Literature Review

From stigma to support: Changing the cancer conversation Oncology Nursing Society (ONS); by Anne Snively, MBA, CAE; 4/29/25 Certain treatments (palliative care, opioids) and diagnoses (lung cancer) are more prone to association with cancer-related stigma. Nurses can play a vital role in reframing these thoughts and promoting empathy. ... Caner-related stigma has wide-reaching effects across the care continuum, including poorer patient outcomes. ...

Why are we so afraid to talk about our own death? Deseret News; by Holly Richardson; 4/21/25 We are more than comfortable with true-crime and first-person shooter games, but a lot of us do not want to talk about our own mortality. ... ... A whopping 84% of the U.S. population over age 13 ... consumes true crime media, according to Edison Research. It’s the most common topic among top-ranked podcasts. First-person shooter video games are the most popular genre. ... So why is it so hard to talk about our own mortality? Maybe we think we can live forever. ... A survey done last year explored reasons why people are uncomfortable talking about death. The top reason given (37%) was that people did not want to upset others, and the second (34%) was that it is too depressing to think about. About one in five say they’ll “cross that bridge when they come to it” or that they are afraid of dying. Ten percent are afraid that talking about death will somehow make it more likely to happen.Editor's note: While this data gives insights into communication with patients and families, Advance Directives, and community outreach, I find myself reflecting those of us who have chosen palliative, hospice, and/or grief care as our vocations. Do we protect ourselves from facing our own mortality by staying in "helper" roles, and avoiding our own human vulnerabilities? What conversations have you had with your family? What Advance Directives and legal plans do you have in place (or not)? 

Professor teaches student physicians how to use art to connect with end-of-life patients Thomasville Times-Enterprise, Moultrie, GA; by Staff Reports; 4/23/25Richard Curtis of Thomasville teaches art classes at Thomas University, but he’s also an end-of-life doula who volunteers with patients through Archbold Hospice, integrating his artistic skills into his volunteer work. Earlier this month, Curtis showcased his blend of art, medical care, and human interaction during a session of the Medical Humanities course at PCOM South Georgia. Led by faculty member Thomas Last, PhD, the course aims to help student physicians transcend the science of medicine. “The Medical Humanities course supports students’ growth into humanistic, socially conscious physicians by providing reflective opportunities and meaningful experiences that deepen their understanding of diverse patient perspectives,” Dr. Last said.Editor's note: Do you dismiss this? Does it seem too "out there"? For stronger context, Sandra Bertman, PhD, FT pioneered Arts Medicine with medical students and other healthcare clinicians. For most of her career, Bertman was Professor of Humanities in Medicine at the University of Massachusetts Medical School and Graduate School of Nursing, where she founded and directed the Program of Medical Humanities and Arts in Healthcare. (More personally, I've been blessed to know Sandra as my colleague and friend.) Dr. Bertman was awarded the Robert F. Kennedy Award for Social Justice (2018). Her primary publications include ...

I’m a hospice physician. There’s one thing I dread telling my patients. Slate; by Charlotte Grinberg; 4/22/25 Tom was dying, and managing his condition at home was increasingly difficult. ... His wife Sue was in survival mode. A few sleepless nights turned into weeks without rest, during which she was constantly trying to manage Tom’s symptoms and take care of his basic needs. I’m a hospice physician, and it’s at junctures like this that I can offer a life vest that completely changes the end-of-life experience. ... I told Sue that I thought Tom should transfer to our inpatient hospice facility. “You have done everything possible for Tom at home, it’s too much to ask of you or anybody,” I said. “He needs a higher level of care.” ... Getting a devoted spouse to agree to move their dying partner out of the home isn’t always easy. But a few days after Tom arrived at the inpatient hospice facility, Sue cried tears of appreciation describing the daily baths the caretakers there gave him. 

Palliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association AHAIASA Journals - American Heart Association; by Lucinda J. Graven, PhD, APRN, FAHA, Lisa Kitko, PhD, RN, FAHA, Martha Abshire Saylor, PhD, MSN, BA, RN, Larry Allen, MD, MHS, FAHA, Angela Durante, PhD, RN, Lorraine S. Evangelista, PhD, RN, CNS, WAN, FAHA, Amy Fiedler, MD, James Kirkpatrick, MD, Lakeisha Mixon, MSW, and Rachel Wells, PhD, MSN, BA on behalf of the American Heart Association Complex Cardiovascular Nursing Care Science Committee of the Council on Cardiovascular and Stroke Nursing; and Council on Cardiovascular Surgery and Anesthesia; 4/17/25  ... This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.

