Literature Review

A woman in hospice granted a wish of one last swim WEAU-13 News, Bloomer, WI; by Danile Gomez; 7/16/25 Often times the small things are taken for granted. Like a dip in the pool. For Barbara Melby, it was on the final list of things to do as she lives out her time in hospice care. “Barbara has been doing pretty well. She has had some fatigue and some tiredness,” said Leah Grace, the registered nurse with St. Croix Hospice assigned to Melby’s case. ... Grace worked hard to make sure Melby’s last dip in the pool would come to fruition. She cleared it with Melby, her family and the managers at the hospice center. The aquatic center helped in granting the wish too. ... “The way the chair put me in down the water was very nice,” said Melby. Of those in Melby’s family that jumped in the pool with her included Stoll and her kids Colby, Sydney and Brody. “I grew up swimming in my grandmother’s pool. ...” said Stoll. She is happy to be there for her grandmother’s last swim. “Just a pretty special memory we will all hold on to for a pretty long time.” Melby was a swim instructor, ... It was something she always loved and it made her happy to have had her wish granted.

Caring for a difficult elderly parent during a transitionPsychology Today - Caregiving; "Personal Perspective" by Franne Sippel, EdD, LP; 7/21/25 I am the only child of an only child who lives in an assisted living facility thousands of miles away. I unofficially diagnosed Mom with obsessive-compulsive personality disorder after struggling for years with a relationship fraught with guilt and frustration. ... It’s difficult enough to care for a frail parent when their health is failing. However, the added OCD personality, with its micromanaging, rules, and demands, tests patience beyond compare.  ... A good friend suggested I call hospice to evaluate her. Jim, a hospice RN in his 70s, arrived and instantly assessed the situation with laser-like precision. ... I spend many months going back and forth between South Dakota and Arizona to see my mom. Hospice continues to visit her three to four times a week at the assisted living facility, and a dear family friend also visits her several times a week. ... Editor's Note: Keep reading this article to its end. The insightful, practical, sensitive care from these hospice clinicians generated life-long transformations for this burdened caregiver-daughter. 

Rochester hospice provider pulls out of Owatonna project, sunsets community grief services PostBulletin,com, Rochester, NY; by Dené K. Dryden; 7/17/25 Citing multiple challenges, Rochester's Seasons Hospice will no longer be expanding into Owatonna and will pare back its community services through the Center for Grief Education and Support. In a Friday, July 18, press release to the Post Bulletin, Dawn Beck, president of the nonprofit hospice provider's board of directors, said "we have had to make the extremely difficult decision to restructure our grief services and to cease efforts to reopen the Homestead Hospice House in Owatonna." The Homestead Hospice House, previously operated by Allina Health, has been closed since summer 2023, the Owatonna Peoples Press reported. Since last year, Seasons Hospice had been fundraising to reopen the facility, but Beck said this week that staffing challenges, financial difficulties, issues with licensing and certification, for-profit competition and uncertainty around federal changes contributed to Seasons Hospice withdrawing from the project. ... In Rochester, starting Aug. 1, the Center for Grief Education and Support will no longer provide services to the community at large ...

Changing funeral preferences: NFDA’s first-of-its-kind generational report now available National Funeral Directors Association (NFDA), Brookfield, WI; Press Release; 4/2/25 The National Funeral Directors Association (NFDA), the world’s leading and largest funeral service association, has released an unprecedented study examining consumer attitudes toward funeral service across generations. Available to funeral service professionals for download at no charge, Changing Consumer Preferences: A Generational Perspective on Attitudes Toward Funeral Service provides critical insights to help funeral service professionals adapt to evolving expectations and continue delivering meaningful memorial experiences. ... Key findings include:

Understanding the influence of culture on end-of-life, palliative, and hospice care: A narrative review Cureus; by Veena Hira, Sainamitha R. Palnati, and Saajan Bhakta; 7/15/25 ... This narrative review included 25 relevant publications related to influence of culture and patient demographics on end-of-life care, hospice, and palliative care. As each culture has its own unique views on death and dying, it is crucial to note these cultural differences when assisting with end-of-life care to best align with patients’ beliefs and values. Themes such as cultural barriers, communication preferences and family roles emerged from the publications. ... This narrative review offered a snapshot of how culture influences end-of-life decisions worldwide, specifically in East Asia, South Asia, the Middle East, Europe, and North America, while highlighting themes of 1) truth disclosure and communication preferences, 2) patient autonomy and family involvement, and 3) perception of illness and death. ... Central to providing effective end-of-life care is open, culturally tailored communication that respects patients’ and families’ values, facilitated through shared decision-making discussions. ... Ultimately, integrating cultural understandings of death and dying into end-of-life care planning is not simply a matter of sensitivity, but it is a matter of quality and equity. Health systems must not only provide choices but ensure those choices are intelligible, meaningful, and respectful within the patient’s worldview.Editor's Note: Pair this today's post, My health and my politics walk into a doctor’s office …

The quiet note: Music, the language of compassion at life's end Psychology Today; by Sara Leila Sherman and Morton Sherman; 7/14/25 Music plays a vital role in the quieter, more tender, more difficult moments of life, especially near the end. We’ve seen how a single note, played or remembered, can become a bridge between worlds, between a person and their memories, a caregiver and a patient, a life lived and a life letting go. In those final moments of life, where silence often speaks louder than words, music and mindful action offer something medicine cannot: presence. 

