Literature Review

IAHPC photo contest: We have our winners! International Association for Hospice & Palliative Care (IAHPC); 12/18/25 Our members submitted an incredible array of images that expressed moving moments, illustrated challenges, and showed the beauty of palliative care in their daily work. It required four rounds of judging by our five-member panel, plus a Zoom meeting at the end, to narrow the selection of 186 photos sent in and settle on the winners. [View]

I was 36 when my husband died — here's what most of us get wrong about grief Yahoo!Health; by Laura Williams, MS, ACSM EP-C; 12/16/25 Grief is universal, yet deeply personal. Instead of trying to "fix" or "help" someone who's grieving, it's important to make space for them to perpetually navigate the permanent reality of death. ... It turns out, time doesn't heal all wounds. Life simply grows around the immediacy of the pain — the sun rises and sets, and new experiences accumulate, whether or not you want them to, gradually taking the edge off. However, grief isn't just "deep sadness." It's not depression. It's not something you "get over" or "move on from." Grief is the loss of someone you loved — a voice you'll never hear again, a laugh you'll never share. It's the inside jokes no one else understands, the clothing that won't be worn again, ... It's a bed that won't be slept in, a dining room chair that remains empty, a silence that won't be filled.Editor's Note: This first-person reflection gives language to what grief truly is—and is not. It dismantles the myth that time “fixes” loss and instead names grief as a lifelong companion shaped by absence, memory, and love. If this piece feels uncomfortable or heavy at first glance, that discomfort may be instructive. For hospice and palliative leaders, it invites a sober question: how well does your organization acknowledge grief as enduring—and provide timely, meaningful support beyond death?

The balancing act: How caregivers navigate the stress of work, family, and caring for a loved one Delaware LIVE; by Staff Writer; 12/12/25With two-thirds of U.S. caregivers struggling to manage both employment and home duties, experts say planning, boundaries, and support can prevent burnout. ... Insights from national research and guidance from Delaware Hospice, Oasis Senior Care (a leading consultant for families), and Easterseals Delaware & Maryland’s Eastern Shore underscore a central message: you don’t have to do this alone, and thriving — not just surviving — is possible. ...

'Get out of my house': 84-year-old man shoots son in the face for not visiting mother in hospice care, police say Law & Crime, Palm Bay, FL; by Conrad Hoyt; 12/12/25 An elderly man is accused of shooting his son in the face because he and his spouse did not visit the older man's wife over the weekend while she was in at-home hospice care. William Nowak, 84, has been charged with attempted murder, according to an arrest affidavit reviewed by Law&Crime. Nowak was at his home ... in Palm Bay, Florida, where he lived with his wife and their disabled daughter. His wife had recently been put on in-home hospice care, "and William has been taking care of both of them," ... The defendant's son and his wife came over to the house to visit, something she said they did "on a weekly basis." After they arrived around 6 p.m., "William began to express how he was upset they did not visit over the weekend." According to authorities, an argument between the father and son ensued.

[UK] 'It’s like a weight lifted off your shoulders’: A qualitative study of adult carers taking a breakJournal of Family Issues; by Richard Meade, Debbie Cavers, Neneh Rowa-DewarView; 11/25Unpaid carers play a vital role in supporting individuals with life-limiting conditions, yet without adequate support, they risk poor health and burnout. Ten in-depth interviews were conducted with carers who had used temporary institutional respite services in Scotland. Six key themes emerged: ‘Caring is all-consuming’; ‘Caring changes sense of self’; ‘Relief, recovery, repair’; ‘Breaks give carers their lives back (briefly)’; ‘A break doesn’t solve everything’; and ‘Trust in the respite centre is crucial’. Findings indicate that institutional respite care provides overwhelmingly positive experiences for most carers, offering them essential relief and recovery from the demanding nature of caregiving. However, the benefits were often short-lived, with carers expressing a need for longer and more frequent breaks.

AARP: 55 percent of family caregivers use tech to coordinate care McKnights Home Care; by Donna Shryer; 12/9/25 Technology adoption is surging on both sides of the caregiving equation. AARP estimates there are about 63 million unpaid caregivers nationwide, and among those caregivers age 50 and older, 55% now use one or more digital tools to manage routines, coordinate care or track health. Among all adults age 50+ (unpaid caregivers and care recipients), 78% say they rely on technology to stay connected with friends and family, according to AARP’s newly released 2026 Tech Trends and Adults 50-Plus report.

HOV honors family traditions North Central News; by Staff; 12/8/25 Family traditions enrich the holiday season, and for Hispanic families in the community, Día de los Muertos is an especially meaningful observance, says Lin Sue Flood, director of community engagement at Hospice of the Valley. “Though the name translates to ‘Day of the Dead,’ this cherished Mexican holiday is not a morbid occasion. Instead, it is a vibrant celebration that honors those we hold dear through ofrendas (altars) adorned with photos, favorite foods and bright marigolds, alongside music and dancing,” she added. ... Organizer Dulce Rodriguez noted that the event helps reinforce family bonds across generations and strengthens cultural identity.

