Literature Review

Hurricane Helene Disaster Relief Fund for home care & hospice employees in the CarolinasAssociation for Home & Hospice Care of North Carolina (AHHC of NC); by Judy Penn, Executive Director; 10/3/24 Click here to DONATE. Click here to APPLY for Assistance. urricane Helene has severely impacted our community, with many lives already lost in the Carolinas, and countless missing with no means of communication.  The Carolinas Foundation for Hospice & Home Care is accepting donations to distribute directly to hospice and home care employees devastated by this storm. Agencies are facing tremendous challenges, including displacement and/or evacuation of staff and patients, collapsed roads, failing infrastructure, lack of water, and the inability to communicate with downed lines. There is a major need for gas to continue to power generators for oxygen dependent patients both in home settings and hospice inpatient facilities. The Association staff has been in contact with government agencies to us keep up-to-date on the situation as it unfolds. Our industry is comprised of caring, compassionate individuals who help those in need. Please consider donating to the Hurricane Helene Relief Fund to help home care and hospice employees hit the hardest. ... 100% of ALL ADMINISTRATIVE COSTS are being borne by the Association and the Foundation. 100% of your donation (tax-deductible) comes in, and 100% of your donation goes out.

Mercy House of the Southern Tier breaks grounds for $2 million expansion to enhance end of life care WNBF News Radio; by Traci Taylor; 10/1/24Mercy House of the Southern Tier recently celebrated the groundbreaking of its highly-anticipated $2 million expansion project, marking a significant milestone in its mission to provide compassionate care for terminally ill patients and their families during life's most challenging moments. ... Linda Cerra, the Executive Director of Mercy House of the Southern Tier, expressed gratitude towards their hospice partner, Guthrie Hospice of Vestal, along with the Guthrie and UHS Palliative Care teams, Broome Oncology, BGH PCU, and Endwell Family Physicians. Their unwavering support ensures that residents receive the utmost compassionate end-of-life care, embodying the core values of Mercy House.

[CBS Evening News] Home hospice care in the spotlight as former President Jimmy Carter turns 100 CBS Evening News Segment; by Jon LaPook and Winick, anchored by Norah O'Donnell; 9/30/24This past spring, Joan Prum's advanced age and increasing frailty ushered in a new reality when she became a hospice patient. "I thought that unless you were really infirm and bedridden, you wouldn't be a candidate for hospice, but it turns out not to be true," Prum said. Healthcare teams provide comfort to hospice patients expected to live no longer than six months. As with all palliative care, trained professionals offer medication and treatments to decrease pain and increase quality of life. But with hospice, attempts to cure a person's illness are stopped. Connecticut Hospice, which oversees Prum's care, became the first hospice in the nation 50 years ago. Predicting how long somebody has to live is difficult, but CEO Barbara Pearce says the patient and their families make the decision to enter hospice. ... "Hospice care involves sitting down at the very beginning and say, what are your goals of care? What do you want your life to look like in the next few months? And how can we help?" Pearce said. Hospice care can be given in nursing homes, assisted living facilities, and places like Connecticut Hospice, but about 99% choose to receive services at home, just like Prum and former President Jimmy Carter. Carter, who turns 100 years old on Tuesday, Oct. 1, is the oldest former president in U.S. history, and has been in home hospice care for the past 19 months.

Alliance sees Hospice CARE Act as opportunity to advance hospice benefit discussionNHCPO / National Alliance for Care at Home; Press Release; 9/26/24 The National Alliance for Care at Home (the Alliance), a new national organization formed by the integration of the National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO) recognizes the introduction of the Hospice Care Accountability, Reform, and Enforcement (CARE) Act, by Congressman Earl Blumenauer (OR-3).  The Alliance shares Rep. Blumenauer’s desire to update the Medicare hospice benefit to address the evolving needs of our country’s aging population while ensuring the sustainability and integrity of the hospice program. As a long-standing champion of hospice care, Rep. Blumenauer has consistently demonstrated a commitment to ensuring that hospice services remain accessible, compassionate, and of the highest quality for patients and their families. The Alliance appreciates Rep. Blumenauer’s commitment to involving a diverse group of stakeholders in developing this legislation and will continue to work closely with congressional leaders on the finer points of the proposed bill to ensure that the final legislation supports the needs of patients, families, and providers alike. 

Longview hospice adds handmade quilt donations under new management The Daily News; by Minka Atkinson; 9/27/24 At PeaceHealth Ray Hickey Hospice House in Vancouver, patients receive handmade quilts to drape their beds that are then donated to their family as a memento after their passing. PeaceHealth is now looking to bring this tradition to Richard Nau Hospice House, which it took over in November. “It gives the home, cozy feeling to those patients,” Hospice Volunteer Program supervisor Jennifer Linde said. The quilts are sourced through donations from local community groups, like the Kalama Quilters and Calvary Community Church, Linde said. Individual quilters are also welcome to contribute. ...