CDC reports rise in unintentional fall deaths among older adults JAMA; by Samantha Anderer; 7/11/25 The US Centers for Disease Control and Prevention (CDC) reported that deaths from unintentional falls among adults aged 65 years or older increased over the past 2 decades. Falls are currently the leading cause of injury for older adults, reaching 70 per 100 000 in 2023. As age increases, so does the likelihood of death due to a fall. And data from the National Vital Statistics System indicate that from 2003 to 2023, adults aged 85 years or older experienced the greatest increase in fall deaths. Rates for men, who are more likely to die from an unintentional fall, doubled from 178 to 373 per 100 000 people among those 85 years or older. For women in the same age group, deaths from falls increased 2.5 times, from 129 to 320 per 100 000. 

‘Family’s Voice Diary’ improved support for caregivers of patients at the end of life Oncology Nurse; by Ryner Lai; 7/1/25 The authors of this study sought to understand the challenges that caregivers face when a patient is approaching end of life. For this study, they worked with bereaved relatives, members of the public, healthcare professionals, and policymakers to develop the Family’s Voice Diary (FVD), an initiative that allowed participants to freely express their thoughts regarding end-of-life care and the role of caregivers. ... These interviews illuminated some of the challenges that were faced when providing end-of-life care. For example, families expressed a lack of knowledge regarding what “normal” dying looks like and they wanted more support from healthcare staff, but were reluctant to ask or didn’t know how to approach the subject. Healthcare professionals themselves appeared to be reluctant to discuss matters associated with death. 

Avera Medical Minute: Family shares their experience with hospice care Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 6/30/25 Hospice care is more than just medical support. At the Dougherty Hospice House, it can be considered a home away from home, where staff aim to offer patients and their families the assistance and comfort they need during this difficult time. In this Avera Medical Minute, one Sioux Falls family shares how, thanks to the hospice team, they were able to focus on spending time with their loved one. Craig Lloyd was known as a development leader in the Sioux Falls community, building homes and more throughout the city. “He had a big heart, so he just kept trying to improve things, his thought was always ‘God put me on this Earth to make it better,’” said Craig’s wife, Pat Lloyd. ... Craig was also in Florida at the time when he needed hospice care and Pat credits the work of Avera and the hospice team in making a smooth transition for Craig from there to home in Sioux Falls and then to Dougherty Hospice House.

“Her toes fell off into my hand”: 50 moments that changed healthcare workers forever BoredPanda; by Dominyka; 6/18/25 When we go through traumatic events, our brain can shut out feelings and thoughts as a way to protect us from emotional or physical damage. This can make people go numb in stressful situations, so our bodies have time to figure out the best course of survival.  Healthcare workers are frequently exposed to traumatic experiences, so when they were asked what event made them go permanently numb, they shared many devastating stories. Scroll down to find them below, and don’t forget to share similar ones if you have any. 

Recommendations for palliative care program standards Center to Advance Palliative Care (CAPC); last updated 5/29/25CAPC has synthesized the NCP Guidelines into an operational summary for payers and policymakers to use in credentialing palliative care providers or informing minimum program requirements. These recommendations call for: an interdisciplinary team with 3 or more essential clinical disciplines: physician, advance practice provider, nurse, social worker, spiritual care professional and a child life specialist for programs serving children. One or more prescribers must have specialty certification in palliative care with others documenting some specialty training. PC services must include Comprehensive patient assessments, Pain and symptom management, Documented conversations about condition, treatment options, and goals of care, Psychological, social and spiritual support, Patient and family/caregiver education, and Coordination with behavior health and community health resources, and Development of a crisis intervention plan. The recommendations also specify 24/7 access to a prescribing clinician, clear discharge criteria, and routine evaluations of program quality.Guest Editor's Note, Ira Byock: These new recommendations from CAPC are timely and important. Building from the NCP Guidelines, CAPC is providing a framework for developing formal standards. That task is urgent given the pressures programs are under to reduce staffing, limit hours of service, and scope of services. I appreciate inclusion of crisis intervention planning, which should be a critical part of every palliative plan of care. The recommendations are strong, yet the statement’s wording is hesitant in tone. CAPC has the organizational stature to issue explicit minimum specifications for programs that purport to deliver palliative care. Health plans, payers, referring providers, and patients deserve assurance that such minimums are met or exceeded. CAPC has taken a significant step in the right direction.  

Empath revamping physical, digital workspace for improved employee experience Hospice News; by Jim Parker; 6/16/25 ... [Empath is updating] its physical locations to enhance the workspace for employees. “Some of this workspace design that we’re doing is innovative. We’ve invested in common workplace environments. We have quiet rooms, where people can go and focus on rest, relaxation and ease in the middle of the day. We leave your laptops, leave your phones out of that room,” Fleece told Hospice News. “We’ve invested in common kitchen areas and gathering places that are like a workplace cafe, with coffee, lounge chairs, TVs and things like that, so people can get together and socialize while they are in the office.” Florida-based Empath Health is the parent company of 17 affiliates and four philanthropic foundations. The organization provides care to more than 81,000 patients annually. 

Fostering a team-based approach to elevate neuro-oncology care CancerNetwork; by Sylvia Kurz, MD, PhD; 6/9/25 Sylvia Kurz, MD, PhD, spoke with CancerNetwork® about the importance of collaborating with multiple disciplines to elevate the level of care and meet the needs of patients with brain tumors.