Literature Review

Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patientsThe MarCom Journal, Charleston, SC; by Globe Newswire; 2/6/25While the topic of death is generally considered taboo, English teacher turned hospice administrator Matthew Cornett believes there is much to be learned from death. After becoming an empty nester, Cornett left the classroom behind and began a second career in hospice care. And the more time he spent with people as they approached the end of their life, the more he realized that their deaths had meaning. And what emerged from those final moments was something profound. Hoping to make others feel more comfortable when it comes to preparing for and talking about death, he presents a memoir of his journey into the world of hospice care. In If We Never Meet Again, Cornett chronicles his experiences providing compassion and support to hospice patients while adjusting to his new role. Finding inspiration in his patient’s “death stories,” he found himself on an unexpected path of self-discovery. Cornett’s personal reflections on these intimate and emotional interactions encourage readers to reconsider how they view death and dying.

New report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.  

Digital meditation to target employee stress-A randomized clinical trialJAMA Network Open; Rachel M. Radin, PhD; Julie Vacarro, MA; Elena Fromer, BA; Sarah E. Ahmadi, BA; Joanna Y. Guan, BA; Sarah M. Fisher, MS; Sarah D. Pressman, PhD; John F. Hunter, PhD; Kate Sweeny, PhD; A. Janet Tomiyama, PhD; Lauren Tiongco Hofschneider, PhD; Matthew J. Zawadzki, PhD; Larisa Gavrilova, PhD; Elissa S. Epel, PhD; Aric A. Prather, PhD; 1/25Mental health is at an historic low in the US, and work stress may be a primary contributor. Work stress is associated with poorer emotional and physical well-being, as well as high absenteeism and low presenteeism. Participants were randomized 1:1 to a digital meditation program or the waiting list control condition. Participants in the intervention group were instructed to complete 10 minutes of meditation per day for 8 weeks. The findings suggest that participating in a brief digital mindfulness-based program is an effective method for reducing general and work-related stress in employees. 

What can we learn from the dying? Newscastle's News Letter Journal (NLJ), Newcastle, WY; by Kelly Evans-Hullinger, MD; 1/26/25 For the last five years, I have had the great privilege of serving my local health system as Medical Director for Home Hospice. Every week I sit in a meeting with the multidisciplinary caretakers on this team ... Patients facing their own deaths want to talk about their lives. Our staff frequently tries to facilitate what they call a “life review” in which a patient can openly talk about their childhood, family, career, service, and sometimes their regrets. This is therapeutic for the dying patient and their loved ones.  ... I have recently thought about this particular human need – to reflect and remember one’s life. I take this as a reminder to both seek those stories from my own loved ones (I wish I had asked my grandmother more questions about her life) and, perhaps, to tell and write about the things in my own life I would want to be remembered after I am gone. For if there is another thing I’ve learned serving patients on hospice, it is that my death is also inevitable; but, I think, life’s finality is what gives it beauty and meaning. 

Care Dimensions receives $10,000 grant from ACM Lifting Lives to support music therapy program MassNonprofit News; 1/22/25Care Dimensions, the largest hospice and palliative care provider in Massachusetts, is proud to announce receiving a $10,000 grant from ACM Lifting Lives®, the philanthropic partner of the Academy of Country Music. ... “Dealing with memory loss can be such an unmooring experience,” noted Care Dimensions Creative Arts Therapy Coordinator Li Kynvi, who is a board-certified music therapist. “One of the magical things about music therapy, especially for those with dementia, is that music lives in them in a whole different way than even the last five minutes does, which enables them to not only engage with a song, but engage with the person sharing it, and delivers a feeling of connection and competence often difficult for dementia patients to experience.”Editor's note: Providing patient care from a board certified music therapist is far superior to simply having a musician perform. Music therapy focuses on the person: physically, mentally, emotionally, socially, spiritually. Music therapy engages memories and meanings for the present moment, and ahead. For more information, examine the Certification Board for Music Therapy. Click here for their directory.

How it feels to be a hospice nurse Post Independent; by Oanh Hoang, Hospice of the Valley; 1/22/25 If someone had asked me this question seven years ago, when I was a new graduate nurse, I would have said it felt terrifying, depressing, frightening, and sad. However, my feelings have changed since I became a hospice nurse 4.5 years ago. ... If someone were to ask me how it feels to be a hospice nurse now, I would tell them to grab a soda, popcorn, and snacks, and get comfortable because I could talk for hours about what it’s like. My feelings start with gratitude. I am grateful to be a part of the final phase of my patients’ lives, walking alongside them and their families toward a peaceful end. For all my hospice patients, time is the most valuable thing they have. ... Along with all these rewarding feelings, I also feel sadness when my patients pass away. But this sadness is different from the sadness I felt seven years ago. 