Blumenauer proposes overhaul to Hospice Benefit: If enacted, the legislation would be the single most significant update to the hospice benefit and payment structure since its inception in 1982.U.S. Congressman Earl Blumenauer, Washington, DC; Press Release; 9/26/24Today, Congressman Earl Blumenauer (D-OR), a senior member of the Ways and Means Committee, introduced the Hospice Care Accountability, Reform and Enforcement Act (Hospice CARE Act) to modernize Medicare’s hospice benefit, which has remained largely unchanged since its inception in 1982. The proposal comes as egregious reportsof fraud and abuse within the benefit persist, despite action from Centers for Medicare & Medicaid Services (CMS). The legislation is the product of years of collaboration between stakeholders, lawmakers, and industry leaders. It builds on Blumenauer’s decades-long commitment to ensure the federal government supports families at a time of great stress and vulnerability: the end of life. 

BREAKING NEWS: 9/27/2024 11:45 am - Blumenauer proposes overhaul to Hospice Benefit: If enacted, the legislation would be the single most significant update to the hospice benefit and payment structure since its inception in 1982.

5 signs that quickly identify someone with good leadership skills Inc., by Marcel Schwantes; 9/25/24 Not every person in charge of another person, team, or company is aware of which behaviors motivates and inspires others. Do you agree with this statement? For any human relationship to thrive, it has to be founded on trust. ... Great Place To Work -- the global research consultancy that partners with Fortune to conduct the annual study of those best companies -- has confirmed that trust is the human behavior you cannot afford not to have. It found that 92 percent of employees believe that their managers are people they can trust. ... Not every person in charge of another person, team, or company is aware of which behaviors produce the kind of trust that motivates and inspires others. For those who do, it is a continuous journey of personal development. In their journey, they'll most likely find that trust is only present when certain behaviors are displayed daily. Here are five that I have identified as leading to trust:

Filling trailers, homes & hearts Tracy Area Headlight Herald, Tracy, MN; 9/25/24 The Hospice of Murray County Rummage Sale takes place every fall at the Murray County Fairgrounds in Slayton. But in no other year has the event meant as much to people organizers will never meet. And for one former Tracy resident, it provided a chance to make an even bigger difference than she already does in her hometown of Mankato. Two trailers full of all kinds of furniture — from chairs, tables and couches, to beds and lamps — were driven from the fairgrounds to Mankato on Saturday for an organization called A Fresh Start, a program started during COVID that supports those impacted by the homeless. Editor's note: What a beautiful, thoughtful community partnership.

Companies committed to DEI but may talk about it differently: surveyMcKnight's Senior Living; by Kathleen Steele Gaivin; 9/19/24Social impact is a growing corporate strategy, even if it isn’t talked about, according to the results of a survey by the Association of Corporate Citizenship Professionals and YourCause from Blackbaud. “The 2024 results show how the current landscape of corporate social impact is both dynamic and demanding, reflecting a field that is a priority to key stakeholders, including employees, customers, investors and community,” according to ACCP, which surveyed 125 companies in April. Ninety-six percent of the companies reported a continued commitment to diversity, equity and inclusion, or DEI, initiatives... DEI has become a polarizing political issue this year, according to ACCP. That doesn’t mean that companies are backing away from their commitments, but they may be changing the way they talk about DEI.Publisher's note: The Louisiana ~ Mississippi Hospice & Palliative Care Organization, a Hospice & Palliative Care Today sponsor, has a Health Disparities and Inequities Taskforce that has completed, among several other things, a Standards of Excellence certification process around diversity, equity, inclusion, and belonging.

Suffering revisited: Tenets of intensive caring Psychiatric Times; by Harvey Max Chochinov, MD, PhD, FRCPC Patients approaching death experience many losses, including losing a sense of self. This is perhaps one of the most substantive existential challenges dying patients face, as they find the essence of who they are—along with who they were or who they want to be—under assault. This notion of disintegration or fractured sense of personhood often lies at the heart of human suffering, which Eric Cassell, MD, MACP, defined as a person’s severe distress at a threat to their personal integrity. Although suffering can often lead to feelings of hopelessness and therapeutic nihilism for patients and health care professionals, it is important for those of us who care for the dying to understand the nature of suffering and how to be most responsive and therapeutically effective. [This author's Tenets of Intensive Caring include the following:]

Death is no enemy Psychiatric Times; by Sidney Zisook, MD; 9/17/24... As mental health clinicians, we often confine our conversations about death and dying to recognizing suicide risk and preventing suicide. And for good reason. Suicide is the 11th leading cause of death in the United States, ... Far less attention is paid by mental health clinicians to other aspects of death and dying. But we are human, first and foremost, and coping with a host of issues related to the end of life is inextricably bound to both our professional and personal lives. Like it or not, death is part of life. We, as mental health clinicians, are not always as prepared as we would like to be to help ourselves, our loved ones, our patients, and their loved ones deal with loss, dying, death, and bereavement. For many physicians, 1 or 2 hours in medical school and perhaps another few hours during residency are all the training we receive in these complex and challenging clinical issues. ...  Chochinov provides a clinician’s guide for “being with” dying patients. He offers ways of providing intensive caring to enhance empathy, respect, connectivity, and hope, and to make the experience of a dying patient more tolerable than it otherwise might be. ... I have utilized his Patient Dignity Question, which asks, “What do I need to know about you as a person to take the best care of you possible?” on several occasions with gratifying results for both the patient and me.