Literature Review
All posts tagged with “General News | Quality of Life.”
Legendary healthcare researcher John E. Wennberg, who shaped efforts to reform the nation’s healthcare system, dies at 89
03/20/24 at 03:00 AMLegendary healthcare researcher John E. Wennberg, who shaped efforts to reform the nation’s healthcare system, dies at 89Dartmouth Geisel School of Medicine, by Susan Green; 3/18/24John E. (Jack) Wennberg, MD, MPH, founder and director emeritus of The Dartmouth Institute for Health Policy and Clinical Practice, the Peggy Y. Thomson Professor in the Evaluative Clinical Sciences Emeritus at the Geisel School of Medicine, and founding editor of the Dartmouth Atlas of Health Care, died March 10, 2024. He was 89 years old. “His work pioneered a field that has grown into an entirely new academic discipline in medicine,” Duane Compton, PhD, Geisel School of Medicine dean, says. ... Wennberg focused on improving decision quality by combining better clinical evidence with informed patient preferences. The introduction of shared decision-making between clinicians and patients to preserve warranted variation due to patient preferences is now embedded in health policies across the globe.
Giving hospice patients a dignified end-of-life experience
03/20/24 at 03:00 AMGiving hospice patients a dignified end-of-life experience Steve Adubato On the Air, with Charles Vialotti, MD; 3/13/24On--location at Villa Marie Claire Residential Hospice, Steve Adubato is joined by medical director, Charles Vialotti, MD to talk about his personal commitment to hospice care and giving residents and their families a dignified end-of-life experience.
Living a special life to the end
03/19/24 at 03:30 AMLiving a special life to the end The Daily Sentinel, by Nathan Deal; 3/17/24, updated 3/18/24“Today’s a good day to have a good day. The sun will come up in the east and it will set in the west. All you have to do is match its energy.” That was the mantra of Andy Smith, Grand Junction High School and Colorado Mesa University graduate, rugby enthusiast, friend of Coach K, and lover of sunsets and sunrises. It was the outlook he lived by even on his darkest days.Editor's Note: Read this inspiring story about college student Andy Smith, cared for by HopeWest Hospice in Grand Junction, CO.
Navigating difficult conversations with patients with terminal cancer diagnoses
03/19/24 at 02:00 AMNavigating difficult conversations with patients with terminal cancer diagnoses Oncology Nursing News, by Darlene Dobkowski, MA; 3/18/24 Although oncology nurses need strong communication skills to help all of their patients navigate their cancer journeys, it is critical to have the ability to have difficult conversations with patients who received a terminal diagnosis, ... Betty Ferrell, Ph.D., M.S.N., CHPN, director and professor in the Division of Nursing Research and Education in the Department of Population Sciences at City of Hope in Duarte, California, said in an interview with Oncology Nursing News. For the past 24 years, her institution has been directing a project called the End-of-Life Nursing Education Consortium (ELNEC), which is a palliative care training program and includes a module focused on communication. ... “One of the things that we teach nurses is … that your No. 1 job is to listen,” Ferrell said. “Another thing that we say to nurses is, it is not your job to have all the answers. Patients ask very unanswerable questions. ‘Why me?’ is not an answerable question. But when a patient says, ‘Why me,’ then we want nurses to have good communication skills to say, ‘I can imagine why you're asking that question. Because as you've shared with me, you had no idea that you might be diagnosed with cancer, or you're the first person in your family to ever have cancer.’”
Most Americans would rather feel 25% healthier than live 25% longer. Here’s how to lengthen your health span
03/18/24 at 03:00 AMMost Americans would rather feel 25% healthier than live 25% longer. Here’s how to lengthen your health span Fortune Well, by Alexa Mikhail; 3/15/24 Across all generations, more Americans would choose to feel 25% healthier than live 25% longer. Broken down, 60% of Gen Z and millennials say they would choose to feel healthier rather than live longer as compared to 67% of Gen X and 70% of Boomers, according to a consumer trends report from The New Consumer in partnership with Coefficient Capital. Only 15% of Boomers, 22% of Gen X, and about a third of Gen Z and millennials say they would rather live 25% longer.
