at the Senedd, or Welsh Parliament in Cardiff Bay [Wales]. Through photographs and short films the exhibition shares the perspectives of people with terminal illnesses, their families and those who work in palliative care.Editor's Note: Click here for this exhibition's "What matters most?" website, film, and many video storie.s
The nurse who helps dying patients write poetry
01/26/24 at 04:00 AMThe nurse who helps dying patients write poetryThe Telegraph (UK News), by Flora Bowen; 1/25/24What will happen to me after I die? Will my family cope? How will I be remembered? These are familiar questions for Rekha Vijayshankar. As a palliative care nurse who is now Marie Curie’s deputy head of quality and clinical governance, she has helped thousands of patients to explore their feelings towards such themes through writing poetry and journal entries together.
A study of how Americans die may improve their end of life
01/26/24 at 03:05 AMA study of how Americans die may improve their end of lifeMedical Xpress, by Rutgers University; 1/24/24A Rutgers Health analysis of millions of Medicare records has laid the groundwork for improving end-of-life care by demonstrating that nearly all older Americans follow one of nine trajectories in their last three years of life.
Cutting hair, growing care: Stylists volunteer for hospice patients
01/24/24 at 04:00 AMCutting hair, growing care: Stylists volunteer for hospice patients Montrose Press, by Katharhynn Heidelberg; 1/22/24... [Kathy] King is among several stylists who volunteer to cut hospice patients’ hair — just a way, they said, of giving back by making others feel good. ... “Contributing is probably the highest gift you can give,” said King. “As far as HopeWest goes, I lose the word sometimes as to what they do, and what they do for the community. I’m just so proud to (volunteer) for them.”
The hospice patients using their final days to make a lasting difference
01/23/24 at 04:00 AM
Head chef at Jersey Hospice cherishes the privilege of cooking for end-of-life patients
01/22/24 at 03:00 AMHead chef at Jersey Hospice cherishes the privilege of cooking for end-of-life patientsBNN, by Mahnoor Jehangir; 1/19/24The head chef at Jersey Hospice, Sam Sherwood, has a deeply personal mission. His role is not merely a professional one, but a labor of love, driven by the memory of his father who passed away just days before Sherwood took the helm of the hospice kitchen. For Sherwood and his team, preparing meals for patients in end-of-life care is more than just a job; it’s a calling.
Role matters in understanding 'quality' in palliative care: a qualitative analysis of patient, caregiver and practitioner perspectives
01/19/24 at 04:00 AMRole matters in understanding 'quality' in palliative care: a qualitative analysis of patient, caregiver and practitioner perspectivesBMJ Open, by Laura M Holdsworth, Karleen Giannitrapani, Raziel C Gamboa, Claire O'Hanlon, Nainwant Singh, Anne Walling, Charlotta Lindvall, Karl Lorenz; 1/17/24Objectives: To compare the discussions from two panels on the concept of palliative care quality for patients with advanced cancer, exploring the priorities reflected in each group's perspectives.
Hollywood's portrayal of cancer in movies fuels misconceptions, new study finds
01/18/24 at 04:02 AMHollywood's portrayal of cancer in movies fuels misconceptions, new study findsPR Newswire; 1/17/24... Researchers reviewed more than 100 films released between 2010-2020 and found several key findings about films' lasting impact on public perception of cancer treatment, prevention and care options. Key findings from the study include:
America's health system isn't ready for the surge of seniors with disabilities
01/18/24 at 04:00 AMAmerica's health system isn't ready for the surge of seniors with disabilitiesCalifornia Healthline, by Judith Graham; 1/17/24The number of older adults with disabilities — difficulty with walking, seeing, hearing, memory, cognition, or performing daily tasks such as bathing or using the bathroom — will soar in the decades ahead, as baby boomers enter their 70s, 80s, and 90s.
Increasing longevity, decreasing health quality: A close look at American health trends
01/18/24 at 04:00 AMIncreasing longevity, decreasing health quality: A close look at American health trendsBNN, by Ayesha Mumtaz; 1/16/24Recent data paints a concerning picture of Americans’ health despite an increase in longevity. While people are living longer, the quality of their health during these extended years is deteriorating.
Nationwide PACE program helps seniors avoid nursing homes
01/18/24 at 04:00 AMNationwide PACE program helps seniors avoid nursing homesThe Lake County Star, by Cathie Crew; 1/17/24The Program for All Inclusive Care of the Elderly, or PACE, provides care and services to nursing home-eligible seniors and disabled individuals, enabling them to remain in their home far longer than they might otherwise be able to do.
