Literature Review

When words matter: NFDA releases groundbreaking communication guide for funeral professionals National Funeral Directors Association (NFDA), Brookfield, WI; Press Release; 10/27/25 The National Funeral Directors Association (NFDA) has released “When Words Matter: A Funeral Director’s Guide to Clear and Compassionate Communication,” a groundbreaking, research-driven resource designed to bridge the growing language gap between funeral professionals and the families they serve. ... Available now as a free download at NFDA.org/Research, this new guide is grounded in original NFDA research conducted earlier this year with more than 1,100 U.S. consumers across four generations. ... While funeral professionals have long used terms like “funeral,” “memorial service” and “celebration of life,” the new study revealed that families often define – or misunderstand – these terms in radically different ways. Editor's Note: Basic decisions about burial versus cremation usually need to be made before the death. Your interdisciplinary team members need to be up-to-date with this NFDA communication guide, for consistent family information and planning.

How to manage financial caregiving for an aging parent AOL.com; by Kerry Hannon; 10/25/25Steering end-of-life financial decisions for an aging parent is not a job many of us would choose. But we do — and feel our way through the messy emotions as best we can. ...[From an interview:] "[Your mom] was rejected for hospice care, which is covered by Medicare. Can you elaborate on that?""That was just such a slap in the face because it's a hard decision to go to hospice. ... My mom made that decision for herself, but my brother, the doctors, and me had to be on board with it in order for her to do it. The only reason they rejected her is because they thought she would be too costly. They do a cost-benefit analysis of how long that person is going to last— how much [in] resources is she going to consume? They decided that her diagnosis was too murky to justify putting her on hospice at that point. I finally found another hospice company to accept her. And she died in two weeks."

Ensuring safe, effective transitions to hospice Hospice News; by Jim Parker; 10/22/25 Trust, coordination among staff and speedy processes are essential to hospice referral management. This is according to new research from Transcend Strategy Group. For the consulting firm’s most recent Insights Report it conducted in-depth interviews with hospice admissions and business development professionals to identify recurring themes, barriers and opportunities. ... “We have to remember that for the person calling this is probably one of the worst days of their life — if it’s a family member, or if they’re calling on behalf of themselves — and they need help urgently,” Tony Kudner, chief strategy officer for Transcend Strategy Group, told Hospice News.

Teaching end-of-life care: Q&A with professor of medicine Medical Xpress; by Mahima Samraik, Yale University, edited by Sadie Harley; 10/20/25 Every year, thousands of families sit in hospital rooms hearing words no one wants to hear: "We have done everything we can." What happens next, whether doctors stay engaged or step away, can transform one of life's most difficult moments for patients and their families. Unfortunately, for too many patients, the shift from curative care to end-of-life care leaves them feeling stranded. ... "But it doesn't have to be this way," says Matthew Ellman, MD, professor of medicine (general medicine) at Yale School of Medicine (YSM) and director of Medical Student Palliative and End-of-Life Care Education. Ellman has spent decades at patients' bedsides and now teaches medical students about death and dying. In his recent essay in Academic Medicine, he draws from his personal experiences as a physician and encourages fellow doctors to embrace difficult conversations around end-of-life care.

The essential role of Speech-Language Pathologists in end-of-life swallowing intervention: A narrative reviewASHA Perspectives; by Sanora Yonan; 9/25Speech-language pathologists (SLPs) are essential in the intervention of dysphagia, particularly at the end of life (EoL), where their guidance can significantly improve patients' comfort and quality of life. However, despite a growing recognition of their importance in this palliative setting, SLPs continue to face obstacles for consistent involvement on the palliative care team. Three primary themes emerged [from this study]: diet texture adjustment, compensatory swallowing strategies, and patient and caregiver education. The review also identified significant barriers to SLP involvement, including inconsistent practices, limited resources, legal concerns, and a lack of interdisciplinary integration.Assistant Editor's note: In my experience, SLPs were rarely, if ever, utilized with hospice patients. However, this article clearly describes ways that SLPs could be helpful for patients with swallowing difficulties. SLPs can also be very useful for patients with speech difficulties. I think the IDT simply does not think of it-does not think of how a SLP could be helpful. Maybe it is also partly due to lack of knowledge of their value. Perhaps, both hospice and palliative care teams might consider arranging for an inservice from a SLP so that team members can learn more about how such therapy could be helpful in improving the quality of life of patients.

‘A good death’: How compassionate care helps people navigate the end of life YaleNews - Health & Medicine, New Haven, CT; by Meg Dalton; 10/13/25Palliative and hospice care both focus on improving the quality of life of people with serious illness. In a Q&A, Shelli Feder discusses the future of compassionate care in the U.S. — and what it means to have a “good death.” The hospice movement got its start in the United States right here in New Haven.  In the late 1960s, former Yale School of Nursing (YSN) Dean Florence Schorske Wald attended a speech given by hospice pioneer, Dr. Cicely Saunders, at Yale School of Medicine. ...