Hospitalists in a bind when cancer prognosis hasn’t sunk inMedscape; by Jake Remaly; 4/15/25 When a patient with cancer is admitted to the hospital, the reason might not be related to the malignancy. But the hospitalist in charge sometimes becomes aware of a major disconnect: The patient, who they just met, does not grasp the severity of their cancer prognosis. On the one hand, the hospital medicine team and patient have advance directives and goals of care to consider, which may steer the course of the hospitalization and any use of hospice. The cancer prognosis — the patient might only have months to live, for example — could be a key component of those conversations. On the other hand, explaining the cancer situation should fall to the oncologist, right? ...

Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day VITAS Healthcare; Press Release; 4/7/25 Only one in three adults in the United States have a written advance directive, a document critical in providing guidance to medical teams regarding one’s end-of-life wishes. As a pioneer and national leader in hospice and palliative care, VITAS Healthcare advocates for National Healthcare Decisions Day (April 16) and advance care planning––regardless of a person’s age or health status....  On April 16, VITAS will host a free webinar, Advance Directives and Advanced Care Planning, exploring the history, application and types of advance directives. VITAS Regional Medical Director Heather Veeder, MD, will provide practical advice to help healthcare professionals engage in difficult but necessary conversations with patients and families/caregivers. [Continue reading ...]

Hospices must ‘evolve’ to better support next generation of caregivers Hospice News; by Holly Vossel; 3/31/25 Individuals in the millennial and generation Z (Gen Z) age groups represent a swelling proportion of today’s family caregivers. They face unique challenges when providing support for hospice patients compared to others, recent research has found. ... Understanding the competing, complex priorities of these generations is pivotal for hospices’ ability to deliver quality care, according to Nicole McCann-Davis, senior client advisor and research director at Transcend Strategy Group. [Continue reading ...]

Palliative care in the intensive care unit: An integrative review of intensive care unit health care professionals' views and experiences Dimensions of Critical Care Nursing (DCCN); by Berit Lindahl and Susan Kirk; May-Jun 2025 ... Our findings suggest there is variation in how palliative care in the ICU is conceptualized and interpreted. Intensive care unit professionals need enhanced competencies and training to develop their confidence in providing palliative care and improve role clarity. Such training should focus on serious illness conversations with patients/families and interdisciplinary teamwork. Integration of palliative consultants into the ICU could be further developed.

Dad diary: A smashed snake and our first real talk about death Indy Parenting; by Tyler Hayden; 3/28/25 The other day, just after the rain, my three-year-old and I were making our regular walk up the street to get the mail when he suddenly stopped and looked at the ground. There on the asphalt was a young gopher snake, crushed and bloody, its insides on the outside. “What’s that?” he asked. Here we go, I thought. Our first real conversation about death. I’d always imagined ― or hoped ― his first encounter with the other side of life would be a belly-up goldfish or a bird lying still in grass. Or even our 16-year-old cat. Something like that. But here it was, in an especially gory and disorienting form, staring us in the face. ... NPR recently interviewed a hospice social worker named Rosemarie Truglio, who specializes in talking with children about the death. She compared the gradual process of helping them understand it to how a kid eats an apple, ... [Continue reading ...] 

Saying goodbye to Dad MidlandsLife; by Jeff Becraft; 3/27/25 I know my last article talked about my Dad moving on to Higher Ground, but while it is still fresh on my mind, I’m going to delve into the process of saying goodbye.  Perhaps it will resonate with someone who has already been down this path… or maybe someone who will be going down this path. I know that many people have been on a longer road than what I am going to describe. I won’t try to cover everything and there are some very significant things that are left out because of space; I will be simply giving my perspective on the overall experience of the last days. [Continue reading ...]Editor's note: If you have to dive into only one article today, this is the one. If you have experienced the vigil of a loved one's final days, this likely gives voice to your journey: "Each day we thought was going to be Dad’s last. It was certainly a time of changing emotions." If you have not experienced this, read to learn common rhythms and themes, dissonances harmonies, and final release into death. Thank you Jeff Becraft for your meaningful reflection.

Medicare and 24-hour in-home hospice care​: Is it covered?Healthline; Medically reviewed by Shilpa Amin, MD, CAQ, FAAFP and written by Mandy French; 3/25/25... Medicare offers hospice coverage for beneficiaries. However, there are certain eligibilities and guidelines that they must meet. ...