Music Therapy to facilitate Relationship Completion at the end of life: A mixed-methods study
03/18/24 at 03:00 AMMusic Therapy to facilitate Relationship Completion at the end of life: A mixed-methods studyJournal of Music Therapy; by Fu-Nien Hsie, Helen Shoemark, Wendy L Magee; 3/14/24 The concept of relationship completion is embodied as the core belief for end-of-life care in Taiwan, known as the Four Expressions in Life. ... Four themes around opportunities emerged from the interviews: the opportunity for exploration, for connection, for expression, and for healing. The integrated findings suggest that music therapy facilitated relationship completion and improved quality of life for both patients and their families. Furthermore, this study supports that the transformative level of music therapy practice within a single session for end-of-life care is attainable.
Beautiful people: Busy 14-year-old still finds time to volunteer for local hospice [creating legacy books]
03/18/24 at 03:00 AMBeautiful people: Busy 14-year-old still finds time to volunteer for local hospice [creating legacy books]
Poem: I knew you had been sick for quite a while. I had no idea you were walking your last mile.
03/15/24 at 03:00 AMPoem: I knew you had been sick for quite a while. I had no idea you were walking your last mile.The Andalusia Star News, by Vickie C. Wacaster, "a patient and hospice advocate for Aveanna Hospice"; 3/14/24. This poem is at the end of an article, "COLUMN: Hospice helps make most of all moments."I knew you had been sick for quite a while. I had no idea you were walking your last mile. Had I known your time was so near, Despite my fear, I would have talked more, touched more, and loved more. I asked about your care, your prognosis, your life, Why couldn’t they tell me? I was your wife. Or was I in denial? Did someone try to tell me? Did I refuse to hear? Could I not see? Did I refuse to accept? Your diagnosis and prognosis, did I reject? Was it because of unbelief? That death snatched you as a thief.We could have made the most of the time you had left, If only we had not been afraid of what we felt.
[ALS] Controlling what can be controlled: Palliative Care
03/14/24 at 03:00 AM[ALS] Controlling what can be controlled: Palliative Care ALS Association [Amyotrophic Lateral Sclerosis, commonly known as "Lou Gehrig's Disease]; 3/13/24 “Palliative care specialists can help people determine and define what are the ‘everyday things’ that matter to them. Some people may already know what these are but may not have had an opportunity to share this information with their health care team,” Dr. Mehta says. “Others may not know they can share this with their health care team. They may not know where to find help with these ‘everyday things.’ [Dr. Ambereen K. Mehta, MD, MPH, FAAHPM, associate professor of palliative care in the Departments of Medicine and Neurology at the Johns Hopkins School of Medicine]Editor's Note: Are your palliative care services connected with your local ALS Association? This page on the ALS website describes beautifully the benefits of palliative care as soon as the diagnosis occurs.
Is extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology'
03/13/24 at 03:00 AMIs extending life by weeks worth the toll some cancer drugs take? Doctors push for 'common-sense oncology' CBC News, by Amina Zafar and Christine Birak; 3/11/24 People may celebrate a 2-week improvement in survival without acknowledging costs. When a treatment buys a few weeks or months but comes with with a lot of side-effects, then the perspectives of people with cancer may differ, says Dr. Christopher Booth. ... The goal of what they call "common-sense oncology" is to prioritize treatments that meaningfully improve survival and quality of life. They aim to address what they see as problems in the field, such as a lack of critical thinking in oncology training, falling standards for drug approvals and avoidance of end-of-life discussions.
Smaller wage increases predicted for 2024: survey
03/12/24 at 03:00 AMSmaller wage increases predicted for 2024: surveyMcKnights Senior Living, by Kathleen Steele Gaivin; 3/8/24Wage increases for senior living and care employees are predicted to dip from 4.43% in 2023 to 3.64% this year, according to responses to a newly released Ziegler CFO Hotline survey. The news comes as providers continue to be challenged in recruiting and retaining workers, with compensation as one strategy.
Patients with metastatic cancer state more accurate prognosis when in poor health
03/12/24 at 02:00 AMPatients with metastatic cancer state more accurate prognosis when in poor healthMedscape / YouTube, Dr. Maurie Markman; 3/7/24Dr. Maurie Markman discusses a paper focused on the controversial oncology topic of prognosis beliefs among patients with metastatic cancer.Editor's Note: For the transcript, click on the link beneath the YouTube's description that has the text "medscape.com/viewarticle."