Accompanying Dad on his final journey: View from the treehouse Catholic Review; by Barb Arland-Fye; 12/1/25 Dad seemed preoccupied when we arrived at my parents’ home on a Saturday night in late September. Newly diagnosed with a fast-moving cancer, he had chosen to forgo chemotherapy for in-home hospice care, but “what-if” questions filled his mind. ... [Scroll ahead to hospice care at home.] We were determined to help Mom (and my siblings) accompany Dad on his final journey to heaven’s gate and we did, in his favorite space, a four-season room the grandkids affectionately named “The Treehouse” for its view of the woods. This is the room where Dad engaged in his favorite pastimes — reading and bonding with his kids and grandkids while urging on his beloved Minnesota Vikings, Gophers and other teams. ... The death rattle ceased and the quiet seemed deafening. Dad died at 6:40 a.m. Oct. 3, with my mom, Tim, and Steve and I at his side. We are grateful his suffering had ended but heartbroken to lose him. Sixty-seven years ago, Dad welcomed me into the world after an hours-long wait for Mom to give birth to their first child. I had the privilege of accompanying him on his journey out.

Hospice El Paso pediatric patient to spread joy with Toy Drive for local children ABC KIVA-7, El Paso, TX; by Armando Ramirez; 12/1/25 7-year-old Kenia Marisol Huerta Medina, a participant of Hospice El Paso's Butterfly Program, has a wish to help others this holiday season. According to Hospice El Paso, Kenia is battling diffuse intrinsic pontine glioma, a cancer that affects the central nervous system to include the brain and spinal cord. As apart of her holiday wish, Kenia is asking for Christmas toys and other gifts for undeserved children in the El Paso region.

I went to a conference about death. Everyone was laughing. USA Today, Los Angeles, CA; by David Oliver; 12/2/25 Welcome to the EndWell Summit, a gathering of more than 700 caregivers, clinicians and advocates who've grieved, are grieving or are working with those at the end of their lives. Speakers included a pediatric palliative care physician, a global health economist and a prison hospice advocate, not to mention celebrities like Emma Heming Willis (Bruce Willis' wife) and Katherine LaNasa ("The Pitt"). It's an inviting space – ... --where casual conversations and formal talks about death are tear-jerking one second and laugh-out-loud funny the next. ... The conference's theme was "radical bravery." Don't get it twisted, though. Radical bravery is not about being fearless, but staying present even when dark clouds form above you.

"Being ill defines your daily life": Social wellbeing of patients residing at home facing an incurable illness and their primary family caregivers BMC Palliative Care; by Trudy Schutter, Ian Koper, Marieke Groot, Kris Vissers, Jeroen Hasselaar; 11/28/25 Online ahead of print This study demonstrates that meaningful relationships, acknowledgement of one's situation and the ability to determine one's own level of involvement in society are essential for the social wellbeing of patients and family caregivers confronted with incurable illness. ... Furthermore, the quality of communication and relationships with healthcare providers, employers, and institutions, along with the prevailing societal attitudes towards incurable illness, caregiving, death, and dying, is of considerable significance and should be given careful attention.

How clinicians prenatally discuss management options and outcomes for congenital heart disease Journal of Pain and Symptom Management; by Samantha Syme, Kelsey Schweiberger, Judy C Chang, Ann Kavanaugh-McHugh, Nadine A Kasparian, Robert M Arnold, Kelly W Harris; 11/27/25 Online ahead of printA prenatal diagnosis of complex congenital heart disease (cCHD) introduces significant emotional, social, and financial stress for families. ... Fetal cardiology consultations offer an important opportunity to support families navigating uncertainty following a prenatal diagnosis of CHD. Clinicians approached these conversations with empathy and a focus on long-term outcomes, though discussions about management options varied. There is an opportunity for increased presentation and integration of palliative care consultants as a longitudinal, family-centered resource, regardless of mortality risk, which may enhance supports available to families during this highly emotional period.

'It has made my life a lot easier': New Ohio program pays people to care for their loved ones at homeWTOL-11, Columbus, OH; by Kevin Landers; 11/24/25 Mark Straub, of Delaware County, started caring for his 93-year-old mother about two years ago. As much as he loves to have his mother at home instead of a nursing home, caring for a loved one 24/7 brings with it stress, both emotional and financial. ... The average cost of in-home care in Ohio is $60,238, according to CareScout. The average cost of nursing home care is $108,500 a year, or about $9,000 per month. Thanks to a new program in Ohio, those who care for a loved one at home are about to get financially easier. It’s called Structured Family Caregiving, or SFC. Currently, at least 11 states have formal Medicaid SFC programs that pay family members. “I didn’t believe it at first, until I got that first paycheck and I really wanted to cry, “ said Tsavaris.