Man with cancer once wanted assisted suicide, but was glad he chose natural death instead
01/17/24 at 04:00 AMMan with cancer once wanted assisted suicide, but was glad he chose natural death insteadLive Action, by Cassy Fiano-Chesser; 1/15/24“In our last moments, when he was awake, I sat on his bed and sang to him — Joni Mitchell’s Both Sides Now. He had watched her sing it at the Isle of Wight pop festival and it was a magical memory he had relived with us.
Palliative telecare improves quality of life for those with chronic illnesses, and results last for months: Study
01/17/24 at 04:00 AMPalliative telecare improves quality of life for those with chronic illnesses, and results last for months: StudyMedical Xpress, by CU Anschutz Medical Campus; 1/16/24Researchers from the University of Colorado Anschutz Medical Campus have found that a team intervention, provided by phone, leads to persistent improvements in depression, anxiety, and quality of life for people managing chronic illnesses. Additionally, researchers found that the improvement in quality of life results last months after intervention concludes.
Moving beyond death anxiety to reflections on mortality
01/17/24 at 04:00 AMMoving beyond death anxiety to reflections on mortalityPsychology Today, by Shoba Sreenivasan and Linda E. Weinberger, reviewed by Lybi Ma; 1/15/24For the healthy, it may be considered macabre to contemplate their mortality; it may seem fatalistic, negative, and something that pulls one away from the present joy of living today. Yet, it can also remind us of the inevitable and consider how we want to spend today as well as whatever time we have left.
Ethnicity and palliative care: we need better data - five key considerations
01/15/24 at 03:55 AMEthnicity and palliative care: we need better data - five key considerationsBMJ Supportive & Palliative Care, by Gemma Clarke, Jamilla Akhtar Hussain, Matthew John Allsop, and Michael I Bennett; 12/23 Complete and valid ethnicity data are essential for monitoring racial and ethnic disparities but consideration needs to be given to collecting data well and using it responsibly. ... Holism is at the core of palliative care, in the approach to a person and their ‘total pain’. Extending this framework to ethnicity data engenders a responsibility across both the collection and usage of data. We outline five key considerations informed by this framework relating to ethnicity data.
Maine governor dedicates $2.5 million to support elderly population through innovative program
01/11/24 at 04:00 AMMaine governor dedicates $2.5 million to support elderly population through innovative programBNN, by Saboor Bayat; 1/9/24In an unprecedented move, Governor Janet Mills is allocating $2.5 million of federal funding from the American Rescue Plan Act to bolster support for Maine’s aging population. Aiming to enhance the lives of older adults and their caregivers, this initiative pioneers the establishment of community-based navigator roles for a more efficient connection to essential resources.
This Florida resort gives critically ill children the chance to just be kids
01/10/24 at 04:00 AMThis Florida resort gives critically ill children the chance to just be kidsUSA Today, by Eve Chen; 1/9/24Eight-year-old Zachary Doyle was in hospice when his family got a chance for one more adventure. “We adopted Zachary when he was 7 weeks old, and he had spina bifida and hydrocephalus, which at the time seemed like manageable diagnoses that we could tackle as a family,” his mom, Susan Doyle. ... She said he underwent around 40 brain and heart surgeries like ”a champ,” but ran out of treatment options last year. “We were pretty resigned to being at home and finishing out the end at home,” Doyle said. That was until Zachary was granted a rush wish trip to Walt Disney World through Gentle Shepherd Hospice in Lynchburg, Virginia.
Bringing peace and joy: Evensong performs familiar music for hospice patients
01/10/24 at 04:00 AMBringing peace and joy: Evensong performs familiar music for hospice patientsThe Ellsworth American, by Jess Cummings; 1/8/24Evensong, a group of choral singers operating under the Hospice Volunteers of Hancock County, has spent the last 15 years singing for individuals nearing the final moments of their lives. The group specializes in hospice and palliative care, traveling upon request all over Hancock County to sing at the bedsides and homes of patients in need. ... “Music is a huge thing,” [musical director] Cookie Horner says. “It goes to a different part of your brain than everything else…we’ve seen that firsthand.” Evensong’s repertoire includes music like spiritual and secular hymns, familiar folk songs and even popular special requests.
Well-being of older adults, workforce prioritized in executive order
01/09/24 at 04:00 AMWell-being of older adults, workforce prioritized in executive orderMcKnights Senior Living, by Kimberly Bonvissuto; 1/8/24The well-being of older adults and members of the direct care workforce has become a top priority in Maryland with the recent signing of an executive order meant to address challenges related to the state’s aging population. Senior living industry representatives say the effort has “tremendous” potential for operators in the state.