What we get wrong about death, according to end-of-life workers Yahoo Lifestyle, originally appeared on HuffPost; by Monica Torres; 10/10/25 The one big thing that people have in common is that we all will die, and we likely will experience the death of someone we love, too. ... That’s why it can help to hear the insights of people who see death all the time, because understanding it now can help us better process grief about others and feel more at ease when thinking about our own mortality. ...

The expanding role of family medicine in Alzheimer's Disease and other dementias Patient Care; by Grace Halsey; 10/7/25 [From the 2025 Family Medicine Experience conference] Family medicine's unique position in dementia management spans initial diagnosis through end-of-life care. ... Dementia Staging: Clinical Assessment and Hospice EligibilityFor practical bedside assessment and hospice determination, the Functional Assessment Staging Tool (FAST) proves particularly valuable.1 The FAST scale includes 7 main stages, progressing from no impairment (stage 1) through severe dementia requiring total care (stage 7). Stage 7 breaks down further into substages (7a-7f) that capture specific functional losses including ambulation, independent sitting, smiling, and head control. Eligibility for hospice care generally requires FAST stage 7c or beyond, indicating ... [continue reading this important criteria] Editor's Note: Leaders must understand hospice eligibility criteria when setting census goals, guiding teams, and communicating with families. Getting it wrong risks fraudulent billing, angry caregivers when live discharges occur, or too little care that comes too late. Getting it right ensures dignity, humanity, and meaningful final moments amid dementia's long goodbyes—true measures of compassionate hospice dementia care.

'I spent 36 years holding dying patients' hands' BBC News, Ireland; by Grace Shaw; 10/5/25 For hospice nurse Trish Carling, holding a dying patient's hand through the dark hours of the night was a privilege to share. The 66-year-old has just retired after 36 years working in palliative care at St Michael's Hospice in Harrogate. Her first shift was in November 1989, and she has worked almost every Christmas Eve and New Year's Eve since. Despite the demands of the job, she originally chose the pathway because it worked around family life when her children were young. "At first I found the night shifts practical - they then became my preferred hours," she said. ... [Continue reading]Editor's Note: In what ways do you honor your longtime employees? How do you tell their stories of passionate compassion? Of loyalty to your core mission through changing times and operational practices? So many of these valued employees began in a pre-digital era. Imagine: before cell phones, the internet, websites, electronic employee files, EMR systems, and so much more. Crucial employee data can get lost especially during organizational name changes, Mergers & Acquistions, or a short-term leave of absence. Let this article be a catalyst for you to research and honor your employees with long tenures. Without their faithful foundations, your work today would not be the same.

Strengthening mental health literacy enhances job well-being in palliative care Oncology Nures Advisor; by Megan Garlapow, PhD; 10/1/25 Positive mental health literacy (PMeHL) significantly improved job well-being among palliative care nurses, with job crafting acting as a partial mediator in this relationship, according to a study published in BMC Psychology. These results highlight the importance of psychological resources and proactive role adjustments for supporting nurses working in high-stress palliative care settings.Editor's Note: "Job crafting" is the process by which employees actively shape and redefine their roles to enhance job satisfaction, engagement, and meaning in their work. 

Instilling hope: A comprehensive model of cancer care for younger adults Targeted Oncology; by Andrea Eleazar, MHS and Shane Dormady, MD, PhD; 9/29/25 In the past decade, the incidence of numerous cancer types has increased, particularly among younger adults under age 50. For younger adults, many of whom are primary breadwinners of their households or in the height of their educational or professional careers, a cancer diagnosis at this life stage can be unexpected and jarring. ... In an interview with Targeted Oncology, Shane Dormady, MD, PhD, medical director of El Camino Health Cancer Center, describes the unique needs and challenges of younger adults, outlines El Camino Health’s comprehensive care strategy, and offers insights and considerations for treating and interacting with this patient population.

Long COVID hitting doctors and nurses hard Medscape; by David Brzostowkicki; 9/3/25 Jeffrey Siegelman, MD, contracted COVID-19 in August 2020 and, 3 months later, published a paper online in JAMA about his experiences. Today, he’s still dealing with the symptoms, as one of many healthcare providers who have long COVID. He said his experience highlights the impact of long COVID on hundreds of thousands of doctors, nurses, and other healthcare workers, by some estimates, who have been on the frontlines fighting the pandemic from the beginning. “I reflect on that paper from JAMA, and I thought that 3 months was a long time,” said Siegelman, associate professor of emergency medicine at the Emory University School of Medicine and a practicing emergency room doctor in Atlanta. “And here I am, 5 years later, and I still have symptoms. I think that’s the case for a lot of patients with long COVID, that it just keeps getting longer.”