Tour a room at Quiet Oaks Hospice House video
03/08/24 at 03:45 AMTour a room at Quiet Oaks Hospice House video WJON News, St. Cloud, MN; 3/6/24 Even though Quiet Oaks Hospice House has been in our community for over 15 years now, many of us have never actually visited the home. They have eight rooms with all suites similar in size and layout. Executive Director Linda Allen says they have a large-sized hospital bed so loved ones can sleep together. Other room amenities include a TV, radio, and wifi. ... The rooms are equipped with a call button for help and have a camera monitoring system.Editor's Note: This simple, warm, practical video can help allay fears of hospice patients, caregivers, and family members. This type of visual information can be especially supportive to long distance family members who might be grappling with the news of moving their loved one to a hospice facility.
Last Writers craft legacies, embrace stories in hospice care
03/08/24 at 03:00 AMLast Writers craft legacies, embrace stories in hospice care The Daily Texan, by Sabrina Ye; 3/6/24 At local hospice homes, a passionate group of volunteers task themselves with writing memoirs that celebrate the richness of patients’ experiences. This heartfelt service they provide not only preserves legacies but highlights the timeless beauty of storytelling. UT Last Writers volunteer to converse with hospice patients and capture their life stories.
Rising suicide risk among seniors due to loneliness, mobility, financial insecurity, study finds
03/07/24 at 02:00 AMRising suicide risk among seniors due to loneliness, mobility, financial insecurity, study finds McKnights Home Care, by Adam Healy; 3/5/24As the number of adults over 65 continues to grow, suicide rates among older adults have also been rising, according to data from the National Center for Health Statistics. Between 2008 and 2017, the share of suicide-related emergency department visits among adults 65 years and older more than doubled. These older adults face age-related stressors that can negatively affect mental health, such as declining physical health, reduced mental sharpness, or the loss of friends or loved ones, which can heighten the risk of suicide.
Podcast: Dr. Robert Carolla’s reflections on life and mortality
03/04/24 at 03:00 AMPodcast: Dr. Robert Carolla’s reflections on life and mortality Springfield Daily Citizen; 2/28/24 Dr. Carolla, a pioneer in his field, sheds light on the delicate balance between life and mortality that oncologists navigate daily. Through his work with the Hospice Foundation of the Ozarks and national recognition from StoryCorps broadcasts, he and his wife, Peg, have touched countless lives with their compassion and dedication. Dr. Carolla’s journey offers a profound perspective shift on life, death, grief and the human experience.
[No One Dies Alone Volunteer] A 'national treasure': St. Peter's Health volunteer has spread smiles and care for over 50 years
02/23/24 at 03:00 AMA 'national treasure': St. Peter's Health volunteer has spread smiles and care for over 50 yearsIndependent Record, by Sonny Tapia; 2/20/24A volunteer with an infectious smile, care in her heart and a willingness to put others first has partially called it quits after 53 years at St. Peter’s Health. Helen Bunkowske is retiring from part of her duties at the hospital that included walking patients to their rooms for appointments and helping stressed-out patients before a surgery, but is continuing her work with the hospice program and the No One Dies Alone program through the hospital.
Psychological issues in palliative care: Elissa Kozlov and Des Azizoddin
02/23/24 at 03:00 AMPsychological issues in palliative care: Elissa Kozlov and Des AzizoddinGeriPal podcast, by Alex Smith; 2/22/24Today we talk with two psychologists who are deeply invested in addressing psychological aspects of care for people living with serious illness. Elissa Kozlov, a geropsychologist and director of a new population aging MPH at Rutgers, surveyed AAHPM members, and found that doctors reported major shortcomings in level of comfort and knowledge caring for patients with psychological illness. She conducted a systematic review and meta-analysis of 38 palliative care trials, finding that many excluded people with serious illness, and a lack of impact on psychological outcomes. Analyzing the Health and Retirement Study, she found 60% of older adults screened positive for depression in the last year of life.
'One more moment' singer Cat Janice, 31, shares heartbreaking health update weeks after her song to help son through diagnosis went viral
02/23/24 at 03:00 AM'One more moment' singer Cat Janice, 31, shares heartbreaking health update weeks after her song to help son through diagnosis went viralThe U.S. Sun, by Olivia Salamone; 2/21/24... Janice underwent surgery, chemotherapy, and radiation and was told that she was cancer-free in July 2022. However, in June 2023, she announced that the disease had come back, this time in her lungs. ... The singer has continued to make music throughout her cancer battles. ... "Dance You Out Of My Head" ... made it to the top 10 worldwide songs on iTunes, and ... number one on TikTok Billboard Top 50. ... The musician transferred the song rights to her son, Loren "which means all the proceeds for the now-viral hit (along with the rest of her catalog) will go directly into his bank account," the outlet continued. ..."I don’t want to die. But I’ve had a really wonderful life, and I got to have this really incredible last moment, and I thank God for it." The U.S. Sun has reached out to Cat Janice for comment and her husband Kyle Higginbotham for an update.
Exploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversations
02/23/24 at 03:00 AMExploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversationsNurs Older People, by Stacey Dodson; 2/21/24Findings: Frailty appeared to be complex, multifaceted and at times difficult to identify. A diagnosis of severe frailty did not necessarily prompt advance care planning and end of life care conversations. Such conversations were more likely to happen if the person had comorbidities, for example cancer. Prognostication appeared to be challenging, partly due to the gradual and uncertain trajectory in frailty and a lack of understanding, on the part of healthcare professionals, of the condition and its effects.
Identity shifts throughout HCT: A holistic approach to patient, caregiver support
02/23/24 at 01:00 AMIdentity shifts throughout HCT: A holistic approach to patient, caregiver supportHematology Advisor; by Katie Schoeppner, MSW, LICSW; Leah Christianson, OPN-CG; Hailey Hassel, MSW, LICSW; Cortney Alleyne, MPH; 2/20/24Patients undergoing hematopoietic cell transplant (HCT), their caregivers, and family members often experience dramatic shifts in their identity during and after the transplant process. These shifts can cause significant disruption in their lives, even among the most stable family and friend units. With holistic guidance and informed, empathetic care from professionals on healthcare teams, these patients and their support persons can better cope with the identity-related challenges they face.Editor's Note: See the patients you serve as persons. While this article focuses on person undergoing hematopoietic cell transplant, its rich insights about the patient/person's "tangible and intangible identity shifts" apply to the persons you serve, whatever the diagnosis. Read this article to develop your empathy and its practical applications throughout the services your organizations provide.
Hospice experts advocate for early admission to hospice
02/21/24 at 03:00 AMHospice experts advocate for early admission to hospice The Herald-Mail, by Hospice of Washington County; 2/19/24“Former President Jimmy Carter’s months-long time in hospice has helped tens of millions of Americans realize that hospice isn’t a brink-of-death service, that it helps patients and families focus on quality of life and not just length of life,” observed Hospice of Washington County CEO Sara McKay. Editor's Note: How is your hospice organization responding to news about President Jimmy Carter's extended hospice care? This article provides a great example.
Death can be isolating and dehumanizing. But what if it didn’t have to be?
02/21/24 at 03:00 AMDeath can be isolating and dehumanizing. But what if it didn’t have to be?City Life, by Ben Seal; 2/17/24... In the three years since Elaine’s passing, I’ve longed for a world where more people could be given the chance to die as she did — with the fullness of life surrounding her, and with complete support, emphasizing the emotional and spiritual, not just the medical. In Philadelphia and beyond, a growing community of death-care workers — doulas, nurses, grief counselors, social workers, even funeral directors — is trying to build that world. They are reclaiming death and dying from the institutional model that has become the norm over the past century. Editor's Note: Has hospice now become so institutionalized and medical/regulatory focused that we have lost sight of "emphasizing the emotional and spiritual, not just the medical"? I ask the question, but do not draw judgment, as answers must be contextualized.
Back from the Super Bowl: Terminally ill Oak Hill man gives update on his trip of a lifetime
02/19/24 at 03:00 AMBack from the Super Bowl: Terminally ill Oak Hill man gives update on his trip of a lifetimeWVVA, by Gailyn Markham; 2/16/24Last week, WVVA shared the story of a terminally ill man from Oak Hill who had been selected by the NFL and Dream Foundation to go to the Super Bowl in Las Vegas. Well, John Dean, 63, is back home in West Virginia and shares some details of his trip of a lifetime. Dean was one of two sports fans chosen to attend the 58th Super Bowl and watch the Kansas City Chiefs and San Francisco 49ers go head-to-head. He says the experience was an emotional one that he will never forget, and shares more in a video diary he took on the big day. ... “We are finally at the Super Bowl! My dream come true...Go Kansas City! Thank you, NFL, and, thank you, Dream Foundation for making this dream possible!”
This hospice volunteer program is transforming end-of-life care for inmates in Maine
02/19/24 at 02:00 AMThis hospice volunteer program is transforming end-of-life care for inmates in MaineYouTube - News Center Maine, video news; 2/16/24The prisoner hospice volunteer program started in 2001 as a partnership among the Maine Hospice Council, Maine State Prison, and Maine Department of Corrections.