If you’ve overcome these 9 challenges in life, you’re more resilient than you think Personal Branding Blog; by Lucas Graham; 1/21/25 Resilience isn’t always about being unshakable or invincible. Sometimes, it’s just about surviving the chaos, picking yourself up after the mess, and somehow finding the courage to keep going. In the moment, it’s hard to see how strong you really are—you’re just trying to make it through. But when you pause and look back, you realize the grit it took to get here. ... [If] you’ve been through these nine challenges and made it out, you’re way more resilient than you give yourself credit for.

New data reveals the hidden costs of workplace violence in healthcare Perceptyx; by Ellen Lovell, PhD and Stephanie Schloemer, PhD; 1/17/25 Workplace violence has become an impossible-to-ignore crisis in healthcare, threatening the safety of medical professionals, patients, and institutions. The severity and frequency of these incidents have reached alarming levels, demanding immediate attention and action. ... The human cost is staggering.  ... While our research confirms the widespread nature of safety concerns in healthcare, a deeper analysis reveals significant variations across different healthcare environments and roles. This granular view helps us understand where intervention is most urgently needed. Editor's note: Although "hospice settings reported the lowest agreement at 54%," this statistic should be considered too high for comfort. Actions need to be taken to reduce it. From your professional leadership role, examine the importance of protecting hospice professionals' safety--typically in home settings--and through moments such vulnerable, emotional, conflicted times within families. What can your agency improve?

Knoxville nurses bring wedding to UT Medical Center for bride’s dying mother WATE Knoxville, TN; by Molly O'Brien; 1/15/25 Nurses on the Progressive Care Unit at UT Medical Center planned a wedding for one of their patient’s daughter. Samantha Barry and her now husband, Phillip Bastelica, were supposed to get married in a few months. Barry, like most daughters, always planned on her mother being at her wedding day. Her mother, Lynn, is battling a terminal illness and was recently released from the Progressive Care Unit to hospice. ... It seemed unlikely that Lynn would be able to attend the wedding planned for August, so Barry and Bastelica decided to move the day up. ... The nurses who cared for Lynn jumped into action to plan a wedding for Barry.

Home … where we all want to be The Journal; Dr. Sarah Phillips, Medical Director Hospice of the Panhandle; 1/12/25 Two days before Christmas, I arrived at the home of a patient who had been recently admitted to Hospice services. ... [Story of the patient being on a ventilator in a hospital.] This courageous and self-determined woman expressed the desire to be free from pain, suffering, and the complications and progression of her disease. Knowing that the ventilator was life-sustaining and essentially breathing for her, she made the decision to stop it. To ensure her comfort during discontinuation of the ventilator, the hospice team was present before, during, and after the procedure. Medications were used to ease shortness of breath, pain, and anxiety. ... “It’s a Wonderful Life” was playing on the TV, the Christmas tree was lit. I looked over and see the daughter wiping away her mother’s tears. Each reassured the other that everything will be OK and that they are at peace with this decision. As the medications took effect, the patient drifted off to sleep. The ventilator was stopped. Next, something happens that I will never forget. The daughter leans in and whispers to the patient, “Mom, the ventilator is off now, you are back in total control. This was profound to me on many levels. It certainly spoke to the power and importance of autonomy, the ability to make independent decisions that are aligned with one’s values and goals. ... Despite working in end-of-life care for over a decade, I still have these moments of being overwhelmed by the human spirit.

Daughter arrested for neglect after elderly mother found stuck to mattress The Augusta Press; by Greg Rickabaugh; 1/6/25 An elderly woman from Augusta was found in a state of severe neglect last week, prompting her daughter’s arrest. The 82-year-old was discovered incoherent and physically stuck to her mattress during a medical emergency on Dec. 30 at the home they shared on Rollingwood Drive, authorities said. When paramedics arrived at the family’s home, they found the woman non-responsive, with her skin literally adhered to the mattress due to untreated bedsores. She was rushed to Wellstar MCG Health, where she was stabilized. Authorities later arrested 54-year-old Tyrossale Peak, the woman’s daughter, charging her with neglect of a disabled or elderly adult. ... Investigators revealed that Peak had discontinued hospice care for her mother in June but failed to provide adequate care or maintain a safe living environment. 

What does a hospital chaplain do for patients seeking health care in Connecticut? Shelton Herald; by Jordan Nathaniel Fenster; 12/29/24 Rev. ReBecca Sala described her work as “archaeology of the soul.” Her first masters’ degree, long before she became a hospital chaplain, was in museum administration of archeological collections. She doesn’t see the two roles as very different.  “I've been a searcher my whole life,” she said. In the same way that an archaeologist gently brushes away the silt and stone of centuries, Sala said she attempts to gently allow emotions and spirituality to emerge from patients and their families receiving care at Stamford Hospital.  ... “That people even allow me to be there with them is humbling.” ... “It's meeting the patient where they are, not where I want them to be, what we as chaplains want them to be. It's finding out what's most important to them in that moment,” she said. .. Sala said if there was a bridge between the physical and the spiritual, it would be palliative care. The goal of palliative medicine is to improve the quality of a patient’s life physically, emotionally and spiritually.